SchizophreniaNCT00111202
Schizophrenia and Genetic Counseling
An observational study of Schizophrenia, run by Sarah Lawrence College.
Trial summary
This research is designed to investigate the perceptions and opinions of individuals who either have schizophrenia or who have a family member with schizophrenia, in relation to genetic counseling. Data will be collected via a 15 minute online questionnaire. Read more about this study
- Who is it for?
- Ages 18 years and olderHealthy volunteers can take part
- Conditions the study is for
- Schizophrenia
- How many people
- 100 participants
- Where
- No sites listed yet
- Study dates
- May 2005to Jun 2006
- Phase
- Observational
- Are there results?
- None posted in the registry
Key requirements
Who can take part, as listed by the sponsor. Only the study team can confirm whether you are eligible, so take this list to your doctor.
- Ages 18 years and older
- All sexes
- Healthy volunteers accepted
- Adult, Older adult
Who may be able to join
- anyone diagnosed with schizophrenia OR who has family member diagnosed with schizophrenia
- Over 18 years old
Who cannot join
None listed.
About this study
Official title: Schizophrenia and Genetic Counseling: A Survey of People With Schizophrenia and Their Relatives
This research is designed to investigate the perceptions and opinions of individuals who either have schizophrenia or who have a family member with schizophrenia, in relation to genetic counseling. Data will be collected via a 15 minute online questionnaire. There is also an option for respondents to participate in a 45 minute interview if they wish.
It is expected that the study will show that adequate information about genetic counseling is not provided to these individuals. It is also hoped that this research will help to make genetic counseling sessions more specific to people with schizophrenia in their family.
Read the detailed description
For more information please go to the following website:
http://schizophreniageneticcounseling.blogspot.com
- Conditions
- Schizophrenia
- Keywords
- Genetic counseling, Genetic counselling, Genetics, Schizophrenia
- Medical subject headings
- Schizophrenia
Timeline
From the start of the study to its completion; the mark is today. Estimated dates are the sponsor’s plan.
- First posted18 May 2005 (estimated)
- Study startMay 2005
- Study completionJun 2006
Resources
- Official record on ClinicalTrials.govThe registry entry this page is built from, with its full change history.
- Other trials for SchizophreniaStudies of the same condition, open and under way.
- What the trial phases meanHow a treatment moves from first tests in people to approval.
More details
For doctors and researchers: how the study is designed, who runs it, and its registry IDs.
Study design
- Study type
- Observational
- Time perspective
- Other
- Enrolment
- 100 participants
Sponsor and investigators
- Lead sponsor
- Sarah Lawrence College
- Sponsor type
- University, hospital or other
- Investigators
- Study Completed, Principal investigator, SLC
IDs, dates and publications
- ClinicalTrials.gov ID
- NCT00111202
- Sponsor's protocol ID
- SLC1012005
- Status last verified
- May 2005
- First submitted
- 17 May 2005
- Last updated
- 30 Sep 2005
- Results posted
- No
Study at a glance
From the registry record, last updated by the sponsor on 30 Sep 2005. Recruitment status is as the sponsor reported it: confirm with the study team.
- Official title
- Schizophrenia and Genetic Counseling: A Survey of People With Schizophrenia and Their Relatives
- ClinicalTrials.gov ID
- NCT00111202
- Acronym / sponsor ID
- SLC1012005
- Conditions
- Schizophrenia
- Keywords
- Genetic counseling, Genetic counselling, Genetics, Schizophrenia
- Study type
- Observational
- Recruitment status
- Unknown status
- Enrolment
- 100 participants
- Lead sponsor
- Sarah Lawrence CollegeUniversity, hospital or other
- Study start
- May 2005
- Study completion
- Jun 2006
- First posted
- 18 May 2005 (estimated)
- Results
- Not posted in the source record
Clinical summary
The research question as the sponsor registered it. This describes what the study plans to test, not what it found.
This research is designed to investigate the perceptions and opinions of individuals who either have schizophrenia or who have a family member with schizophrenia, in relation to genetic counseling. Data will be collected via a 15 minute online questionnaire. There is also an option for respondents to participate in a 45 minute interview if they wish.
It is expected that the study will show that adequate information about genetic counseling is not provided to these individuals. It is also hoped that this research will help to make genetic counseling sessions more specific to people with schizophrenia in their family.
Detailed description
For more information please go to the following website:
http://schizophreniageneticcounseling.blogspot.com
Study design
- Time perspective
- Other
Who may qualify
- Ages
- 18 years and older
- Sex
- All
- Healthy volunteers
- Accepted
- Age groups
- Adult, Older adult
Key inclusion criteria (2 listed)
- anyone diagnosed with schizophrenia OR who has family member diagnosed with schizophrenia
- Over 18 years old
Key exclusion criteria (0 listed)
Eligibility is decided by the study team after screening; this overview does not establish that a patient qualifies. Full inclusion and exclusion criteria.
Primary outcome
Not reported in the source record.
Results and safety
Results are not available in the source record.
Research links
- Official record on ClinicalTrials.govLast updated by the sponsor 30 Sep 2005.
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Referral and contact
AzTrials does not enrol participants or take referrals. Contact the study team or a site listed below; they decide who can take part. This study is not recruiting at the moment.
Study Completed principal investigator
SLC
Questions about this trial
What is this clinical trial studying?
An observational study of Schizophrenia, run by Sarah Lawrence College.
The full registered description is in the About this study section and the official record.
Who may be eligible to take part?
The sponsor lists 2 inclusion and 0 exclusion criteria. Eligibility is decided by the study team after screening, so read the full criteria and contact a listed site.
Is this clinical trial currently recruiting?
The record says: status not confirmed, as of the sponsor's last update on 30 Sep 2005. Status can change between updates, so confirm with the study contact before making plans.
What are the possible benefits and risks?
They depend on the study and the treatment, and no study can promise a benefit. The study team explains the known risks during informed consent, before anyone joins; the record itself does not list them.
Are results available for this study?
Results are not available in the source record.
How can a doctor refer a patient or contact the research team?
The record lists no contact. The official record names the sponsor, who can be asked directly. AzTrials does not enrol participants or take referrals.
Where can I read the original study information?
Does a listing mean the treatment is approved or proven to work?
No. A listing means the study is registered. It does not show that the treatment is safe, works, or is approved by a regulator.
How often is this information updated?
AzTrials copies changed records from ClinicalTrials.gov every night and reloads the whole registry every week. The sponsor last updated this record on 30 Sep 2005.