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Lung Diseases, InterstitialILDRRNCT00258583

Dorothy P. and Richard P. Simmons Center for ILD Research Registry

An observational study of Lung Diseases, Interstitial, run by University of Pittsburgh at 1 site in United States.

Recruiting

Looking for participants now. Contact the study team or a site below to ask about taking part.

Sites and contacts
Official record

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Trial summary

The purpose of this study is to place past, current, and future medical record information into the UPMC Simmons Center for Interstitial Lung Disease Research Registry. Read more about this study

Who is it for?
Ages 18 years and older
Conditions the study is for
Lung Diseases, Interstitial
How many people
5,000 participants
Where
1 siteUnited States
Study dates
Oct 2003to Jul 2035
Phase
Observational

Key requirements

Who can take part, as listed by the sponsor. Only the study team can confirm whether you are eligible, so take this list to your doctor.

  • Ages 18 years and older
  • All sexes
  • No healthy volunteers
  • Adult, Older adult

Study population: Study population can be described as any adult being seen by a physician at the Simmons Center for interstitial lung disease who has been diagnosed with an Interstitial Lung Disease.

Who may be able to join

  • Adult patients who are seeking treatment at the UPMC Simmons Center for Interstitial Lung Disease
  • 18 years of age or older

Who cannot join

  • N/A

Trial locations and contacts

1 site in 1 country. Contact the study team or a site near you to ask about taking part.

Michelle F MacPherson, MAT contact

412-647-4537

macphersonmj@upmc.edu

Michelle Meyers, BSN, RN contact

412-692-2149

meyersma@upmc.edu

United States1 site, 1 recruiting
  • Michelle F MacPherson

    Pittsburgh, Pennsylvania, 15213

    Michelle F MacPherson, MAT, 14126474537, macphersonmj@upmc.edu

    Michelle Meyers, BSN, 4126922149, meyersma@upmc.edu

    Recruiting

Other trials in United States

About this study

Official title: Dorothy P. and Richard P Simmons Center for Interstitial Lung Disease Research Registry

The purpose of this study is to place past, current, and future medical record information into the UPMC Simmons Center for Interstitial Lung Disease Research Registry.

Read the detailed description

This study gives participant's permission to allow the staff at the Dorothy P. and Richard P. Simmons Center for Interstitial Lung Disease to to place past, current, and future medical record information into a UPMC Simmons Center for Interstitial Lung Disease Research Registry. By placing the medical record information of many patients into a research registry, researchers will be able to conduct research studies directed at increasing our knowledge about interstitial lung disease. It is anticipated that the research registry will assist out investigators by allowing researchers to review and study the medical records of many individuals to answer questions about interstitial lung disease and its treatment. In addition, it will help researchers identify and recruit patients for participation in future research studies.

Keywords
"Lung[A04.400]"
Medical subject headings
Lung Diseases, Interstitial

Timeline

From the start of the study to its completion; the mark is today. Estimated dates are the sponsor’s plan.

  1. First posted24 Nov 2005 (estimated)
  2. Study startOct 2003
  3. Primary completionJul 2035 (estimated)
  4. Study completionJul 2035 (estimated)

Resources

More details

For doctors and researchers: how the study is designed, who runs it, and its registry IDs.

Study design
Study type
Observational
Observational model
Cohort
Time perspective
Other
Enrolment
5,000 participants (estimated)
IDs, dates and publications
ClinicalTrials.gov ID
NCT00258583
Sponsor's protocol ID
STUDY20030050
Acronym
ILDRR
Status last verified
Aug 2026
First submitted
23 Nov 2005
Last updated
27 Aug 2026
Results posted
No
Data monitoring committee
Yes

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