Inflammatory ArthritisENRICHNCT07491939
Palliative and Supportive Care to Help People With Arthritis to Live Well (ENRICH)
An observational study of Inflammatory Arthritis and Palliative Care, run by Dorothy House Hospice at 1 site in United Kingdom.
Trial summary
Palliative Care (PC) focuses on maximising quality of life and care for patients and their families in the last 1000 days of life. Supportive Care (SC) is provided earlier in life for people with a long-term health condition. Read more about this study
- Who is it for?
- Ages 18 years and older
- Conditions the study is for
- Inflammatory Arthritis, Palliative Care
- What is being tested?
- NONE - observational study
- How many people
- 120 participants
- Where
- 1 siteUnited Kingdom
- Study dates
- 19 Feb 2026to Apr 2027
- Phase
- Observational
- Are there results?
- Not yet: the study is under way
Key requirements
Who can take part, as listed by the sponsor. Only the study team can confirm whether you are eligible, so take this list to your doctor.
- Ages 18 years and older
- All sexes
- No healthy volunteers
- Adult, Older adult
Study population: Adults with inflammatory arthritis
Who may be able to join
- Adults (> 18 years) with a diagnosis of arthritis (Rheumatoid, Psoriatic or Juvenile Idiopathic) or Axial Spondyloarthritis
- able to understand and communicate in verbal and written English (or via an interpreter nominated by the participant or provided via an agency by the research team)
- in receipt, or not in receipt of Palliative Care services
- access to Microsoft Teams or a telephone
- consent to sharing preferred contact details
Who cannot join
- Cognitive impairment that impedes communication
- non-English speaker (should an interpreter not be available).
Trial locations and contacts
1 site in 1 country. Contact the study team or a site near you to ask about taking part.
Dr Sharon Grieve Research Development and Delivery Lead, DPhil contact
United Kingdom1 site, 1 recruiting
- Recruiting
Dorothy House Hospice
Bath, Wiltshire, BA15 2LE
Sharon Grieve, DPhil, 00 44 1225 722 988, sharon.grieve@dorothyhouse-hospice.org.uk
About this study
Official title: Exploring Perspectives on Palliative and Supportive Care, to Inform Recommendations to Help People Live Well With Inflammatory Arthritis Throughout the Disease Course (ENRICH)
Palliative Care (PC) focuses on maximising quality of life and care for patients and their families in the last 1000 days of life. Supportive Care (SC) is provided earlier in life for people with a long-term health condition.
People living with inflammatory arthritis, (such as rheumatoid arthritis) can experience ongoing pain, stiffness, limitations in their joints, and intrusive fatigue. This impacts daily living activities and emotional well-being. People with inflammatory arthritis would value support to manage symptoms across the course of their disease. They would like PC healthcare professionals (HCPs) to understand their conditions better, so they can live well to the end of their lives.
Read more
Aims:
The investigators will explore the potential role of Palliative and Supportive Care (PSC) for people with inflammatory arthritis. The investigators will describe any unmet patient need. The investigators will develop clinical and research recommendations to help people with inflammatory arthritis live well over the course of their disease.
Plan:
The investigators research will be conducted in three studies:
Study 1: The investigators will conduct 1:1 online interviews with people with inflammatory arthritis to understand how PSC is perceived by them, and what their views are on how PSC may support them to live well.
Study 2: The investigators will send an online survey to Rheumatologists, Primary Care, Community and PC HCPs, to understand:
- if and how they work together currently;
- their views on the role of PSC supporting people with inflammatory arthritis to live well.
Study 3: The investigators will conduct online focus groups with volunteers from Studies 1 and 2, representatives from relevant national charities/organisations, and people who commission health services. Together the group will discuss the research findings and agree:
- what the gap in patient care is;
- recommendations for future clinical practice and research;
- the key areas of importance for patients which should be measured in future work
- Conditions
- Inflammatory Arthritis, Palliative Care
- Being tested
- NONE - observational study
- Keywords
- Inflammatory arthritis, Palliative Care
- Medical subject headings
- Arthritis
What participants receive
What participants receive. In a randomised study each person is assigned to one group by chance.
NONE - observational studyOther
N/A as observational study
| Study group | Role | What they receive |
|---|---|---|
| Inflammatory arthritis | Not described Receives: Other: NONE - observational study |
What is being measured
The primary outcome is the main question the study is designed to answer.
Primary outcomes
The primary outcomes for this research will be:
- A description of the nature and scope of unmet patient need,
- Clinical and research recommendations, informed by expert opinion and the 'six pillars' framework of the British Society of Lifestyle Medicine, which describe the potential role of PSC for people with inflammatory arthritis throughout the disease course.
- Patient identified areas of importance which should be measured in future work.
Measured: through to study completion, an average of one year
Timeline
From the start of the study to its completion; the mark is today. Estimated dates are the sponsor’s plan.
- First posted25 Mar 2026
- Study start19 Feb 2026
- Primary completionJan 2027 (estimated)
- Study completionApr 2027 (estimated)
Resources
- Official record on ClinicalTrials.govThe registry entry this page is built from, with its full change history.
- Other trials for Inflammatory ArthritisStudies of the same condition, open and under way.
- What the trial phases meanHow a treatment moves from first tests in people to approval.
More details
For doctors and researchers: how the study is designed, who runs it, and its registry IDs.
Study design
- Study type
- Observational
- Observational model
- Cohort
- Time perspective
- Prospective
- Enrolment
- 120 participants (estimated)
Sponsor and investigators
- Lead sponsor
- Dorothy House Hospice
- Sponsor type
- University, hospital or other
- Collaborators
- University of the West of England, Royal United Hospitals Bath NHS Foundation Trust, University Hospitals Bristol and Weston NHS Foundation Trust
- Responsible party
- Sponsor
IDs, dates and publications
- ClinicalTrials.gov ID
- NCT07491939
- Sponsor's protocol ID
- 348144
- Other IDs
- 23281
- Acronym
- ENRICH
- Status last verified
- Jan 2026
- First submitted
- 20 Jan 2026
- Last updated
- 25 Mar 2026
- Results posted
- No
- Data monitoring committee
- No
- FDA-regulated drug
- No
- FDA-regulated device
- No
- Individual data sharing
- No
Study at a glance
From the registry record, last updated by the sponsor on 25 Mar 2026. Recruitment status is as the sponsor reported it: confirm with the study team.
- Official title
- Exploring Perspectives on Palliative and Supportive Care, to Inform Recommendations to Help People Live Well With Inflammatory Arthritis Throughout the Disease Course (ENRICH)
- ClinicalTrials.gov ID
- NCT07491939
- Acronym / sponsor ID
- ENRICH / 348144
- Conditions
- Inflammatory Arthritis, Palliative Care
- Keywords
- Inflammatory arthritis, Palliative Care
- Study type
- Observational
- Recruitment status
- Recruiting
- Enrolment
- 120 participants (estimated)
- Lead sponsor
- Dorothy House HospiceUniversity, hospital or other
- Collaborators
- University of the West of England, Royal United Hospitals Bath NHS Foundation Trust, University Hospitals Bristol and Weston NHS Foundation Trust
- Study start
- 19 Feb 2026 (actual)
- Primary completion
- Jan 2027 (estimated)
- Study completion
- Apr 2027 (estimated)
- First posted
- 25 Mar 2026 (actual)
- Results
- Not posted in the source record
Clinical summary
The research question as the sponsor registered it. This describes what the study plans to test, not what it found.
Palliative Care (PC) focuses on maximising quality of life and care for patients and their families in the last 1000 days of life. Supportive Care (SC) is provided earlier in life for people with a long-term health condition.
People living with inflammatory arthritis, (such as rheumatoid arthritis) can experience ongoing pain, stiffness, limitations in their joints, and intrusive fatigue. This impacts daily living activities and emotional well-being. People with inflammatory arthritis would value support to manage symptoms across the course of their disease. They would like PC healthcare professionals (HCPs) to understand their conditions better, so they can live well to the end of their lives.
Aims:
The investigators will explore the potential role of Palliative and Supportive Care (PSC) for people with inflammatory arthritis. The investigators will describe any unmet patient need. The investigators will develop clinical and research recommendations to help people with inflammatory arthritis live well over the course of their disease.
Plan:
The investigators research will be conducted in three studies:
Study 1: The investigators will conduct 1:1 online interviews with people with inflammatory arthritis to understand how PSC is perceived by them, and what their views are on how PSC may support them to live well.
Study 2: The investigators will send an online survey to Rheumatologists, Primary Care, Community and PC HCPs, to understand:
- if and how they work together currently;
- their views on the role of PSC supporting people with inflammatory arthritis to live well.
Study 3: The investigators will conduct online focus groups with volunteers from Studies 1 and 2, representatives from relevant national charities/organisations, and people who commission health services. Together the group will discuss the research findings and agree:
- what the gap in patient care is;
- recommendations for future clinical practice and research;
- the key areas of importance for patients which should be measured in future work
Study design
- Observational model
- Cohort
- Time perspective
- Prospective
- Number of arms
- 1
| Arm | Type | Receives |
|---|---|---|
| Inflammatory arthritis | – | Other: NONE - observational study |
Who may qualify
- Ages
- 18 years and older
- Sex
- All
- Healthy volunteers
- Not accepted
- Age groups
- Adult, Older adult
- Study population
- Adults with inflammatory arthritis
Key inclusion criteria (5 listed)
- Adults (> 18 years) with a diagnosis of arthritis (Rheumatoid, Psoriatic or Juvenile Idiopathic) or Axial Spondyloarthritis
- able to understand and communicate in verbal and written English (or via an interpreter nominated by the participant or provided via an agency by the research team)
- in receipt, or not in receipt of Palliative Care services
- access to Microsoft Teams or a telephone
- consent to sharing preferred contact details
Key exclusion criteria (2 listed)
- Cognitive impairment that impedes communication
- non-English speaker (should an interpreter not be available).
Eligibility is decided by the study team after screening; this overview does not establish that a patient qualifies. Full inclusion and exclusion criteria.
Interventions
| Intervention | Type | Arms |
|---|---|---|
| NONE - observational studyN/A as observational study | Other | Inflammatory arthritis |
Primary outcome
Primary outcomes
Time frame: through to study completion, an average of one year
The primary outcomes for this research will be: * A description of the nature and scope of unmet patient need, * Clinical and research recommendations, informed by expert opinion and the 'six pillars' framework of the British Society of Lifestyle Medicine, which describe the potential role of PSC for people with inflammatory arthritis throughout the disease course. * Patient identified areas of importance which should be measured in future work.
Results and safety
This study is still under way. Results are not available in the source record yet.
Research links
- Official record on ClinicalTrials.govLast updated by the sponsor 25 Mar 2026.
- Individual participant dataSharing planned: No
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Referral and contact
AzTrials does not enrol participants or take referrals. Contact the study team or a site listed below; they decide who can take part.
Dr Sharon Grieve Research Development and Delivery Lead, DPhil contact
1 site in 1 country: see every site and its status.
Questions about this trial
What is this clinical trial studying?
An observational study of Inflammatory Arthritis and Palliative Care, run by Dorothy House Hospice at 1 site in United Kingdom.
The full registered description is in the About this study section and the official record.
Who may be eligible to take part?
The sponsor lists 5 inclusion and 2 exclusion criteria. Eligibility is decided by the study team after screening, so read the full criteria and contact a listed site.
Is this clinical trial currently recruiting?
The record says: looking for participants now, as of the sponsor's last update on 25 Mar 2026. Status can change between updates, so confirm with the study contact before making plans.
Where is the study taking place?
The record lists 1 site in United Kingdom. Whether a site is taking part right now should be confirmed with that site. See every site.
What are the possible benefits and risks?
They depend on the study and the treatment, and no study can promise a benefit. The study team explains the known risks during informed consent, before anyone joins; the record itself does not list them.
Are results available for this study?
This study is still under way. Results are not available in the source record yet.
How can a doctor refer a patient or contact the research team?
Contact Dr Sharon Grieve Research Development and Delivery Lead, DPhil (00 44 1225 722988, sharon.grieve@dorothyhouse-hospice.org.uk), or a site near the patient. AzTrials does not enrol participants or take referrals.
What does the primary outcome measure?
Primary outcomes (time frame: through to study completion, an average of one year). It is what the study was designed to measure, not a finding.
Where can I read the original study information?
Does a listing mean the treatment is approved or proven to work?
No. A listing means the study is registered. It does not show that the treatment is safe, works, or is approved by a regulator.
How often is this information updated?
AzTrials copies changed records from ClinicalTrials.gov every night and reloads the whole registry every week. The sponsor last updated this record on 25 Mar 2026.