EndometriosisEUmetriosisNCT07591441
Endometriosis Self-Management Strategies
An observational study of Endometriosis and Self-management, run by Wageningen University and Research at 1 site in Netherlands.
Trial summary
The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: [How] do support structures across personal, community, healthcare, and institutional levels influence individuals'… Read more about this study
- Who is it for?
- Ages 16 years and older, women only
- Conditions the study is for
- Endometriosis, Self-management
- How many people
- 150 participants
- Where
- 1 siteNetherlands
- Study dates
- 19 Jan 2026to 31 Dec 2029
- Phase
- Observational
- Are there results?
- Not yet: the study is under way
Key requirements
Who can take part, as listed by the sponsor. Only the study team can confirm whether you are eligible, so take this list to your doctor.
- Ages 16 years and older
- Women only
- No healthy volunteers
- Child, Adult, Older adult
Study population: People living with endometriosis who are above 16 years of age and residing in Europe; family/friends/partners of people living with endometriosis. Also, healthcare providers and policymakers.
Who may be able to join
- living in a European country
- 16 years or older
- having been diagnosed with endometriosis or very likely to have endometriosis based on a previous assessment, even if not having received a definitive surgical diagnosis
- fluent in a language spoken by the research team
Who cannot join
- not meeting one of the inclusion criteria
Trial locations and contacts
1 site in 1 country. Contact the study team or a site near you to ask about taking part.
Netherlands1 site, 1 recruiting
- Recruiting
Leeuwenborch
Wageningen, 6706 KN
Erica Selznick, +31 (0)317 - 48 36 39, receptie.leeuwenborch@wur.nl
About this study
Official title: Endometriosis Self-Management Strategies: Exploring Empowerment and Abandonment Through Lived Experiences
The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: [How] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?
Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.
Read the detailed description
The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: [How] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?
Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.
- Conditions
- Endometriosis, Self-management
- Medical subject headings
- Endometriosis
What participants receive
What participants receive. In a randomised study each person is assigned to one group by chance.
| Study group | Role | What they receive |
|---|---|---|
| People living with endometriosis across Europe | Qualitative data collection- no intervention of interest |
What is being measured
The primary outcome is the main question the study is designed to answer.
Lived experiences self-managing endometriosis (Qualitative narratives through interviews and diary studies)
People will discuss their lived experiences self-managing endometriosis, discussing what everyday actions they do to feel their best (qualitative narratives, lived experiences collected through interviews and diary studies)
Measured: From enrollment until the end of focus group participation, up to four years
Timeline
From the start of the study to its completion; the mark is today. Estimated dates are the sponsor’s plan.
- First posted15 May 2026
- Study start19 Jan 2026
- Primary completion31 Dec 2027 (estimated)
- Study completion31 Dec 2029 (estimated)
Resources
- Official record on ClinicalTrials.govThe registry entry this page is built from, with its full change history.
- Other trials for EndometriosisStudies of the same condition, open and under way.
- What the trial phases meanHow a treatment moves from first tests in people to approval.
More details
For doctors and researchers: how the study is designed, who runs it, and its registry IDs.
Study design
- Study type
- Observational
- Observational model
- Ecologic or community
- Time perspective
- Retrospective
- Enrolment
- 150 participants (estimated)
Sponsor and investigators
- Lead sponsor
- Wageningen University and Research
- Sponsor type
- University, hospital or other
- Collaborators
- University of Edinburgh
- Responsible party
- Principal investigator, Erica Selznick, Wageningen University and Research
IDs, dates and publications
- ClinicalTrials.gov ID
- NCT07591441
- Sponsor's protocol ID
- 2025-118-A2
- Other IDs
- 101157146
- Acronym
- EUmetriosis
- Status last verified
- May 2026
- First submitted
- 21 Jan 2026
- Last updated
- 15 May 2026
- Results posted
- No
- Data monitoring committee
- Yes
- FDA-regulated drug
- No
- FDA-regulated device
- No
- Individual data sharing
- No: The data will be personal, sensitive data about lived experiences and therefore will only be available to the research team and not shared.
Study at a glance
From the registry record, last updated by the sponsor on 15 May 2026. Recruitment status is as the sponsor reported it: confirm with the study team.
- Official title
- Endometriosis Self-Management Strategies: Exploring Empowerment and Abandonment Through Lived Experiences
- ClinicalTrials.gov ID
- NCT07591441
- Acronym / sponsor ID
- EUmetriosis / 2025-118-A2
- Conditions
- Endometriosis, Self-management
- Study type
- Observational
- Recruitment status
- Recruiting
- Enrolment
- 150 participants (estimated)
- Lead sponsor
- Wageningen University and ResearchUniversity, hospital or other
- Collaborators
- University of Edinburgh
- Study start
- 19 Jan 2026 (actual)
- Primary completion
- 31 Dec 2027 (estimated)
- Study completion
- 31 Dec 2029 (estimated)
- First posted
- 15 May 2026 (actual)
- Results
- Not posted in the source record
Clinical summary
The research question as the sponsor registered it. This describes what the study plans to test, not what it found.
The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: [How] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?
Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.
Detailed description
The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: [How] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis?
Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.
Study design
- Observational model
- Ecologic or community
- Time perspective
- Retrospective
- Number of arms
- 1
| Arm | Type | Receives |
|---|---|---|
| People living with endometriosis across Europe | – | –Qualitative data collection- no intervention of interest |
Who may qualify
- Ages
- 16 years and older
- Sex
- Female only
- Healthy volunteers
- Not accepted
- Age groups
- Child, Adult, Older adult
- Study population
- People living with endometriosis who are above 16 years of age and residing in Europe; family/friends/partners of people living with endometriosis. Also, healthcare providers and policymakers.
Key inclusion criteria (4 listed)
- living in a European country
- 16 years or older
- having been diagnosed with endometriosis or very likely to have endometriosis based on a previous assessment, even if not having received a definitive surgical diagnosis
- fluent in a language spoken by the research team
Key exclusion criteria (1 listed)
- not meeting one of the inclusion criteria
Eligibility is decided by the study team after screening; this overview does not establish that a patient qualifies. Full inclusion and exclusion criteria.
Primary outcome
Lived experiences self-managing endometriosis (Qualitative narratives through interviews and diary studies)
Time frame: From enrollment until the end of focus group participation, up to four years
People will discuss their lived experiences self-managing endometriosis, discussing what everyday actions they do to feel their best (qualitative narratives, lived experiences collected through interviews and diary studies)
Results and safety
This study is still under way. Results are not available in the source record yet.
Research links
- Official record on ClinicalTrials.govLast updated by the sponsor 15 May 2026.
- Individual participant dataSharing planned: No. The data will be personal, sensitive data about lived experiences and therefore will only be available to the research team and not shared.
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Referral and contact
AzTrials does not enrol participants or take referrals. Contact the study team or a site listed below; they decide who can take part.
1 site in 1 country: see every site and its status.
Questions about this trial
What is this clinical trial studying?
An observational study of Endometriosis and Self-management, run by Wageningen University and Research at 1 site in Netherlands.
The full registered description is in the About this study section and the official record.
Who may be eligible to take part?
The sponsor lists 4 inclusion and 1 exclusion criteria. Eligibility is decided by the study team after screening, so read the full criteria and contact a listed site.
Is this clinical trial currently recruiting?
The record says: looking for participants now, as of the sponsor's last update on 15 May 2026. Status can change between updates, so confirm with the study contact before making plans.
Where is the study taking place?
The record lists 1 site in Netherlands. Whether a site is taking part right now should be confirmed with that site. See every site.
What are the possible benefits and risks?
They depend on the study and the treatment, and no study can promise a benefit. The study team explains the known risks during informed consent, before anyone joins; the record itself does not list them.
Are results available for this study?
This study is still under way. Results are not available in the source record yet.
How can a doctor refer a patient or contact the research team?
Contact Erica I Selznick, MSPH (+32471854659, erica.selznick@wur.nl), or a site near the patient. AzTrials does not enrol participants or take referrals.
What does the primary outcome measure?
Lived experiences self-managing endometriosis (Qualitative narratives through interviews and diary studies) (time frame: From enrollment until the end of focus group participation, up to four years). It is what the study was designed to measure, not a finding.
Where can I read the original study information?
Does a listing mean the treatment is approved or proven to work?
No. A listing means the study is registered. It does not show that the treatment is safe, works, or is approved by a regulator.
How often is this information updated?
AzTrials copies changed records from ClinicalTrials.gov every night and reloads the whole registry every week. The sponsor last updated this record on 15 May 2026; AzTrials last refreshed its copy on 1 Nov 2026.