Clinical trials: Disclosure
Autism
To Share or Not To Share: Navigating Disclosure and Stigma Among Family Caregivers of Autistic Young Adults_Group Intervention
This study is a caregiver support program for family caregivers of autistic young adults (ages 18 to 26) as their family members navigate young adulthood.
- Trial name
- NCT07856927
- Testing
- Group Intervention
- Where
- United States
- Volunteers
- 50 people
- Sponsor
- University of Wisconsin, Madison
HIV
SANKOFA Pediatric HIV Disclosure Intervention
A culturally-relevant, theoretically and empirically sound, patient-centered, standardized disclosure intervention that can be integrated into routine clinical pediatric HIV care has potential to prevent transmission and improve…
- Trial name
- NCT01701635
- Testing
- Disclosure intervention, usual care
- Where
- 2 sites in Ghana
- Volunteers
- 446 people
- Sponsor
- Yale University
HIV
Pediatric HIV Disclosure Benefits Study (PhD-BS) - Sankofa 2
The purpose of this study is to conduct a pragmatic, stepped wedge cluster randomized trial in 12 HIV pediatric clinics in Ghana to determine effectiveness, health benefits, cost and implementation to inform scale-up and…
- Trial name
- NCT04791865
- Testing
- Disclosure intervention, Usual Care
- Where
- Ghana
- Volunteers
- 748 people
- Sponsor
- Boston University
Autism Spectrum Disorder
Diagnosis Disclosure Support for Caregivers of Children With Autism
The purpose of this randomized controlled pilot study is to develop and evaluate an online diagnosis disclosure support intervention for caregivers of 7- to 12-year-old children with autism spectrum disorder (ASD) in South Korea.
- Trial name
- NCT07328438
- Testing
- SHARE : Supporting Honest Autism Recognition and Education, One-session seminar
- Volunteers
- 40 people
- Sponsor
- Korea University
Paediatric HIV Diagnosis Disclosure
Pediatric HIV Disclosure Intervention
With increased availability of antiretroviral therapy (ART) and improved care, increasing numbers of perinatally infected children are surviving into adolescence.
- Trial name
- NCT01773642
- Testing
- Cognitive behavioral intervention to support pediatric HIV disclosure
- Where
- 6 sites in Uganda
- Volunteers
- 600 people
- Sponsor
- University of Connecticut
HIV
Patient-Centered Disclosure Intervention for HIV-Infected Children
In the resource-limited settings where most HIV-infected children live, neither the most effective strategies to inform children of their HIV status, nor the impact of disclosure is well understood.
- Trial name
- HADITHI (NCT01947764)
- Testing
- HADITHI Intervention
- Where
- Kenya
- Volunteers
- 330 people
- Sponsor
- Indiana University
HIV, Disclosure
Maternal HIV Disclosure to School Children: RCT of Family-based Intervention
The purpose of this trial is to test whether, compared to the normal Standard of Care at primary health care clinics, a home-based counseling intervention ( the 'Amagugu' Counseling Intervention), will increase the number of…
- Trial name
- Amagugu (NCT01922882)
- Testing
- Amagugu Counseling Intervention
- Where
- South Africa
- Volunteers
- 465 people, healthy volunteers welcome
- Sponsor
- University of KwaZulu
Sickle Cell Trait
Increasing Documentation and Disclosure of Sickle Cell Trait Status: An Implementation Science Approach
The hemoglobinopathy newborn screen (NBS) performed on all neonates in the U.S. allows for early life-saving medical care for infants with sickle cell disease (SCD), an autosomal recessive genetic disorder.
- Trial name
- NCT05387564
- Testing
- SCT Documentation and Disclosure Toolkit (SCT-DD)
- Where
- United States
- Volunteers
- 114 people
- Sponsor
- Nemours Children's Clinic
Error Disclosure, Diagnoses Disease
A Priori Diagnosis and Diagnostic Errors
This is a prospective randomized single-blind simulator-based trial. 156 4th year medical students were randomised to receive one of three different suspected diagnoses of a pre-treating physician (no diagnosis, myocardial…
- Conditions
- Error Disclosure, Diagnoses Disease, Simulation of Physical Illness
- Trial name
- NCT04659265
- Testing
- Suspected diagnosis of a pre-treating physician
- Where
- Switzerland
- Volunteers
- 156 people, healthy volunteers welcome
- Sponsor
- University Hospital, Basel, Switzerland
Partner HIV Testing, Couple HIV Counseling
Couple-oriented Prenatal HIV Counseling in Low and Medium HIV Prevalence Countries
ANRS 12127 Prenahtest is an intervention trial conducted in four countries (Cameroon, Dominican Republic, Georgia and India), where pregnant women are randomized during prenatal care to receive either standard post-test HIV…
- Conditions
- Partner HIV Testing, Couple HIV Counseling, Couple Communication, HIV Incidence
- Trial name
- Prenahtest (NCT01494961)
- Testing
- Couple-oriented post-test HIV counseling
- Where
- 4 sites in Cameroon, Dominican Republic and 2 more
- Volunteers
- 1,943 people, healthy volunteers welcome
- Sponsor
- French National Agency for Research on AIDS and Viral Hepatitis
HIV
Maternal HIV: Trial to Assist Disclosure to Children
The purpose of this Collaborative R01, under Program Announcement PAR-09-153, is to conduct a full-scale trial of an intervention to assist mothers living with HIV (MLH) with disclosing their serostatus to their young age 6 - 14…
- Trial name
- TRACK II (NCT01922206)
- Testing
- TRACK Intervention
- Where
- United States
- Volunteers
- 362 people
- Sponsor
- Georgia State University
Other Diseases or Conditions | Patient
Efficacy of Gastric Biopsy for Culture and Antibiotic Sensitivity Assessment
Gastric biopsies will be taken to compare different methods of H.pylori disclosure.Standard methods will be compared to culture.
- Trial name
- NCT01414829
- Testing
- Gastroscopy
- Sponsor
- The Baruch Padeh Medical Center, Poriya
HIV
A Parenting and Self-Care Intervention for HIV Infected Mothers
The IMAGE intervention was developed to improve parenting and self-care skills in mothers infected with HIV. It is expected that an improvement in these areas will in turn improve the mother's physical and mental health as well…
- Trial name
- IMAGE (NCT01586988)
- Testing
- IMAGE Intervention
- Where
- United States
- Volunteers
- 124 people
- Sponsor
- University of California, Los Angeles
Hiv, HIV/AIDS
Tough Talks: A Disclosure Intervention for HIV+ Young Men Who Have Sex With Men (YMSM)
Tough Talks is a virtual reality based HIV disclosure intervention that allows HIV+ individuals to practice disclosing to romantic partners.
- Conditions
- Hiv, HIV/AIDS, Disclosure
- Trial name
- NCT03414372
- Testing
- Tough Talks Online, Tough Talks Clinic, Standard of Care
- Where
- United States
- Volunteers
- 156 people
- Sponsor
- University of North Carolina, Chapel Hill
Celiac Disease in Children, Celiac Disease
Experiences of Disclosure in Adolescents With Coeliac Disease
Being diagnosed with coeliac disease means that individuals can no longer consume things containing gluten, such as bread or cake, or they can become very ill.
- Conditions
- Celiac Disease in Children, Celiac Disease, Celiac, Disclosure
- Trial name
- NCT04240340
- Testing
- semi-structured interview
- Where
- United Kingdom
- Volunteers
- 7 people
- Sponsor
- University of Oxford
Secrecy Versus Disclosure Among Adolescents With Mental Illness
Honest Open Proud for Adolescents With Mental Illness
The purpose of the study is to evaluate the efficacy of the group-based intervention 'Honest Open Proud' among adolescents with mental illness.
- Trial name
- NCT02751229
- Testing
- Honest Open Proud (HOP)
- Where
- 5 sites in United States, Germany
- Volunteers
- 100 people
- Sponsor
- University of Ulm
Adolescent Behavior, HIV
Adolescent Transition To Adult Care for HIV-infected Adolescents in Kenya
This study evaluates an adolescent transition package (ATP) to support HIV infected adolescents transitioning form pediatric/adolescent care to adult care.
- Conditions
- Adolescent Behavior, HIV, Transition, Adolescent Development
- Trial name
- ATTACH (NCT03574129)
- Testing
- Adolescent Transition Package
- Where
- Kenya
- Volunteers
- 1,095 people
- Sponsor
- University of Washington
Stigmatization, Mental Health Issue
Honest, Open, Proud - College for Post-Secondary Students With Mental Health Challenges
The purpose of the study is to evaluate the efficacy of an online format of the group-based intervention "Honest Open Proud-College" among Canadian post-secondary students.
- Conditions
- Stigmatization, Mental Health Issue, Disclosure
- Trial name
- NCT06402929
- Testing
- Honest Open Proud - College (HOP-C)
- Where
- Canada
- Volunteers
- 63 people
- Sponsor
- Lakehead University
HIV
Assisting HIV-infected Mothers in Disclosing Their Serostatus to Their Children
This study will develop and evaluate the effectiveness of an intervention designed to assist HIV-infected mothers of young children in determining whether and how to appropriately disclose their HIV serostatus to their children.
- Trial name
- TRACK (NCT00429546)
- Testing
- Teaching, Raising, and Communicating with Kids (TRACK), Treatment as usual
- Where
- United States
- Volunteers
- 160 people
- Sponsor
- University of California, Los Angeles
Knowledge, Practice Nurse's Scope
Managing High-alert Medication Administration and Errors
High-alert medications are drugs that may lead to serious harm when they are wrongly administered to patients. Safe medication administration is the crucial role of nursing staff.
- Conditions
- Knowledge, Practice Nurse's Scope, Competence, Nurse's Role
- Trial name
- NCT06366607
- Testing
- high-alert medication administration
- Where
- Egypt
- Volunteers
- 300 people
- Sponsor
- Matrouh University