Clinical trials: Health Registry
Haemophilia
Combining Registry Data in Haemophilia: TARGET H
This is an investigator-initiated, multinational, retrospective, non-interventional pilot study conducted in five haemophilia treatment centres from different geographical regions that maintain a local (Algeria, Malaysia) or…
- Trial name
- TARGET-H (NCT03264014)
- Volunteers
- 100 people
- Sponsor
- University of Pretoria
Heart Failure
REsponsible roLl-out of E-heAlth Through Systematic Evaluation - Heart Failure Study
Telemedicine is gradually becoming accepted in heart failure (HF) management. Meta-analyses show a positive effect of telemedicine on hospital admission, length of stay, mortality, and costs.
- Trial name
- RELEASE-HF (NCT05654961)
- Testing
- Use of telemedicine
- Where
- 34 sites in Netherlands
- Volunteers
- 6,480 people
- Sponsor
- UMC Utrecht
Anal Cancer
Quality of Life in Patients With Anal Cancer
A national study of a three year cohort consisting of all patients diagnosed with anal cancer in 2011- 2013 with data retrieval from three national registries: Cancer Registry, Patient registry and Cause of Death Registry all…
- Trial name
- ANCA (NCT02546973)
- Where
- Sweden
- Volunteers
- 300 people
- Sponsor
- Sahlgrenska University Hospital
Rheumatic Diseases, Pregnancy Related
Network to Understand Reproductive Rheumatology Registry
The purpose of the NURTURE Registry is to enroll those who are pregnant and/or potentially capable of pregnancy. Participants will complete patient-reported surveys at enrollment and periodically prior to conception, during…
- Conditions
- Rheumatic Diseases, Pregnancy Related, Pregnancy Interest, Reproductive Health
- Trial name
- NURTURE (NCT06940869)
- Testing
- NURTURE Registry
- Where
- United States
- Volunteers
- 1,000 people
- Sponsor
- Duke University
Pregnancy Outcome Trends in Low-resource Geographic Areas
Maternal Newborn Health Registry
The primary purpose of this population-based study is to quantify and understand the trends in pregnancy outcomes in defined low-resource geographic areas over time, in order to provide population-based data on stillbirths…
- Trial name
- MNH (NCT01073475)
- Testing
- There is no intervention associated with the parent MNHR study. For the MNHR COVID sub-study, participants will be asked to provide a blood specimen at or near delivery.
- Where
- 15 sites in United States, Bangladesh and 5 more
- Volunteers
- 950,000 people, healthy volunteers welcome
- Sponsor
- NICHD Global Network for Women's and Children's Health
Mold Illness, Mold or Dust Allergy
Associations Between Household Mold Levels and Physical and Mental Health: A Mold and Mycotoxin Testing Research Registry
The primary purpose of this study is to evaluate cross-sectional associations between mold exposures identified with The Dust Test and self-reported physical health, emotional health, and medical diagnoses.
- Trial name
- NCT07605078
- Testing
- Mold-specific quantitative PCR (MSQPCR) testing
- Where
- United States
- Volunteers
- 2,500 people
- Sponsor
- OvationLab
Asthma, Pediatric ALL
Registry and Screening Tool to Identify Children With Asthma Likely to Benefit From Home Assessment and Remediation
Recognizing a decline in pediatric primary care visits and immunizations rates, an increase in utilization of the emergency room and stagnating academic achievement, leaders of MetroHealth Medical Center and the Cleveland…
- Conditions
- Asthma, Pediatric ALL, School Health Services, Registries
- Trial name
- CREST (NCT03916237)
- Testing
- Home assessment, Home remediation, Referral to Medical Legal Partnership
- Where
- United States
- Volunteers
- 21 people
- Sponsor
- MetroHealth Medical Center
Rare Disorders
Implementing Dynamic Consent for Rare Disease Patients
The study aims to test on a cohort of rare patients a digital innovative tool to support patients/parents in the informed consent and assent process and to keep up-to-date a lawful informed and dynamic consent and to use samples…
- Trial name
- ConsDinamico (NCT06656247)
- Testing
- Online consenting
- Volunteers
- 50 people
- Sponsor
- Istituto Ortopedico Rizzoli
Diabetes Mellitus, Type 2
Supporting Practices to Adopt Registry-Based Care
The purpose of this study is to test the effectiveness and cost effectiveness of an assisted work process redesign intervention in achieving improved diabetes care in primary care practices.
- Trial name
- SPARC (NCT02318108)
- Testing
- Mentored organizational change, Education only
- Volunteers
- 30 people, healthy volunteers welcome
- Sponsor
- Mathematica Policy Research, Inc.
Ischemic Heart Disease, Congestive Heart Failure
Registry of Cardiovascular Disease Patients
A computerized registry of cardiovascular disease patients in a large health maintenance organization in Israel. The registry is aimed to be used by health professionals to identify cardiovascular disease patients and to follow…
- Conditions
- Ischemic Heart Disease, Congestive Heart Failure, Peripheral Vascular Disease, Cerebrovascular Disease
- Trial name
- CVD Registry (NCT01759225)
- Where
- Israel
- Volunteers
- 110,000 people
- Sponsor
- Maccabi Healthcare Services, Israel
Exposure to World Trade Center Dust
NYU/Bellevue WTC Health Impacts Research Registry
The American Red Cross has funded a multidisciplinary, comprehensive evaluation and treatment program for target individuals with suspected World Trade Center (WTC)-related health problems.
- Trial name
- NCT00404898
- Where
- United States
- Volunteers
- 40,000 people, healthy volunteers welcome
- Sponsor
- NYU Langone Health
Hemophilia A
Patient Functioning and Well-being, Economic, and Clinical Impact of Hemophilia A and Its Treatment
The purpose of the study is to improve the understanding of key patient reported outcomes such as quality of life as well as clinical outcomes in hemophilia A, in a global real world setting.
- Trial name
- ECHO (NCT02396862)
- Testing
- Available Recombinant, and Human Factor VIII products incl. Kogenate FS (Recombinant Factor VIII, BAY14-2222)
- Where
- 10 sites in United States, Japan and 2 more
- Volunteers
- 272 people
- Sponsor
- Bayer
Pituitary Neuroendocrine Tumors
A Comparative Study of Patients Undergoing Surgery for Pituitary Neuroendocrine Tumors Detected by Different Ways
This multicenter cohort study is based on the National Brain Tumor Registry of China (NBTRC). It will compare patients who underwent surgery for Pituitary Neuroendocrine Tumors (PitNETs) detected through health screening versus…
- Trial name
- NCT07835412
- Where
- China
- Volunteers
- 5,000 people
- Sponsor
- Beijing Tiantan Hospital
Any Disease or Condition, Healthy
UCSF Research Participant Registry
The UCSF Clinical and Translational Science Institute (CTSI) Consultation Service provides recruitment services and facilitates the enrollment of research participants into UCSF clinical studies.
- Trial name
- NCT01717378
- Where
- United States
- Volunteers
- 1,541 people, healthy volunteers welcome
- Sponsor
- University of California, San Francisco
Growth Disorder, Small for Gestational Age
French National Registry of Children Born Small for Gestational Age Treated With Somatropin
This study is conducted in Europe. The aim of the study is to describe the patient population and therapeutic practices (study phase I), assess efficacy on growth and adult height and assess tolerance of somatropin (Norditropin®…
- Trial name
- NCT01578135
- Testing
- somatropin
- Where
- France
- Volunteers
- 291 people
- Sponsor
- Novo Nordisk A/S
Pulmonary Hypertension, Global Health
PVRI GoDeep Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension
PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the…
- Trial name
- PVRI GoDeep (NCT05329714)
- Where
- Germany
- Volunteers
- 40,000 people, healthy volunteers welcome
- Sponsor
- University of Giessen
COVID 19
International COVID19 Clinical Evaluation Registry,
The investigators propose to select all COVID 19 patients attended in any health center (with in hospital beds), who have been discharged or have died at the time of the evaluation.
- Trial name
- HOPE COVID 19 (NCT04334291)
- Testing
- Observational (registry)
- Where
- Spain
- Volunteers
- 8,168 people
- Sponsor
- IVAN J NUÑEZ GIL
Long Bone Fractures
Registry of Pediatric Orthopedic Trauma and Health Outcomes in Skeletally Immature Children
International registry to collect prospective treatment and outcomes data on specific, key non-pathological fractures in children with open physes.
- Trial name
- NCT04207892
- Testing
- Conservative (non-surgical) treatment, Surgical treatment
- Where
- 17 sites in United States, Australia and 10 more
- Volunteers
- 1,000 people
- Sponsor
- AO Innovation Translation Center
Stress Disorders, Post-Traumatic
Development of a Post-Traumatic Stress Disorder (PTSD) Population Registry for Veterans
The overall objective of this project is to develop the first longitudinal registry of combat-exposed men and women with PTSD. This registry will provide essential data on the natural history, including progression and remission…
- Trial name
- NCT00657787
- Where
- United States
- Volunteers
- 1,600 people, healthy volunteers welcome
- Sponsor
- Boston VA Research Institute, Inc.
Diabetic Foot, Pressure Ulcer
A Real-World Registry of Chronic Wounds and Ulcers
WOUNDJOURNEY is a longitudinal, real-world, observational registry designed to capture the full clinical course and patient journey associated with chronic wounds and ulcers.
- Conditions
- Diabetic Foot, Pressure Ulcer, Surgical Wound Dehiscence, Vasculitis
- Trial name
- WOUNDJOURNEY (NCT02280733)
- Testing
- Usual care
- Where
- United States
- Volunteers
- 300,000 people
- Sponsor
- U.S. Wound Registry