Clinical trials: Palliative
Trisomy 13 Syndrome, Arthrogryposis Congenita Multiplex With Intestinal Atresia
Palliative Care Needs of Children With Rare Diseases and Their Families
The palliative care needs of family caregivers of children with rare diseases and their children are largely unmet, including the need for support to prepare for future medical decision making.
- Conditions
- Trisomy 13 Syndrome, Arthrogryposis Congenita Multiplex With Intestinal Atresia, Asparagine Synthetase Deficiency, CHARGE Syndrome
- Trial name
- FACE-Rare (NCT06938542)
- Testing
- Family Centered pediatric palliative care for family caregivers of children with rare diseases.
- Where
- United States
- Volunteers
- 480 people, healthy volunteers welcome
- Sponsor
- Children's National Research Institute
Alzheimer Disease, Late Onset, Stroke
Explore the Sharing Model Intervene to Improve the Knowledge, Attitudes, Service Intentions and Service Start-up Effects of the Eight Major Non-cancer Disease End-stage Caregivers on Well-being and Palliative Care
Since September 1st, 2009, Taiwan has begun to pay attention to the care of patients with organ failure, dementia and the elderly, and brought eight of non-cancer terminal patients into health insurance subsidies to implement the…
- Conditions
- Alzheimer Disease, Late Onset, Stroke, Heart Failure, Pulmonary Disease, Chronic Obstructive
- Trial name
- NCT05407272
- Testing
- Health Education Manual, manual
- Where
- Taiwan
- Volunteers
- 60 people, healthy volunteers welcome
- Sponsor
- Wen-Shiou Pan
Improved Emotional Regulation, Improvement in Quality of Life
The Role of Music in Palliative Care: A Proposal for a Rural Based Initiative in Music Based Interventions
Current practice in larger palliative care centers offer many supportive service modalities, which are often unavailable in the rural setting.
- Conditions
- Improved Emotional Regulation, Improvement in Quality of Life, Symptom Relief, Preservation of Dignity
- Trial name
- NCT02661880
- Testing
- preferred music
- Volunteers
- 30 people, healthy volunteers welcome
- Sponsor
- Nova Scotia Health Authority
Palliative Medicine
The MuSt-PC: a Feasibility Study on Intent to Use a Tool With Regard to Symptom Management
A study on the intent to use a tool (MuSt-PC) to manage symptoms of patients in a palliative care trajectory.
- Trial name
- NCT06110624
- Testing
- Survey
- Where
- 2 sites in Netherlands
- Volunteers
- 70 people, healthy volunteers welcome
- Sponsor
- University Medical Center Groningen
Myelodysplastic Syndromes
Enhanced Palliative Care in MDS and AML
Objectives: The purpose of this study is to evaluate the impact of enhanced haematology palliative care services to the most symptomatic group of blood cancer patients, namely myelodysplastic syndrome (MDS) and acute myeloid…
- Trial name
- NCT04226768
- Testing
- Enhanced Haematology Palliative Care ("Fast-track") Group, Conventional Care
- Where
- Hong Kong
- Volunteers
- 90 people, healthy volunteers welcome
- Sponsor
- The University of Hong Kong
Terminal Cancer
Towards Cancer Patient Empowerment for Optimal Use of Antithrombotic Therapy at the End of Life
Despite the fact that antithrombotic therapy (ATT) has little or even negative effects on the well-being of cancer patients during their last year of life, stopping ATT is rare in clinical practice.
- Trial name
- SERENITY (NCT05706740)
- Testing
- Physician survey on antithrombotic medication during end-of-life care in cancer patients
- Where
- 12 sites in Denmark, France and 6 more
- Volunteers
- 467 people, healthy volunteers welcome
- Sponsor
- Johannes Gutenberg University Mainz
Terminal Conditions, End of Life
Evaluation of Methods for Implementation of a Comfort Care Order Set
The overarching goal of this research program is to improve the quality of end-of-life care provided to Veterans dying in VA Medical Centers (VAMCs), by transferring the best practices of home hospice and palliative care for the…
- Trial name
- BEACON II (NCT02383173)
- Testing
- Basic Implementation Approach, Enhanced Implementation Approach
- Where
- United States
- Volunteers
- 134 people, healthy volunteers welcome
- Sponsor
- VA Office of Research and Development
Palliative Care
Contextualizing Care for Patients With a Serious Illness
When people become seriously ill, healthcare decisions are influenced not only by their medical condition, but also by their personal situation, values, wishes, and daily life circumstances.
- Trial name
- SVPII-TRAIN (NCT07764263)
- Testing
- Contextualized Care Communication Training
- Where
- Netherlands
- Volunteers
- 81 people, healthy volunteers welcome
- Sponsor
- Radboud University Medical Center
Cancer, Congenital Anomalies
Estimating the Global Need for Palliative Care for Children
A cross-sectional analysis of prevalence data from a stratified sample of 23 countries used to estimate the global need for palliative care for children aged 0-19 years.
- Conditions
- Cancer, Congenital Anomalies, Cardiovascular Disease, HIV
- Trial name
- NCT02553148
- Testing
- Need for children's palliative care
- Where
- United States
- Volunteers
- 18,837,613 people, healthy volunteers welcome
- Sponsor
- International Children's Palliative Care Network
Integrative Oncology, Medical Education
Evaluating the Impact of an Integrative Oncology Training Program for Healthcare Providers
The goal of this study is to learn about the short- and long-term effects of two medical education approaches to teaching integrative oncology (IO) in a multi-disciplinary group of healthcare providers attending a national IO…
- Conditions
- Integrative Oncology, Medical Education, Palliative Care
- Trial name
- NCT06598020
- Testing
- Supportive Care
- Where
- Israel
- Volunteers
- 130 people, healthy volunteers welcome
- Sponsor
- Carmel Medical Center
Palliative Care
Evaluation of an Intervention Designed to Enhance the Quality of Decision Support Provided to Patients Making Decisions About End-of-life Place of Care
Most dying cancer patients would prefer a home death yet die in an institution. Patients can experience uncertainty when weighing practical considerations, concern for others, and their personal ratings about the desirability and…
- Trial name
- NCT00614003
- Testing
- Decision support skills building Intervention
- Where
- 5 sites in Canada
- Volunteers
- 90 people, healthy volunteers welcome
- Sponsor
- Ottawa Hospital Research Institute
Palliative Care
Public Awareness and Understanding of PC in the UAE
Palliative care (PC) is essential medical care for improving the quality of life for patients with life-threatening illnesses and their families.
- Trial name
- NCT06871241
- Where
- United Arab Emirates
- Volunteers
- 824 people, healthy volunteers welcome
- Sponsor
- Burjeel Medical City
Advanced Malignant Neoplasm
Enhancing Connections Program in Improving Family Adjustment in Patients With Incurable Cancer
This pilot clinical trial studies how well the Enhancing Connections program improves family adjustment in patients with incurable cancer.
- Trial name
- NCT03049397
- Testing
- Communication Intervention, Questionnaire Administration
- Where
- United States
- Volunteers
- 15 people, healthy volunteers welcome
- Sponsor
- Fred Hutchinson Cancer Center
Psychological Stress, Palliative Care
Visual Art Therapy on Caregiver Burden
This study aims to determine the effect of Zentangle practice on perceived caregiver burden, stress levels, and burnout among family caregivers of patients receiving palliative care.
- Conditions
- Psychological Stress, Palliative Care, Family Caregivers
- Trial name
- Visual art (NCT07702682)
- Testing
- Visual arts design training program
- Where
- Turkey (Türkiye)
- Volunteers
- 60 people, healthy volunteers welcome
- Sponsor
- Firat University
Palliative Care
Decision Making With Bioethical Perspective in Palliative Care en Mexico
All clinical practice includes decision making, and sometimes you are ethically challenging because of the consequences it will bring to the patient, the health professional or society in general.
- Trial name
- NCT03913390
- Where
- Mexico
- Volunteers
- 72 people, healthy volunteers welcome
- Sponsor
- University of Guadalajara
Death
Do we Prepare Patients for Their Digital Legacy? A Survey of Palliative Care Professionals in the West Midlands
Conduct a questionnaire survey of palliative care professionals including doctors, nurses and social workers currently working within the West Midlands to establish how much the palliative care community in the West Midlands…
- Trial name
- NCT03092258
- Testing
- Questionnaire
- Where
- United Kingdom
- Volunteers
- 210 people, healthy volunteers welcome
- Sponsor
- The Royal Wolverhampton Hospitals NHS Trust
Breakthrough Pain, Palliative Medicine
Paediatric Breakthrough Pain Assessment
Many children and young people with life-limiting and life-threatening illnesses get sudden bursts of pain called breakthrough pain. At the moment, there aren't any good ways to measure this pain in children and young people.
- Conditions
- Breakthrough Pain, Palliative Medicine, Oncology Pain, Pediatric ALL
- Trial name
- BEACON (NCT06790719)
- Volunteers
- 210 people, healthy volunteers welcome
- Sponsor
- University of Southampton
End-of-life Care
Liverpool Care Pathway for the Dying at Residential Care Homes
Liverpool Care Pathway for the dying patient (LCP) was developed to transfer the care practice from the hospice setting to the hospital setting in UK.
- Trial name
- NCT01428206
- Testing
- Liverpool care pathway
- Where
- Sweden
- Volunteers
- 260 people, healthy volunteers welcome
- Sponsor
- Umeå University
Neoplasms (Cancer / Tumors), Palliative Care
Nurse-Led Culturally Adapted Palliative and End-of-Life Training for Oncology Nurses in Oman
This study evaluated a nurse-led, culturally adapted training program in palliative and end-of-life care (N-PELTP) for oncology nurses in Oman.
- Conditions
- Neoplasms (Cancer / Tumors), Palliative Care, Terminal Care
- Trial name
- N-PELTP (NCT07460570)
- Testing
- N-PELTP Palliative and End-of-Life Training Program
- Where
- 2 sites in Oman
- Volunteers
- 189 people, healthy volunteers welcome
- Sponsor
- Sultan Qaboos University
Cancer
Trial of Family Focused Grief Therapy in Palliative Care and Bereavement
The purpose of this study is to learn how well family therapy works if given while a family member is being treated for a serious illness and whether it helps their family to continue meeting for a time after their death.
- Trial name
- NCT00580515
- Testing
- Family Focused Group Therapy, Standard of Care
- Where
- 3 sites in United States
- Volunteers
- 700 people, healthy volunteers welcome
- Sponsor
- Memorial Sloan Kettering Cancer Center