Clinical trials: Research Participation
Pulmonary Disease
Evaluation and Treatment of Patients With Lung Disease Not Participating in Research
This study was developed in order for the professional-staff at the Pulmonary-Critical Care Medical Branch (PCCMB) of the National Heart, Lung, and Blood Institute to maintain their skills and increase their understanding of lung…
- Trial name
- NCT00001621
- Where
- United States
- Volunteers
- 280 people
- Sponsor
- National Heart, Lung, and Blood Institute (NHLBI)
Preterm Infant
Development, ADL, Participation, and Quality of Life in Preterm Infants: Longitudinal Research
The three fundamental goals of early rehabilitation for preterm infant after leaving NICU are: optimizing function within each child's prognostic potential, preventing the development of secondary conditions that impact life-long…
- Trial name
- NCT06532695
- Testing
- No intervention will be provided.
- Where
- Taiwan
- Volunteers
- 210 people, healthy volunteers welcome
- Sponsor
- Chang Gung Memorial Hospital
HIV, PrEP
Self-Consent for PrEP Perspectives
This study involves a one-time, web-based quantitative structured self-complete ("web-based") survey for all subjects and a qualitative semi-structured ("qualitative") interview for a selected sub-sample of subjects to evaluate…
- Trial name
- NCT02801760
- Where
- 11 sites in United States
- Volunteers
- 58 people, healthy volunteers welcome
- Sponsor
- University of North Carolina, Chapel Hill
Unilateral Cerebral Palsy
Wereables for Upper Limb Functionality in Hemiparesis
The project is configured as a national interventional study that aims to determine the effectiveness of an intervention strategy using wearable technology, tailored to improve function (WeFun-wearable), on the spontaneous use of…
- Trial name
- WeFun (NCT06872736)
- Testing
- WeFun-wearable activated, WeFun-wearable desactivated
- Where
- Spain
- Volunteers
- 40 people
- Sponsor
- Universidade da Coruña
Spinal Cord Injuries
Living With Spinal Cord Injury.
A Spinal Cord Injury (SCI) often drastically disrupts the lives of affected patients and their relatives and caregivers. This observational study will provide new knowledge on how patients and their family caregivers cope in the…
- Trial name
- NCT03709732
- Testing
- no intervention
- Where
- Norway
- Volunteers
- 2,654 people
- Sponsor
- St. Olavs Hospital
Influenza Vaccination
Evaluation of a Flu Vaccination Program Directed at Pregnant Women Assisted at a Research Hospital in Italy.
Influenza is a serious Public Health problem, which causes a high number of cases and deaths worldwide each year. In Italy, about 8 million cases were reported in the 2018/2019 flu season, 809 of which were severe, with 198…
- Trial name
- NCT05785078
- Testing
- Educational session about vaccinations
- Where
- Italy
- Volunteers
- 119 people, healthy volunteers welcome
- Sponsor
- Fondazione Policlinico Universitario Agostino Gemelli IRCCS
Arrhythmia, Congenital Heart Defect
Evaluation and Treatment of Heart Disease in Patients Not Participating in Research
There is an important need to maintain clinical skills, provide quality training and expertise, and provide an environment that stimulates ideas for clinical research.
- Conditions
- Arrhythmia, Congenital Heart Defect, Heart Disease
- Trial name
- NCT00001460
- Testing
- inpatient evaluation and management
- Where
- United States
- Sponsor
- National Heart, Lung, and Blood Institute (NHLBI)
Rare Disorders
Implementing Dynamic Consent for Rare Disease Patients
The study aims to test on a cohort of rare patients a digital innovative tool to support patients/parents in the informed consent and assent process and to keep up-to-date a lawful informed and dynamic consent and to use samples…
- Trial name
- ConsDinamico (NCT06656247)
- Testing
- Online consenting
- Volunteers
- 50 people
- Sponsor
- Istituto Ortopedico Rizzoli
IBM, IIM
MIHRA - Patient-Rooted Insights for Shaping Myositis Science (PRISMS)
Myositis diseases are each rare diseases. As in other rare diseases, people living with myositis diseases face physical and psychosocial challenges that may not be recognized in current research priorities.
- Conditions
- IBM, IIM, Myositis, Inflammatory Myopathy
- Trial name
- MIHRA-PRISMS (NCT07374107)
- Testing
- No intervention - qualitative and mixed methods investigations
- Where
- United States
- Volunteers
- 700 people
- Sponsor
- Myositis International Health & Research Collaborative Alliance Foundation
Violence in Adolescence
Lights, Camera and Action Against Dating Violence (Lights4Violence)
Lights4Violence aims to promote adolescents' capabilities to improve their intimate relationships with peers through different participation approach activities.
- Trial name
- NCT03411564
- Testing
- Filming Together to See Ourselves in a New 'Present'
- Where
- Spain
- Volunteers
- 1,555 people, healthy volunteers welcome
- Sponsor
- University of Alicante
Eye Diseases
Motivations and Barriers to Participating in Ophthalmology Research Projects
The primary objective of this project is to understand the reasons why patients agree / disagree to take part in ophthalmology research. This will be done by asking participants to complete a Research Questionnaire.
- Trial name
- NCT04404803
- Testing
- questionnaire
- Where
- United Kingdom
- Volunteers
- 1,500 people
- Sponsor
- Manchester University NHS Foundation Trust
Consent
App-based Consent for Pediatric Clinical Research
This study aims to understand how well app-based consent performs compared to paper-based consent when recruiting families for a clinical research project.
- Trial name
- ConsentApp (NCT05880147)
- Testing
- Consent App, Traditional paper-based consent
- Where
- Canada
- Volunteers
- 120 people
- Sponsor
- University of British Columbia
Quality of Life, Body Mass Index
Study of Parental Ratings of Quality of Life and Body Composition in 5-19 Year Olds While Participating in the Good NEWS 4 Kids Program
This study will compare changes in body composition (lean mass, fat, and bone)and parent ratings of quality of life in 5-19 Year Olds as a function of participation in one of four versions of the Good NEWS 4 Kids Program (GN4K).
- Trial name
- NCT01855009
- Testing
- MannaBears, AlgaeCal Calcium, Calcium carbonate
- Where
- United States
- Volunteers
- 200 people, healthy volunteers welcome
- Sponsor
- Integrative Health Technologies, Inc.
Transgender Persons
Research Participation With Transgender and Gender-Diverse Youth
Research has historically excluded the participation of transgender and gender-diverse people. The purpose of this research study is to find out about what goes into a transgender and gender-diverse youth's decision to…
- Trial name
- NCT05927350
- Testing
- Survey
- Where
- United States
- Volunteers
- 250 people
- Sponsor
- Virginia Commonwealth University
Public and Patient Involvement, Patient Participation
Use of Involvement Matrix in Cerebral Palsy Into Spain and Brazil
Application of Involvement Matrix in young people with Cerebral Palsy (GMFCS levels IV and V) from 12 to 17 years old with the purpose of improving the participation of this group in community leisure activities
- Conditions
- Public and Patient Involvement, Patient Participation, Family Research, Participation
- Trial name
- InMatrix-CP (NCT05214352)
- Testing
- co-design in the intervention manual elaboration to increase the participation in the community
- Where
- Spain
- Volunteers
- 24 people
- Sponsor
- University of Castilla-La Mancha
Heart Defects, Congenital
The CHAPTER III Study of Young Adolescents
The CHAPTER III Study (Congenital Heart Adolescents Participating in Transition Evaluation Research) is a cluster randomized controlled trial evaluating the impact of a nurse-led transition intervention in combination with usual…
- Trial name
- NCT02374892
- Testing
- CHAPTER III Study Intervention
- Where
- Canada
- Volunteers
- 60 people
- Sponsor
- University of Alberta
Patient Engagement, COVID-19
Collaborative Open Research Initiative Study (CORIS-1)
The Collaborative Open Research Initiative Study (CORIS) is a groundbreaking international research endeavor aimed at exploring vital topics within the field of health professions education.
- Conditions
- Patient Engagement, COVID-19, Preventable Disease, Vaccine, Burnout, Professional
- Trial name
- CORIS-1 (NCT06357650)
- Testing
- No intervention. This is an observational study
- Volunteers
- 15,000 people
- Sponsor
- Chisquares Incorporated
Critical Care Trial Participation Consent by SDM
The Approach Study
In the Approach Study, the investigators will study the 'process' by which Substitute Decision Makers (SDMs) are approached for consent for their loved one's participation in critical care research.
- Trial name
- NCT01232621
- Testing
- Physician Introduction of research personnel
- Where
- Canada
- Volunteers
- 138 people
- Sponsor
- Unity Health Toronto
Breastfeeding, Energy Intake
Participation of Breast Milk Feeding Mothers in Research
To assess concerns and barriers for measuring milk intake of breast fed infants using the remote food photography method and SmartIntake smartphone application.
- Conditions
- Breastfeeding, Energy Intake, eHealth
- Trial name
- NCT03072251
- Where
- United States
- Volunteers
- 570 people, healthy volunteers welcome
- Sponsor
- Pennington Biomedical Research Center
Cystic Fibrosis, Patient Engagement
Cystic Fibrosis Reproductive and Sexual Health Collaborative: Building Online Research Partnerships
This is a Patient-Centered Outcomes Research Institute engagement effort aimed at training researchers/providers and patients to work in research teams together online throughout the research process (including: development…
- Trial name
- NCT04999865
- Testing
- 4-part educational program to build patient-engagement methodology capacity
- Where
- United States
- Volunteers
- 100 people
- Sponsor
- University of Washington