Clinical trials: Transitional Care
Congenital Heart Disease
Transition Care Model for Adolescents With Congenital Heart Disease
The primary aim of this study is to assess the effectiveness of a standardized transition care model (TC) on the perceived mental and physical health of adolescents with congenital heart disease (CHD).
- Trial name
- TELEMACO (NCT05713591)
- Testing
- Transition care model
- Where
- Italy
- Volunteers
- 964 people, healthy volunteers welcome
- Sponsor
- IRCCS Policlinico S. Donato
Heart Failure
Patient-centered Care Transitions in Heart Failure: A Pragmatic Cluster Randomized Trial
Heart failure (HF) is the most common cause of hospitalization in older adults. The month after hospital discharge represents a vulnerable period, when patients are at increased risk of death and readmission to hospital.
- Trial name
- PACT-HF (NCT02112227)
- Testing
- PACT-HF Model
- Where
- Canada
- Volunteers
- 3,500 people
- Sponsor
- Population Health Research Institute
Cystic Fibrosis
Transition From Pediatric to Adult Cystic Fibrosis Care Center
The main objective of register-SAFETIM is to assess the impact of the transition from pediatric to adult cystic fibrosis care center on changes in lung function and nutritional status of patients.
- Trial name
- SAFETIM RNM (NCT02790879)
- Testing
- Transition pediatric - adult
- Where
- France
- Volunteers
- 300 people
- Sponsor
- Hospices Civils de Lyon
Diabetes Mellitus, Diabetes Mellitus, Type 1
Support-t Online Training in Youth Living With Type 1 Diabetes Transitioning to Adult Care
The investigators will conduct a randomized controlled trial (RCT) to examine how an online training and peer support platform could help the preparation to transition to adult care.
- Conditions
- Diabetes Mellitus, Diabetes Mellitus, Type 1, Glucose Metabolism Disorders (Including Diabetes Mellitus), Metabolic Disease
- Trial name
- Support-t (NCT05910840)
- Testing
- Support-t
- Where
- 4 sites in Canada
- Volunteers
- 200 people
- Sponsor
- Anne-Sophie Brazeau
Asthma in Children, Transplantation
Digital Delivery of Person-centered Transitional Care
Advances in medical care have extended the life expectancy of individuals with congenital and pediatric-onset diseases, leading to an increased need for effective transition programs as these individuals move from pediatric to…
- Trial name
- DigiStep (NCT06823622)
- Testing
- Stepstones transition program
- Where
- 2 sites in Sweden
- Volunteers
- 100 people
- Sponsor
- Göteborg University
Preterm Infant, Feeding Behavior
A Cue-based Developmental Approach Toward the Preterm Infants During Feeding Transition Period
The coordination of sucking, swallowing, and breathing during the transition from gavage to oral feeding is a challenge for preterm infants.
- Conditions
- Preterm Infant, Feeding Behavior, Feeding Patterns
- Trial name
- NCT03755999
- Testing
- The premature infant oral motor intervention (PIOMI)
- Where
- Taiwan
- Volunteers
- 120 people
- Sponsor
- National Cheng-Kung University Hospital
Type 1 Diabetes
Improving Transition Care for Adolescents and Young Adults With Type 1 Diabetes
The purpose of this research study is to evaluate a transition preparation program designed for adolescents and young adults (AYAs) with type 1 diabetes (T1D).
- Trial name
- SHIFT2 (NCT05639088)
- Testing
- Transition preparation program, Educational materials
- Where
- United States
- Volunteers
- 109 people
- Sponsor
- Virginia Commonwealth University
Congenital Heart Disease in Adolescence, Transitional Care
Evaluation of Transition With a Heart, a Transition Program for Adolescents With Congenital Heart Disease and Parents
The department of Congenital Heart Disease of the Ghent University Hospital (Belgium) developed a transition program dedicated to adolescents with congenital heart disease (CHD): 'Transition With a Heart´ (TWAH).
- Trial name
- NCT05479630
- Testing
- Transition With a Heart (TWAH)
- Where
- Belgium
- Volunteers
- 81 people
- Sponsor
- University Hospital, Ghent
Inflammatory Bowel Diseases, Crohn's Disease
The Effect of Joint Transition Visits on Quality of Life in Inflammatory Bowel Diseases (TRANS-IBD)
Inflammatory bowel diseases (IBD) are among the most common chronic illnesses diagnosed in childhood. Moving from the pediatric to the adult health care is a crucial phase, which can greatly affect adolescents' quality of life.
- Conditions
- Inflammatory Bowel Diseases, Crohn's Disease, Ulcerative Colitis
- Trial name
- TRANS-IBD (NCT04290156)
- Testing
- joint visits
- Volunteers
- 160 people
- Sponsor
- University of Pecs
Neurofibromatosis 1
iCanCope With NF: Innovating an Efficacious Digital Self-management and Transitional Care Program for Adolescents With Neurofibromatosis
Neurofibromatosis Type 1 (NF1) often significantly impairs the mental health, social life, self-esteem, and quality of life of adolescent patients. These impacts can be made worse with the experience of NF1-related pain.
- Trial name
- NCT07077408
- Testing
- iCanCope-NF Youth app, iCanCope-NF Youth app + CM
- Volunteers
- 60 people
- Sponsor
- The Hospital for Sick Children
Preterm Birth
Transition to Home (TtH) After Preterm Birth
Preterm birth is associated with significant and often life-long developmental, emotional and financial burdens. Preterm infants face several challenges that continue late into life, including developmental delays, social, and…
- Trial name
- NCT03460496
- Testing
- neonatologists, psychological support, lactation consultant
- Where
- Switzerland
- Volunteers
- 36 people, healthy volunteers welcome
- Sponsor
- Insel Gruppe AG, University Hospital Bern
Preterm Infant, Parents
Transition Model-Based Discharge Training in Parents of Preterm Infants
Infant and Child Monitoring Protocol prepared by the General Directorate of Mother and Child Health and Family Planning of the Ministry of Health regarding the monitoring of postpartum processes in our country.
- Conditions
- Preterm Infant, Parents, Premature Birth, Randomized Controlled Trial
- Trial name
- TRAMPRE (NCT05525624)
- Testing
- TRAMPRE, Control Group
- Where
- 2 sites in Turkey (Türkiye)
- Volunteers
- 200 people, healthy volunteers welcome
- Sponsor
- Suleyman Demirel University
Congenital Heart Disease in Adolescence
The Effect of Structured Transition Care Model Applied to Adolescents With Congenital Heart Disease
Congenital heart disease is one of the most common congenital defects with a high mortality and morbidity rate. Children with congenital heart disease step from pediatric care to adult care during adolescence.
- Trial name
- NCT06433401
- Testing
- Transitional care training with brochures, posters and slide training materials
- Where
- 2 sites in Turkey (Türkiye)
- Volunteers
- 70 people
- Sponsor
- Ankara Yildirim Beyazıt University
Friedreich Ataxia
Transitional Life Events in Patients With Friedreich's Ataxia: Implications for Genetic Counseling
The purposes of this study are to learn about significant life changes for people with Friedreich's ataxia and about patients' experiences with health care providers.
- Trial name
- NCT00056186
- Where
- United States
- Volunteers
- 40 people
- Sponsor
- National Human Genome Research Institute (NHGRI)
Juvenile Idiopathic Arthritis, Juvenile Rheumatoid Arthritis
Transition to Adulthood Through Coaching and Empowerment in Rheumatology
TRACER is a study aiming to investigate the feasibility of transition coaching sessions for patients moving from paediatric to adult rheumatology care.
- Conditions
- Juvenile Idiopathic Arthritis, Juvenile Rheumatoid Arthritis, Juvenile Dermatomyositis, Juvenile Psoriatic Arthritis
- Trial name
- TRACER (NCT05545839)
- Testing
- Transition coaching
- Where
- 2 sites in Canada
- Volunteers
- 26 people
- Sponsor
- McMaster University
Transition Care
Developing a Program for Transition to Adult Care for Youth With Chronic Conditions : a Mixed Method Study
Investigation in 3 steps the transition of young people with chronic diseases. FIRST STEP: qualitative survey. Interviews with carers, young people and parents.
- Trial name
- TRANSAD (NCT02617030)
- Where
- France
- Volunteers
- 390 people
- Sponsor
- Assistance Publique - Hôpitaux de Paris
Cardiac Failure, Congestive Heart Failure
Heart Failure Management Program Versus Usual Care
Heart Failure (HF) patients discharged to Skilled Nursing Facilities have higher rehospitalization rates and mortality than patients discharged to home.
- Trial name
- NCT01822912
- Testing
- Heart Failure Disease Management Program, Heart Failure Usual Care
- Where
- United States
- Volunteers
- 713 people
- Sponsor
- University of Colorado, Denver
Childhood Cancer, ALL, Childhood
Retun-to-school Adaptation Program for Children With Cancer
The aim of this action research is to: Stage 1: Conduct an in-depth investigation into the adaptation challenges faced by children aged 8-17 who are being treated for cancer during their return to school, from both the children's…
- Conditions
- Childhood Cancer, ALL, Childhood, AML, Childhood, Lymphoma
- Trial name
- web-based (NCT06389357)
- Testing
- training and counselling, Interview
- Where
- Turkey (Türkiye)
- Volunteers
- 20 people
- Sponsor
- Gazi University
HIV-1-infection, Adolescent Behavior
InTSHA: Interactive Transition Support for HIV-infected Adolescents Using Social Media
The goal of this study is to develop and evaluate a social media behavioral intervention based on the Social-ecological Model of Adolescent and Young Adult Readiness to Transition (SMART) to improve transition care for…
- Trial name
- InTSHA (NCT03624413)
- Testing
- Social Media Intervention, Standard of Care
- Where
- South Africa
- Volunteers
- 80 people
- Sponsor
- Emory University
Diabetes Mellitus, Diabetes Mellitus, Type 1
Group Education Trial to Improve Transition for Parents of Adolescents With T1D
The investigators will study if group education for parents of adolescents with type 1 diabetes (T1D) will improve the transition from adolescence to adulthood.
- Conditions
- Diabetes Mellitus, Diabetes Mellitus, Type 1, Glucose Metabolism Disorders, Metabolic Disease
- Trial name
- GETIT-Parent (NCT05445284)
- Testing
- Group education sessions for parents plus usual diabetes care, Usual diabetes care
- Where
- Canada
- Volunteers
- 34 people
- Sponsor
- McGill University Health Centre/Research Institute of the McGill University Health Centre