Clinical trials: Caregiver Quality of Life
Alzheimer's Disease
Alzheimer's Caregiver Communication Study
The point of this research is to improve the communicative relationship between the caregiver and care receiver. It is input from the caregiver on these communicative behaviors that will inform the process of understanding how to…
- Trial name
- NCT00182988
- Where
- United States
- Volunteers
- 140 people, healthy volunteers welcome
- Sponsor
- National Institute on Aging (NIA)
Eczema, Dermatitis
A Study Comparing the Quality of Life of Patients in the Treatment of Eczema by Pediatric Generalists and Specialists
The purpose of this study is to investigate the differences in the quality of life of patients and caregivers who are treated by general pediatricians versus pediatric dermatologists for eczema (atopic dermatitis or AD).
- Conditions
- Eczema, Dermatitis, Dermatitis, Atopic, Genetic Disease, Inborn
- Trial name
- NCT02916888
- Testing
- Care provided by general pediatrician, Care provided by pediatric dermatologist
- Where
- United States
- Volunteers
- 26 people
- Sponsor
- Yale University
Palliative Care, Pain
Lysergic Acid Diethylamide (LSD) in Palliative Care
Background: Terminally ill patients often experience significant psychosocial distress having depressed mood, death anxiety, pain, and an overall poor quality of life.
- Conditions
- Palliative Care, Pain, Anxiety, Depression
- Trial name
- LPC (NCT05883540)
- Testing
- Lysergic Acid Diethylamide Tartrate
- Where
- 4 sites in Switzerland
- Volunteers
- 60 people
- Sponsor
- University Hospital, Basel, Switzerland
Amyotrophic Lateral Sclerosis, Caregiver Burden
A Mindful Community for People With ALS and Their Primary Caregivers
The psychological impact of ALS on patients and caregivers is high, significantly affecting their quality of life (QOL). Despite this impact, there is not much research about psychological interventions that could reduce…
- Trial name
- NCT05595850
- Testing
- Mindfulness, Mindful Learning
- Where
- United States
- Volunteers
- 100 people
- Sponsor
- Harvard University
Nutrition Disorders in Old Age, Caries,Dental
LifE Style, Nutrition and Oral Health in Care Givers (LENTO)
The LENTO study sample includes the caregivers and their clients living in eastern Finland. The aims of this study are 1. to study the nutritional status, oral health, coping, functional capacity and quality of life 2.
- Conditions
- Nutrition Disorders in Old Age, Caries,Dental, Dentures, Oral Mucositis
- Trial name
- NCT04003493
- Testing
- Nutrition and oral health intervention
- Where
- Finland
- Volunteers
- 250 people, healthy volunteers welcome
- Sponsor
- University of Eastern Finland
Caregiver
A Non-pharmacological Intervention for Patients With Alzheimer's Disease and Family Caregivers (Care Partners Program)
The proposed study will develop and test the efficacy and feasibility of a dyadic-based intervention program (DT), delivered through state-of-the art computer tablet technology.
- Trial name
- CPProgram (NCT03333252)
- Testing
- Intervention Condition, Control Condition
- Where
- 2 sites in United States
- Volunteers
- 352 people
- Sponsor
- Weill Medical College of Cornell University
Bereavement, Cancer
Support for Bereaved Cancer Caregivers
Friend and family caregivers of recently deceased cancer patients experience acute bereavement following the death. Post death bereavement is an intense period of mourning that includes an unfolding of the grief process and is…
- Conditions
- Bereavement, Cancer, Caregiver, Grief
- Trial name
- NCT06662409
- Testing
- Nature-based healing meditation (NBHM) intervention
- Where
- United States
- Volunteers
- 70 people, healthy volunteers welcome
- Sponsor
- Michigan State University
Employees at a Hospital
Acceptability and Feasibility of a Stress Prevention Program Based on Meditation and Acceptance and Commitment Therapy for Staff at a Cancer Center
The MAEva program seems to meet the challenges of implementing meditation for cancer care workers. As part of our Quality of Life and Working Conditions initiative, the investigator decided to offer it to staff at our Cancer…
- Trial name
- MAEva-pro (NCT06903104)
- Testing
- Mindfulness closed program, Quality of life evaluation, Perceived Stress Scale
- Where
- France
- Volunteers
- 20 people, healthy volunteers welcome
- Sponsor
- Institut de Cancérologie de Lorraine
Type 1 Diabetes Mellitus, Quality of Life (QOL)
Societal Burden Associated With Type 1 Diabetes in Canada
The purpose of this observational study is to estimate the burden of T1D on caregivers of patient with T1D in terms of work productivity, healthcare resource utilization and quality of life.
- Conditions
- Type 1 Diabetes Mellitus, Quality of Life (QOL), Work Productivity, Caregiver Subjective Burden
- Trial name
- T1D (NCT06786130)
- Testing
- observational study
- Where
- Canada
- Volunteers
- 33 people, healthy volunteers welcome
- Sponsor
- PeriPharm
Dementia
The Dementia Symptom Management at Home Program
Persons with dementia and their caregivers are often cared for in the community through home healthcare (HHC). While these patients and their caregivers need significant help and often have difficulty maintaining their quality of…
- Trial name
- DSM-H (NCT02482623)
- Testing
- Dementia Symptom Management at Home Program
- Where
- 2 sites in United States
- Sponsor
- New York University
Anxiety Acute, Stress
Drumming Groups for Parents of Autistic Children
This project aims to encourage a sense of belonging, community, and emotional support for parents of autistic children through a group drumming (music therapy) intervention.
- Conditions
- Anxiety Acute, Stress, Depression and Quality of Life, Stress in Parents of Autistic Children
- Trial name
- DG_PAC (NCT07375043)
- Testing
- Group Drumming
- Where
- United States
- Volunteers
- 9 people, healthy volunteers welcome
- Sponsor
- Arizona State University
Stroke, Relatives
Can Stroke Patients and Their Caregiver Benefit From Additive Mindfulness Training
The main purpose of the study is to find out if MBSR (Mindfulness) in addition to occupational therapy, can improve the therapeutic results in stroke-patients and help relatives of stroke patients to improve their quality of life.
- Conditions
- Stroke, Relatives, Motor Disorder, Attention Deficit
- Trial name
- NCT03271788
- Testing
- Mindfulness, MBSR
- Volunteers
- 8 people, healthy volunteers welcome
- Sponsor
- Zurich University of Applied Sciences
Caregiver Burnout, Caregiver
Effect of Autogenic Relaxation Therapy on Caregivers on Perceived Stress Quality of Life and Caregiver Burden
Caregivers are also faced with multiple stress factors. Autogenic relaxation therapy will help caregivers relax and take time for themselves by getting away from the stressful life they have lived.
- Conditions
- Caregiver Burnout, Caregiver, Care Burden
- Trial name
- NCT06687486
- Testing
- relaxin, kontrol
- Where
- Turkey (Türkiye)
- Volunteers
- 64 people
- Sponsor
- Seda KARAKAYA ERGUN
Hematopoietic and Lymphoid Cell Neoplasm, Malignant Solid Neoplasm
Positive Activities Intervention to Improve Quality of Life in Collectivist Culture Cancer Patients and Their Caregivers
This clinical trial studies the feasibility of two positive activities in improving quality of life in collectivist culture cancer patients and their caregivers.
- Trial name
- NCT04810052
- Testing
- Behavioral Intervention, Interview, Quality-of-Life Assessment
- Where
- United States
- Volunteers
- 75 people, healthy volunteers welcome
- Sponsor
- M.D. Anderson Cancer Center
Parkinson's Disease
Poised for Parkinson's - an Intervention to Increase Embodied Agency in People With Parkinson's Disease and Their Carers
The purpose of the study is to develop, deliver, and test an online Alexander-based training program for people with Parkinson's disease and their care partners.
- Trial name
- NCT04726709
- Testing
- Poised for Parkinson's
- Where
- United States
- Volunteers
- 32 people
- Sponsor
- University of Idaho
Spinal Cord Injuries
Living With Spinal Cord Injury.
A Spinal Cord Injury (SCI) often drastically disrupts the lives of affected patients and their relatives and caregivers. This observational study will provide new knowledge on how patients and their family caregivers cope in the…
- Trial name
- NCT03709732
- Testing
- no intervention
- Where
- Norway
- Volunteers
- 2,654 people
- Sponsor
- St. Olavs Hospital
Parkinson Disease(PD)
Empathy and (Self-)Compassion in Parkinson's Disease Patients and Caregivers
The goal of this clinical trial is to improve quality of life in Parkinson's Disease (PD) patients by increasing their empathy and their (self-)compassion.
- Trial name
- NCT07097298
- Testing
- empathy and compassion training
- Where
- Switzerland
- Volunteers
- 30 people
- Sponsor
- Alain Kaelin
Frailty, Polypharmacy (People Under Treatment With 5 or More Drugs)
Personalized Drug Treatment of Frail Patients: Integrated Care and Real-Time Home Monitoring
FRAIL-CARE is a prospective, multicentre, non-profit, low-intervention pilot feasibility study conducted in four Maugeri Scientific Clinical Institutes (IRCCS) in Lombardy, Italy.
- Conditions
- Frailty, Polypharmacy (People Under Treatment With 5 or More Drugs), Multimorbidity
- Trial name
- FRAIL-CARE (NCT07903584)
- Testing
- Healthcare device, Remote monitoring by Specialist Operations Centres, Blood drug concentration monitoring beyond routine TDM
- Where
- 3 sites in Italy
- Volunteers
- 40 people
- Sponsor
- Istituti Clinici Scientifici Maugeri SpA
Neurofibromatosis 1, Noonan Syndrome
Acceptance and Commitment Therapy for Caregivers of Children With a RASopathy: An Internal Pilot Feasibility Study and Follow-up Randomized Controlled Trial
Background: RASopathies are a group of genetic diseases that affect a child s development. They cause physical, cognitive, and behavioral symptoms. Caring for a child with a RASopathy can be stressful.
- Conditions
- Neurofibromatosis 1, Noonan Syndrome, Legius Syndrome, Cardiofaciocutaneous Syndrome
- Trial name
- NCT05361811
- Testing
- Waitlist, ACT Intervention
- Where
- United States
- Volunteers
- 70 people, healthy volunteers welcome
- Sponsor
- National Cancer Institute (NCI)
Dementia
Effectiveness of a Culturally Adapted Online Education Program (iSupport-Korea) for Family Caregivers of People With Dementia
This randomized controlled trial evaluates the effectiveness of iSupport-Korea, a culturally adapted online education program for family caregivers of people with dementia.
- Trial name
- NCT07609316
- Testing
- iSupport-Korea, Dementia information website
- Where
- South Korea
- Volunteers
- 160 people
- Sponsor
- Chungnam National University