Clinical trials: Caregiver Quality of Life
Secondary Traumatic Stress, Burnout, Professional
International Online Survey Assessing Secondary Traumatic Stress, Burnout, Compassion Satisfaction and Turnover Intentions Among Youth Care (Para)Professionals in Flanders, Wallonia, France and The Netherlands.
The goal of this observational study is to understand how work-related stress and personal characteristics affect the wellbeing of adults who work with children and young people in youth care services in Flanders, Wallonia…
- Conditions
- Secondary Traumatic Stress, Burnout, Professional, Compassion Fatigue, Compassion Satisfaction
- Trial name
- 2021_VUB_CFCSJ (NCT07384026)
- Where
- Belgium
- Volunteers
- 4,214 people, healthy volunteers welcome
- Sponsor
- Vrije Universiteit Brussel
Focal Segmental Glomerulosclerosis, Immunoglobulin A Nephropathy
Humanistic Burden of (FSGS) Focal Segmental Glomerulosclerosis and IgAN (Immunoglobulin A Nephropathy)
The aim of this observational study is to assess humanistic burden among adults and children/adolescents with FSGS and IgAN as well as the burden and impact for patient care-partners in six countries (United States [US], United…
- Trial name
- HONUS (NCT05200871)
- Where
- 6 sites in United States, Germany and 1 more
- Volunteers
- 487 people
- Sponsor
- Travere Therapeutics, Inc.
Stroke, Stroke Rehabilitation
Impact of the Training to Aid Patients With Stroke Program on Caregiver Knowledge, Burden, and Quality of Life
The goal of this clinical trial is to evaluate the effect of the Training to Aid Patients with Stroke (TAP-S) Program on caregiver outcomes among informal caregivers of adult stroke patients during the early post-stroke period.
- Conditions
- Stroke, Stroke Rehabilitation, Stroke Rehabilitation and Caregivers, Quality of Life
- Trial name
- NCT07617207
- Testing
- Training to Aid Patients with Stroke (TAP-S) Program
- Where
- Philippines
- Volunteers
- 22 people
- Sponsor
- University of the Philippines Manila - Philippine General Hospital
Pain, Anxiety
Impact of Massage Therapy on the Quality of Life of Hospice Patients
This is a pilot study to evaluate the impact of massage therapy in hospice patients.
- Conditions
- Pain, Anxiety, Depression, Quality of Life
- Trial name
- NCT02880202
- Testing
- Massage Therapy
- Where
- United States
- Volunteers
- 53 people
- Sponsor
- Mayo Clinic
Caregiver Burden
Quality of Life of Caregiver of Cancer Patients
While previous Egyptian studies concerned to the quality of life of cancer patient, up till few available studies include their caregiver and we appreciate their role and efforts in cancer patient wellbeing so we are trying to…
- Trial name
- NCT07452419
- Volunteers
- 300 people, healthy volunteers welcome
- Sponsor
- Mayyada Elsayed Mohamed
Financial Toxicity, Cancer Patients
Financial Toxicity, Quality of Life, and Caregiver Burden in Hospitalized Cancer Patients
This cross-sectional observational study evaluates the associations between patient-reported financial toxicity, health-related quality of life (HRQoL), and informal caregiver burden among hospitalized adult patients with solid…
- Trial name
- FIN-CARE (NCT07083271)
- Testing
- Administration of validated psychosocial, financial toxicity, and caregiver burden questionnaires
- Where
- Turkey (Türkiye)
- Volunteers
- 896 people
- Sponsor
- Ankara Etlik City Hospital
Family Caregivers, Cancer
A Study of Family Caregivers' Needs, Burden of Care and Quality of Life Over the Course of a Cancer Illness
This research will determine (a) the unmet needs of family caregivers of adult cancer patients and (b) determine the impact on stress, care burden and quality of life.
- Conditions
- Family Caregivers, Cancer, Health Related Quality of Life
- Trial name
- FCG-NBC (NCT03081312)
- Where
- Singapore
- Volunteers
- 510 people
- Sponsor
- National University of Singapore
Intellectual Disability
The Quality of Life, Perceived Stress and Coping Ways of Caregivers of Mentally Handicapped Individuals
Disability is a dynamic, multidimensional and diverse public health problem. Although the primary care burden of the disabled is mostly on mothers, caregivers cannot find little or no support socially and they have a high risk of…
- Trial name
- NCT04790461
- Testing
- Pre-post test, face-to-face training + PMR exercise, mobile health education + PMR exercise
- Where
- 2 sites in Turkey (Türkiye)
- Volunteers
- 140 people, healthy volunteers welcome
- Sponsor
- Kafkas University
Lung Cancer
Support Needs and Preferences of Family Caregivers of Lung Cancer Patients
This study is being done to learn what the needs are in relation to the family members. Some family members seek counseling; others do not.
- Trial name
- NCT00967083
- Testing
- Questionnaires/Interviews
- Where
- 2 sites in United States
- Volunteers
- 53 people, healthy volunteers welcome
- Sponsor
- Memorial Sloan Kettering Cancer Center
Duchenne Muscular Dystrophy (DMD)
DMD Voice: Qualitative Interviews With Patients and Caregivers
The purpose of this study is to understand DMD functional losses or abilities and their association with independence and quality of life from the perspective of individuals with DMD and/or and their caregivers.
- Trial name
- NCT06925269
- Where
- United States
- Volunteers
- 68 people
- Sponsor
- Red Nucleus Enterprise Solutions, LLC
Depression, Quality of Life
Internet and Telephone Support Intervention for Stroke Caregivers
This study will test a problem-solving and support intervention for caregivers of veterans with stroke. The investigators will assign caregivers to one for four groups: 4-session intervention, 8-session intervention, attention…
- Conditions
- Depression, Quality of Life, Recovery of Function, Self Efficacy
- Trial name
- NCT04348851
- Testing
- Caregiver problem-solving, Attention Control
- Where
- United States
- Volunteers
- 53 people, healthy volunteers welcome
- Sponsor
- VA Office of Research and Development
Alzheimer Disease, Dementia
A Study of the Safety and Effectiveness of Two Doses of Galantamine Versus Placebo in the Treatment of Patients With Alzheimer's Disease
The purpose of this study is to evaluate the safety and effectiveness of two doses of galantamine (a drug for treating dementia) versus placebo in the treatment of patients with Alzheimer's disease.
- Trial name
- NCT00253201
- Testing
- galantamine hydrobromide
- Volunteers
- 636 people
- Sponsor
- Johnson & Johnson Pharmaceutical Research & Development, L.L.C.
Cancer, Advanced
The Integrated Support and Palliative in Cancer Day-care Hospital for Patients With Advanced Cancers: Impact on Quality of Life, Care Pathways and Support for Caregivers (HDJ-SPI)
The main objective is to show the impact on the quality of life (QoL) for adults patients with advanced cancer managed in day hospital of integrated palliative care of cancer center (HDJ-SPI).
- Trial name
- NCT04604873
- Testing
- Hospital day care follow-up
- Where
- 6 sites in France
- Volunteers
- 144 people
- Sponsor
- Institut Curie
Breast Cancer, Colorectal Cancer
Multicenter Prospective Cohort of Informal Caregivers in Burgundy and Franche-Comté
Medical progress and modification of lifestyles have prolonged life expectancy, despite the development of chronic diseases. The support and care are often provided by a network of informal caregivers composed of family, friends…
- Conditions
- Breast Cancer, Colorectal Cancer, Prostate Cancer, Alzheimer Disease
- Trial name
- ICE (NCT02626377)
- Testing
- Support provided by social worker, Information booklet receipt
- Where
- France
- Volunteers
- 186 people
- Sponsor
- Centre Hospitalier Universitaire de Besancon
Caregiver Stress, Caregiver Stress Syndrome
ACT Group for Family Caregivers of Stroke Survivors
The goal of this study is to evaluate the efficacy of group-based ACT intervention in improving the levels of psychological distress in caregivers of stroke survivors. The main questions it aims to answer are: 1.
- Conditions
- Caregiver Stress, Caregiver Stress Syndrome, Caregiver Burnout, Caregiver Distress
- Trial name
- NCT07528261
- Testing
- Group-based ACT Intervention
- Where
- United States
- Volunteers
- 30 people, healthy volunteers welcome
- Sponsor
- The Wright Institute
Dementia, Alzheimer's Disease and Related Dementias
HomeCare Medication Management for People With Dementia
This study will evaluate whether the HomeCare medication management system can improve medication adherence and related outcomes for adults age 65 and older living with dementia, Alzheimer's disease, or related dementias.
- Trial name
- NCT07872072
- Testing
- HomeCare
- Where
- United States
- Volunteers
- 120 people
- Sponsor
- HiDO Technologies
Colorectal Neoplasms, Prostatic Neoplasms
Determinants of Quality Of Life in AGEd Cancer Patients
Patients face multiple stresses and challenges in the aftermath of cancer diagnosis. Despite needs perceived by elderly patients might differ from those of younger patients, there is a paucity of published data assessing the…
- Trial name
- DEQOLAGE (NCT02672657)
- Where
- 3 sites in France
- Volunteers
- 300 people
- Sponsor
- Assistance Publique - Hôpitaux de Paris
Mental Health, Quality of Life
Social Media-based Electronic Bibliotherapy for Dementia Caregivers
This study aims to assess the efficacy of social media-based electronic bibliotherapy in improving the well-being of informal caregivers of people with dementia compared to a control group.
- Conditions
- Mental Health, Quality of Life, Dementia Caregivers
- Trial name
- NCT06327022
- Testing
- Social media-based electronic bibliotherapy, Usual care
- Where
- Hong Kong
- Volunteers
- 60 people, healthy volunteers welcome
- Sponsor
- The Hong Kong Polytechnic University
Low Vision, One Eye, Unspecified Eye, Low Vision Blindness
Health Education vs Meditation in Irreversible Age-Related Vision Loss Patients and Their Caregivers
Investigators aim to assess the feasibility of delivering two augmentation interventions, Meditation and a Health Enhancement Program, for potentially enhancing the quality of life and mental health of Irreversible Age-Related…
- Trial name
- NCT03166072
- Testing
- Meditation, Health Enhancement Program
- Where
- Canada
- Volunteers
- 150 people
- Sponsor
- London Health Sciences Centre Research Institute OR Lawson Research Institute of St. Joseph's
Caregiver Burden, Primary Caregivers of Individuals With Special Needs
Effects of Craniosacral Therapy in Primary Caregivers of Individuals With Special Needs
This study aims to evaluate the effects of craniosacral therapy on pain, body awareness, depression, and quality of life in primary caregivers of individuals with special needs.
- Conditions
- Caregiver Burden, Primary Caregivers of Individuals With Special Needs, Pain, Depression
- Trial name
- CST-PCG (NCT07443527)
- Testing
- Craniosacral Therapy
- Where
- Turkey (Türkiye)
- Volunteers
- 30 people, healthy volunteers welcome
- Sponsor
- Istanbul Rumeli University