Clinical trials: Caregiver Quality of Life
Caregiver Burden, Quality of Life
Care Burden And Qualıty of Lıfe
This randomized controlled trial will be conducted to examine the effect of a multidimensional training program, to be implemented by a public health nurse, on the care burden and quality of life of primary caregivers of patients…
- Conditions
- Caregiver Burden, Quality of Life, Public Health
- Trial name
- Care Burden (NCT07672340)
- Testing
- Health Promotion Behavior Education
- Volunteers
- 78 people
- Sponsor
- Aydin Adnan Menderes University
Parkinson Disease(PD)
Empathy and (Self-)Compassion in Parkinson's Disease Patients and Caregivers
The goal of this clinical trial is to improve quality of life in Parkinson's Disease (PD) patients by increasing their empathy and their (self-)compassion.
- Trial name
- NCT07097298
- Testing
- empathy and compassion training
- Where
- Switzerland
- Volunteers
- 30 people
- Sponsor
- Alain Kaelin
Pediatric Acute Myeloid Leukemia
Home Away From Home - Quality of Life Surveys
Treatment for pediatric acute myeloid leukemia (AML) involves intensive chemotherapy regimens that result in periods of profound neutropenia leaving patients susceptible to severe infectious complications.
- Trial name
- Aim 3 (NCT02777021)
- Where
- 15 sites in United States
- Volunteers
- 154 people, healthy volunteers welcome
- Sponsor
- Children's Hospital of Philadelphia
Addiction
Quality of Life of Caregivers of Addicts
American Society of Addiction Medicine defined Addiction as a treatable, chronic medical disease involving complex interactions among brain circuits, genetics, the environment, and an individual's life experiences.
- Trial name
- NCT05089552
- Testing
- 1-WHOQOL-BREF(WHO-Quality of life-BREFF) Arabic version Scale, SCL-90-R(Symptoms Checklist-90-Revised) Arabic version scale, addiction severity index
- Where
- Egypt
- Volunteers
- 160 people
- Sponsor
- Assiut University
Alzheimer Dementia (AD), Caregivers
MUSic Listening Impact on QUality of Life, Brain and Burnout of ALzheimer' Patients Informal Caregivers
Although life expectancy is increasing, the risk of dependence and/or loss of autonomy is increasing too with ageing. Alzheimer's disease affects many people and this kind of disease is constantly growing.
- Trial name
- MUSIQUAL+ (NCT07159542)
- Testing
- listening intervention, Neuropsychology assessment, brain imaging examination
- Where
- France
- Volunteers
- 90 people, healthy volunteers welcome
- Sponsor
- University Hospital, Caen
Dementia, Quality of Life
Caring for Caregivers and People Living With Dementia Under Home-Based Primary Care
The goal of this clinical trial is to develop a dementia care intervention for persons receiving home-based primary care (HBPC) and living with dementia (PLWD) and their caregivers, and test the feasibility of implementing the…
- Conditions
- Dementia, Quality of Life, Caregiver Stress
- Trial name
- NCT05849259
- Testing
- Dementia Care Quality at Home
- Where
- 2 sites in United States
- Volunteers
- 50 people, healthy volunteers welcome
- Sponsor
- Massachusetts General Hospital
Quality of Life, Implantable Cardiac Defibrillators
A Study of Symptoms and Quality of Life in Patients With Implantable Cardiac Defibrillators (ICDs) and Their Caregivers
The purpose of this study is to better understand symptoms and quality of life in patients with heart disease and implantable defibrillators (ICDs).
- Conditions
- Quality of Life, Implantable Cardiac Defibrillators, ICDs
- Trial name
- NCT01454817
- Testing
- Quality of life
- Where
- 6 sites in United States
- Volunteers
- 562 people
- Sponsor
- Icahn School of Medicine at Mount Sinai
Quality of Life
A Hybrid Effectiveness-Implementation and Cost-Utility Evaluation of a Support Programme for Informal Carers of People With Dementia in Primary Care (EsCuidar2)
The aim of this study is to evaluate whether the School of Caring programme improves quality of life and reduces caregiver burden among informal carers of people living with dementia.
- Trial name
- EsCuidar2 (NCT07861789)
- Testing
- School of Caring Programme
- Where
- Spain
- Volunteers
- 200 people
- Sponsor
- Fundacio d'Investigacio en Atencio Primaria Jordi Gol i Gurina
Dementia, Mild, Mild Cognitive Impairment
CAPABLE Family Pilot - Adapting CAPABLE for Older Adults With Mild Cognitive Impairment (MCI)/Early Stage Dementia and Their Care Partners
The purpose of this study is to test the adapted protocol, CAPABLE Family which builds upon the evidenced based CAPABLE program to address older adults with co-occurring physical disability and mild cognitive impairment or early…
- Conditions
- Dementia, Mild, Mild Cognitive Impairment, Disability Physical, Impairment, Cognitive
- Trial name
- NCT05187117
- Testing
- CAPABLE Family - Open Label Pilot, CAPABLE Family - Randomized Control Trial
- Where
- United States
- Volunteers
- 74 people, healthy volunteers welcome
- Sponsor
- Johns Hopkins University
Toileting in Adults With Impaired Functional Status, Caregiver Burden for Those Who Care for Adults With Impaired Functional Status
Quality of Life in Adults Impaired Functioning - A Randomized Controlled Trial of Bidet vs Usual Toileting
Our expectations (hypotheses) are: Primary outcome 1. Regular bidet use will improve quality of life around elimination in adults with impaired functional status.
- Conditions
- Toileting in Adults With Impaired Functional Status, Caregiver Burden for Those Who Care for Adults With Impaired Functional Status, UTI in Adults With Impaired Functional Status
- Trial name
- NCT02042157
- Testing
- Bidet use, Regular toileting
- Where
- United States
- Volunteers
- 28 people, healthy volunteers welcome
- Sponsor
- Stanford University
Dementia
A Study on Self-Compassion,Depression,and Quality of Life Among Primary Caregivers of People With Dementia
The goal of this observational study is to investigate the correlation between self-compassion, depression, and quality of life among primary caregivers of persons with dementia. The main questions it aims to answer are: 1.
- Trial name
- NCT06301269
- Where
- Taiwan
- Volunteers
- 160 people, healthy volunteers welcome
- Sponsor
- National Taiwan University Hospital
Dementia
Pilot Study of the Living With Hope Program for Family Caregivers of Persons With Dementia Residing in Long Term Care
Hope is important for family/friends of persons with dementia residing in Long Term Care Facilities. Our research team has developed a program (Living with Hope) to increase hope and quality of life of family caregivers.
- Trial name
- NCT02038192
- Testing
- Living with Hope Program, Stories of the Present
- Where
- Canada
- Volunteers
- 21 people
- Sponsor
- University of Alberta
Parkinson's Disease
Global REsponsE During iNFusIon of a gEl With LevoDopa/Carbidopa
This multicenter, post marketing observational study (PMOS) was designed to evaluate the long-term effectiveness of levodopa/carbidopa intestinal gel (DUODOPA) on motor fluctuations (duration of OFF periods) in participants with…
- Trial name
- GREENFIELD (NCT01754129)
- Volunteers
- 148 people
- Sponsor
- AbbVie (prior sponsor, Abbott)
Family Members, Home Care Services
Supporting Older Spousal Caregivers Who Care for a Partner With Multimorbidity at Home
Research problem and specific questions: This project aims to evaluate the person-centred Carer Support Needs Assessment Tool Intervention (C SNAT-I), in Swedish "Ditt behov av stöd".
- Conditions
- Family Members, Home Care Services, Support, Family
- Trial name
- NCT06229431
- Testing
- The Carer Support Needs Assessment Tool Intervention (CSNAT-I)
- Where
- Sweden
- Volunteers
- 180 people
- Sponsor
- Ersta Sköndal University College
Caregiver Burden, Behavioral and Psychiatric Symptoms of Dementia
Acceptance Commitment Therapy for Caregivers of People with Memory Loss
Family caregivers for persons with dementia report high levels of depression, stress, and burden. Caregivers' limited time, transportation constraints, and unpredictable schedules make on-line, self-guided interventions more…
- Conditions
- Caregiver Burden, Behavioral and Psychiatric Symptoms of Dementia, Depressive Symptoms, Quality of Life
- Trial name
- NCT05749939
- Testing
- Acceptance and Commitment Therapy
- Where
- United States
- Volunteers
- 121 people, healthy volunteers welcome
- Sponsor
- Utah State University
Pediatric Cancers
School Reintegration Outcomes in Pediatric Cancer Patients
Primary Objectives: 1. To examine illness-related factors (i.e., severity of illness, quality of life rating) as predictors or correlates of child adjustment to pediatric cancer. 2.
- Trial name
- NCT00477256
- Testing
- Questionnaires
- Where
- United States
- Volunteers
- 91 people, healthy volunteers welcome
- Sponsor
- M.D. Anderson Cancer Center
Intervention, Control
A Sleep Intervention for Cancer Patients and Their Caregivers
The purpose of the study is to design and test a dyadic sleep intervention for patients diagnosed with cancer and their intimate partner.
- Trial name
- NCT04969146
- Testing
- Dyadic Intervention, Patient Only Intervention
- Where
- United States
- Volunteers
- 2 people, healthy volunteers welcome
- Sponsor
- University of Pittsburgh
Multiple Sclerosis
An Observational Study to Assess the Quality of Life of the Patients With Multiple Sclerosis and Their Caregivers
This is an observational, non controlled, non-interventional, multicentric, prospective study planned to be conducted in 450 subjects diagnosed with MS and their caregivers in 20 centres of Argentina.
- Trial name
- NCT01075737
- Where
- Argentina
- Volunteers
- 141 people
- Sponsor
- Merck KGaA, Darmstadt, Germany
Health-Related Quality-of-Life, Satisfaction With Care
V-CARE (Virtual Care After REsuscitation)
Out-of-hospital cardiac arrest (OHCA) survivors and their relatives may face challenges following hospital discharge, relating to mood, cognition, and returning to normal day-to-day activities.
- Conditions
- Health-Related Quality-of-Life, Satisfaction With Care, Self-management Behaviors
- Trial name
- V-CARE (NCT07498764)
- Testing
- Virtual Care After REsuscitation, Digital Information Leaflet
- Where
- United Kingdom
- Volunteers
- 50 people
- Sponsor
- Mid and South Essex NHS Foundation Trust
Caregiver Burden, Quality of Life
Caregiver Burden, Quality of Life, Family Function and Family Resilience Among Caregivers of Children With Medical Complexity.
The purpose of this study is to employ a mixed methods research approach combining quantitative and qualitative methods to thoroughly understand the relationships among caregiver burden, quality of life, family functioning, and…
- Conditions
- Caregiver Burden, Quality of Life, Family Function, Family Resilience
- Trial name
- NCT06503419
- Testing
- non-intervention
- Volunteers
- 400 people, healthy volunteers welcome
- Sponsor
- National Taiwan University Hospital