Clinical trials: Caregiver Quality of Life
Stroke, Caregiving Burden
CaknaStrok Education Package for Stroke Caregivers
This study evaluated the feasibility and potential effectiveness of the CaknaStrok Education Package (CEP), a culturally tailored education package developed to support informal caregivers of stroke survivors.
- Conditions
- Stroke, Caregiving Burden, Caregiver, Caregiver Burden for Those Who Care for Adults With Impaired Functional Status
- Trial name
- CaknaStrok (NCT07807332)
- Testing
- CaknaStrok Education Package (CEP)
- Where
- Malaysia
- Volunteers
- 113 people, healthy volunteers welcome
- Sponsor
- Clinical Research Centre, Malaysia
Cancer
Multimedia Training for Family Caregivers in Use of Touch and Massage in Supportive Cancer Care
RATIONALE: A multimedia education program for family caregivers that teaches simple methods of touch and massage for the comfort of cancer patients at home may be effective in lowering stress, reducing symptoms, and improving…
- Trial name
- NCT00632398
- Testing
- Attention control (reading), Touch, Caring and Cancer DVD program
- Where
- 3 sites in United States
- Volunteers
- 228 people
- Sponsor
- Collinge and Associates, Inc.
Bipolar Disorder
Mindfulness Psychoeducation for Bipolar Disorder Caregivers' Mindfulness, Burden, Quality of Life and Resilience
This study was designed to determine the effect of mindfulness-based psychoeducation applied to primary caregivers of individuals diagnosed with bipolar disorder on their mindfulness, caregiver burden, quality of life, and…
- Trial name
- NCT06983834
- Testing
- Psychoeducation
- Where
- Turkey (Türkiye)
- Volunteers
- 46 people, healthy volunteers welcome
- Sponsor
- Pamukkale University
Traumatic Brain Injury, Alzheimer Disease
The Aging Brain ANSWERS Program
This study will test the effectiveness of an intervention for Veterans diagnosed with Alzheimer's Disease (AD) or Traumatic Brain Injury (TBI) and the burden on their informal (family/friend) caregiver.
- Conditions
- Traumatic Brain Injury, Alzheimer Disease, Veterans, Family Caregivers
- Trial name
- ABC ANSWERS (NCT03397667)
- Testing
- ABC ANSWERS, Control
- Where
- United States
- Volunteers
- 236 people
- Sponsor
- Indiana University
Addiction
Quality of Life of Caregivers of Addicts
American Society of Addiction Medicine defined Addiction as a treatable, chronic medical disease involving complex interactions among brain circuits, genetics, the environment, and an individual's life experiences.
- Trial name
- NCT05089552
- Testing
- 1-WHOQOL-BREF(WHO-Quality of life-BREFF) Arabic version Scale, SCL-90-R(Symptoms Checklist-90-Revised) Arabic version scale, addiction severity index
- Where
- Egypt
- Volunteers
- 160 people
- Sponsor
- Assiut University
Cancer, Depression
Web-based Collaborative Care Intervention Study
To test the efficacy of a web-based stepped collaborative care intervention to reduce symptoms of depression, pain, and fatigue and improve health-related quality of life (HRQL) in advanced cancer patients and to reduce stress…
- Conditions
- Cancer, Depression, Fatigue, Pain
- Trial name
- WBCCI (NCT02939755)
- Testing
- Stepped collaborative care intervention, Enhanced Usual Care
- Where
- 7 sites in United States
- Volunteers
- 459 people
- Sponsor
- University of Pittsburgh
Rare Diseases
A Longitudinal Study on Family Adaptation and Relationship Dynamics in Pediatric Rare Diseases
Rare diseases in children can affect not only the child's health but also the well-being and relationships within the entire family.
- Trial name
- FAIR (NCT07497581)
- Where
- Switzerland
- Volunteers
- 240 people
- Sponsor
- Markus A. Landolt
Amyotrophic Lateral Sclerosis
Needs of ALS Patients With C9orf72 Mutation and Their Caregivers
Individuals with Amyotrophic Lateral Sclerosis (ALS) carrying the C9orf72 HRE mutation (C9Pos) often exhibit different phenotypic traits compared to other patients (C9Neg), presenting a more aggressive form of the disease, with…
- Trial name
- C9survALS (NCT07302321)
- Testing
- Survey for ALS patients, Survey for Caregivers
- Where
- 3 sites in Italy
- Volunteers
- 208 people
- Sponsor
- Istituto Auxologico Italiano
Mental Disorder, Burnout, Professional
Professional Quality of Life in German Mental Health Nursing
The purpose of this study is to assess professional quality of life in German nurses working with patients with mental disorders.
- Conditions
- Mental Disorder, Burnout, Professional, Burnout, Caregiver
- Trial name
- NCT04200300
- Testing
- Online questionnaire
- Where
- Germany
- Volunteers
- 360 people
- Sponsor
- Charite University, Berlin, Germany
Dementia
Mindfulness Research Program: Designed to Enhance Wellbeing in People Living With Dementia and Their Spouses
People with dementia forget things and have trouble concentrating. In addition, they and their caregivers can become depressed. This project will show whether Mindfulness-Based Cognitive Therapy (MBCT) can lessen depression…
- Trial name
- MBCT_AD (NCT01774448)
- Testing
- Mindfulness-Based Cognitive Therapy
- Volunteers
- 36 people
- Sponsor
- Lakehead University
Hereditary Angioedema (HAE)
HAE Burden and Crisis Management
The study has been designed as a French, multicentric survey study to obtain data to describe the burden of on-demand treatment for patients with hereditary angioedema (HAE).
- Trial name
- ECRINS (NCT06806618)
- Where
- France
- Volunteers
- 300 people
- Sponsor
- University Hospital, Grenoble
Care Burden, Anxiety
Group Music Therapy Intervention With Informal Carers of Elderly Dependents
To evaluate the effects of a group music therapy intervention with informal caregivers of elderly people on clinical psychological symptoms, taking into account variables such as caregiver burden, anxiety and depression.
- Conditions
- Care Burden, Anxiety, Depression, Coping Strategies
- Trial name
- MUSIC CARES (NCT06028815)
- Testing
- Group music therapy
- Where
- Spain
- Volunteers
- 100 people
- Sponsor
- University of Deusto
Schizophrenia
Study of m-RESIST, an m-Health Program for Treatment-resistant Schizophrenia
m-RESIST is an m-health intervention program aimed to develop, test and evaluate a tool to allow patients suffering from treatment-resistant schizophrenia to self-manage their condition.
- Trial name
- m-RESIST (NCT03064776)
- Testing
- m-RESIST Patients, m-RESIST Caregivers
- Where
- 3 sites in Hungary, Israel and 1 more
- Volunteers
- 43 people
- Sponsor
- Fundació Institut de Recerca de l'Hospital de la Santa Creu i Sant Pau
Ductal Adenocarcinoma of Pancreas, Pancreatectomy
Patients With Pancreatic Tumor: Use of an App to Monitor Progress in a Simple and Intuitive Way by Periodically Completing Targeted Questionnaires and Providing Educational and Informational Content (PancreasPlus).
Caring for people with pancreatic cancer requires good coordination between hospital care and care at home, with different healthcare professionals working closely together.
- Conditions
- Ductal Adenocarcinoma of Pancreas, Pancreatectomy, Caregiver, Nutritional Evaluation
- Trial name
- NCT07532590
- Testing
- use of PancreasPlus app
- Where
- 2 sites in Italy
- Volunteers
- 185 people
- Sponsor
- Casa di Cura Dott. Pederzoli
Burnout, Caregiver, Quality of Life
Heart-Focused Breathing in Alzheimer's Disease Caregivers
This research study will explore the effects of an online heart-focused breathing intervention on 20 informal caregivers of patients with Alzheimer's Disease (AD) over a period of two weeks.
- Trial name
- NCT04077450
- Testing
- Online Heart-Focused Breathing Intervention
- Where
- United States
- Volunteers
- healthy volunteers welcome
- Sponsor
- Arizona State University
Advanced Cancer
International Study to Evaluate Two Programs of Support for Patients With Advanced Cancer and Their Families
The overall aim of this project is to evaluate the effectiveness, cost-effectiveness and mechanisms of action of two psychoeducational interventions (a face-to-face nurse-led intervention called FOCUS+ and an eHealth intervention…
- Trial name
- DIAdIC (NCT04626349)
- Testing
- FOCUS+ (face-to-face nurse-led intervention), iFOCUS (web-based intervention)
- Where
- 13 sites in Belgium, Denmark and 4 more
- Volunteers
- 431 people
- Sponsor
- Vrije Universiteit Brussel
Nutritional Status, Mental Health
Nutritional Status, Nutritional Knowledge and Mental Health Among Indonesian Migrant Workers in Taiwan
The goal of this observational study is to understand more about the nutritional knowledge, nutritional status, and mental health conditions (depression, anxiety, and stress) of Indonesian live-in domestic migrant workers in…
- Conditions
- Nutritional Status, Mental Health, Migrant Domestic Workers
- Trial name
- NCT07496658
- Volunteers
- 277 people, healthy volunteers welcome
- Sponsor
- Taipei Medical University
Advanced Cancer
Outcomes of Triaged Family Care in Advanced Cancer
The purpose of this study is to assess the quality of life of patients with advanced cancer and their family caregivers and to evaluate two doses of a family-based program of care versus control.
- Trial name
- FOCUS-Triage (NCT00709176)
- Testing
- Brief FOCUS Program, Extensive FOCUS Program
- Where
- 5 sites in United States
- Volunteers
- 484 people
- Sponsor
- University of Michigan
Alzheimer Disease, Dementia
A Study of the Safety and Effectiveness of Two Doses of Galantamine Versus Placebo in the Treatment of Patients With Alzheimer's Disease
The purpose of this study is to evaluate the safety and effectiveness of two doses of galantamine (a drug for treating dementia) versus placebo in the treatment of patients with Alzheimer's disease.
- Trial name
- NCT00253188
- Testing
- galantamine hydrobromide
- Volunteers
- 653 people
- Sponsor
- Johnson & Johnson Pharmaceutical Research & Development, L.L.C.
Stroke Patient, Caregiver
Improving Resilience and Quality of Life of Stroke Patients
This study aims to (1) test the effect of Family System Care and Theme Care Action Module on resilience, family function, self-efficacy, and quality of life for stroke patients and their families and caregivers; and (2) interview…
- Trial name
- NCT05291442
- Testing
- To integrate Family System Care and Theme Care Action Module
- Where
- Taiwan
- Volunteers
- 180 people
- Sponsor
- Chung Shan Medical University