Clinical trials: Database, open to volunteers
Myelodysplastic Syndromes
Institut Paoli Calmettes Myelodysplastic Syndromes Database
Database of Institut Paoli-Calmettes patients diagnosed with Myelodysplastic Syndromes
- Trial name
- NCT03275480
- Where
- France
- Volunteers
- 10,000 people
- Sponsor
- Institut Paoli-Calmettes
Nervous System Tumor
Creation of a Clinical Database on Primary Nervous System Tumors
the creation of a clinical database including data for all PCNST patients is of high interest. This database will allow us to develop clinical studies on: The clinical, radiological and biological presentation of tumors, the…
- Trial name
- BDD-NO (NCT04516720)
- Testing
- data collection
- Where
- France
- Volunteers
- 1,700 people
- Sponsor
- Institut du Cancer de Montpellier - Val d'Aurelle
Coronary Artery Disease, Postoperative Period
Establishment of Disease Characteristics and a Chinese Medicine Prognosis Risk Model Based on a Large-Scale Database After Coronary Revascularization
This study aims to develop a risk prediction model for patients who have undergone coronary revascularization (such as stent placement or bypass surgery).
- Conditions
- Coronary Artery Disease, Postoperative Period, Myocardial Revascularization
- Trial name
- NCT07613060
- Volunteers
- 600 people
- Sponsor
- Liu Qiang
MND (Motor Neurone DIsease)
Telehealth in MND-Research (TIM-R): A Research Database for MND
The aim of this study is to implement the Telehealth in MND system as a research database allowing people with MND to take part in research and provide data remotely (TiM-Research).
- Trial name
- TIM-R (NCT07132879)
- Testing
- No intervention - Prospective cohort study
- Where
- United Kingdom
- Volunteers
- 1,000 people
- Sponsor
- University of Sheffield
Myocarditis, Cardiomyopathies
JOint Use of Database to Identify Risk Factors of CARDio-vascular Toxicity Induced by Immune Checkpoint Inhibitors
Immune checkpoint inhibitors (ICIs) might induce high grade immune-related adverse events (irAEs) involving the cardio-vascular system.
- Conditions
- Myocarditis, Cardiomyopathies, Heart Diseases, Cardiovascular Diseases
- Trial name
- JOCARDITE (NCT04294771)
- Testing
- ICI
- Where
- France
- Volunteers
- 500,000 people
- Sponsor
- Groupe Hospitalier Pitie-Salpetriere
Kidney Cancer
UroCCR Database: French Research Network for Kidney Cancer -UroCCR
Kidney cancer management has become increasingly complex with the diversification of treatment options and the integration of multidisciplinary care.
- Trial name
- UroCCR (NCT03293563)
- Testing
- Radical nephrectomy versus partial nephrectomy (according surgeon judgement)
- Where
- 68 sites in Belgium, France and 2 more
- Volunteers
- 30,000 people
- Sponsor
- University Hospital, Bordeaux
Cerebrovascular Disease
National Database of the Virtual Institute of Cerebrovascular Diseases
The overall objective of the study is to identify prognostic predictors of cerebrovascular disease during various stages of the cerebrovascular disease itself, namely: hospitalization at the acute care facility, residential…
- Trial name
- BIG-MENTI (NCT06859502)
- Where
- Italy
- Volunteers
- 312,800 people
- Sponsor
- Fondazione Don Carlo Gnocchi ETS
Parkinson Disease, Parkinson Disease Dementia
Parkinson's Disease and Movement Disorders Clinical Database
The research database contains demographic and family history information, longitudinal information on the clinical symptoms, neuropsychological profile and treatments, stored biological samples, and brain images of patients with…
- Conditions
- Parkinson Disease, Parkinson Disease Dementia, Lewy Body Parkinson Disease, Lewy Body Dementia With Behavioral Disturbance
- Trial name
- NCT04997642
- Testing
- neuropsychiatric and cognitive testing questionnaires
- Where
- United States
- Volunteers
- 250 people
- Sponsor
- University of Pennsylvania
Right Sided Colon Cancer, Right Colectomy
Right Colectomy for Colon Cancer Database (RCC). Surgical Technique, Route of Access and Quality of the Specimen
Aim of the project is to surveil results after extended lymphadenectomy for right sided colon resection for cancer with different operative techniques. Patients operated for right sided colon cancer will be involved.
- Conditions
- Right Sided Colon Cancer, Right Colectomy, Lymphadenectomy
- Trial name
- RCC (NCT06329102)
- Testing
- Surgical access
- Where
- Norway
- Volunteers
- 1,000 people
- Sponsor
- Haukeland University Hospital
Multiple Sclerosis, Multiple Sclerosis (MS) - Relapsing-remitting
REAL-MS: Observational Database Study of AHSCT and MS Therapies
Multiple sclerosis (MS) is a condition in which the immune system damages the brain and spinal cord. Treatments called disease-modifying therapies can reduce inflammation and disease activity.
- Conditions
- Multiple Sclerosis, Multiple Sclerosis (MS) - Relapsing-remitting, Multiple Sclerosis (MS) Primary Progressive
- Trial name
- REAL-MS (NCT07899502)
- Testing
- Autologous haematopoietic stem cell transplantation (AHSCT), High-efficacy disease-modifying therapy (HE-DMT)
- Where
- 3 sites in United Kingdom
- Volunteers
- 2,000 people
- Sponsor
- Imperial College London
Epilepsy
Prospective Regional Epilepsy Database
PREDICT is an observational study following adults with an unprovoked seizure or epilepsy in the health care region of western Sweden.
- Trial name
- PREDICT (NCT04559919)
- Testing
- Seizure status, Tests, Epilepsy
- Where
- 3 sites in Sweden
- Volunteers
- 1,000 people
- Sponsor
- Sahlgrenska University Hospital
Long QT Syndrome
Building of a Diagnostic/Prognostic Database for Human ERG Variant Effects
Cardiac channelopathies induce severe heart rhythm or conduction disorders. Mutations of the KCNH2 gene, that encodes the human (h) ERG channel, is responsible for 30-40% of all cases of long QT syndrome (inherited LQT2).
- Trial name
- CarDiag (NCT06087367)
- Where
- 2 sites in France
- Volunteers
- 600 people
- Sponsor
- Nantes University Hospital
COPD
Bronchoscopic EmphysemA Treatment in THE NetherLands
Rationale: New bronchoscopic treatments for emphysema have shown promise in clinical trials, improving lung function, exercise capacity and possibly survival and are now being adopted by a number of centres in the Netherlands.
- Trial name
- BREATHE-NL (NCT02815683)
- Where
- 2 sites in Netherlands
- Volunteers
- 500 people
- Sponsor
- University Medical Center Groningen
Motor Neuron Diseases, Spinocerebellar Ataxias
Rare Disease Registry Database for Movement Disorders in Southern Anhui Province
According to the World Health Organization (WHO) definition, a rare disease is a disease affecting fewer than 6.5 people per 10,000; in China, it generally refers to diseases with a prevalence of less than 1/10,000 (i.e., with a…
- Conditions
- Motor Neuron Diseases, Spinocerebellar Ataxias, Hereditary Muscular Dystrophy, Hereditary Spastic Paraplegia
- Trial name
- W-MoSCA (NCT07838883)
- Where
- China
- Volunteers
- 180 people
- Sponsor
- First Affiliated Hospital of Wannan Medical College
Melanoma (Skin)
French Clinical Datbase of Melanoma Patients (RIC-Mel)
With a high incidence, low survival rates and limiter availability of effective treatment, melanoma is one of the research priorities for health authorities.
- Trial name
- RIC-Mel (NCT03315468)
- Where
- France
- Volunteers
- 16,000 people
- Sponsor
- Nantes University Hospital
Neoplasm Metastasis
Bone Metastases Database of Patients Treated Surgically for Impending or Pathologic Fracture of Long Bones
The aims of this study are to collect prospective data on the natural history of bone metastases (BMs) and skeleta related events (SREs),
- Trial name
- BMD (NCT03416959)
- Testing
- intramedullary fixation or endoprosthetic reconstruction
- Where
- Italy
- Volunteers
- 120 people
- Sponsor
- Istituto Ortopedico Rizzoli