Clinical trials: Family-centered Care
Dementia, Professional-Patient Relations
Intervention to Improve Shared Decision Making Among Seniors With Dementia, Their Caregivers and Healthcare Providers
The increasing prevalence of Alzheimer's disease and other forms of dementia causes new challenges to ensure that healthcare decisions are informed by research evidence and reflect what is important for seniors and their…
- Conditions
- Dementia, Professional-Patient Relations, Professional-Family Relations, Aging
- Trial name
- NCT02956694
- Testing
- Professional e-learning program on shared decision making
- Where
- Canada
- Volunteers
- 47 people
- Sponsor
- Anik Giguère
Childhood Cancer
COMUNICAR: Community-Led Family-Centered Communication for Cancer Survivorship Care
This study will test a novel intervention to facilitate family-centered communication among Hispanic/Latino (H/L) young adult childhood cancer survivors (YA-CCS), their support persons, and their clinicians through collaboration…
- Trial name
- NCT07606443
- Testing
- Family-Centered Communication Intervention
- Where
- United States
- Volunteers
- 18 people, healthy volunteers welcome
- Sponsor
- Stanford University
Post-Cardiac Arrest Syndrome
The Holistic Health Care of Post-Cardiac Arrest Survivors: From Patient's Health to Family Resilience
Post-cardiac arrest mortality remains high and proper care after cardiopulmonary resuscitation is an important clinical challenge.
- Trial name
- NCT04859270
- Where
- Taiwan
- Volunteers
- 600 people
- Sponsor
- National Taiwan University Hospital
Dementia, Alzheimer Disease
Using Technology to Support Care Partners for Persons With Alzheimer's Disease: Tele-STELLA
The purpose of this study is to test a revised psychoeducational intervention to help Care Partners for family members with dementia understand and reduce the distressing behaviors that come with progressive dementia.
- Conditions
- Dementia, Alzheimer Disease, Caregiver Burnout, Family Members
- Trial name
- Tele-STELLA (NCT04627662)
- Testing
- Tele-STELLA
- Where
- United States
- Volunteers
- 375 people
- Sponsor
- Oregon Health and Science University
Family Centered Care
The Effect of Parental Presence on Pain and Anxiety Levels During Peripheral Intravenous Catheterization in Infants
Children's changing emotional and physical needs, continuous, comprehensive, accessible, coordinated and family requires a centered care.Parental presence during invasive procedures is important in family-centered-care.
- Trial name
- NCT04378673
- Testing
- not interventional
- Where
- Turkey (Türkiye)
- Volunteers
- 120 people, healthy volunteers welcome
- Sponsor
- Bagcilar Training and Research Hospital
HIV/AIDS, Hypertension
Evaluating the Impact of a Community Health Worker Program in Neno, Malawi
This protocol concerns the implementation and evaluation of an intervention designed to realign the existing cadre of Community Health Workers (CHW) in Neno District, Malawi to better support the care needs of the clients they…
- Conditions
- HIV/AIDS, Hypertension, Asthma, Diabetes
- Trial name
- NCT03106727
- Testing
- Household model
- Where
- Malawi
- Volunteers
- 122,395 people, healthy volunteers welcome
- Sponsor
- Partners in Health
Dementia Family Caregiver, Dementia
Medication Collaboration Feasibility Study
This study examines the feasibility and acceptability of a brief medication collaboration intervention among older adults (age 60+) with early-stage dementia or mild cognitive impairment who take multiple medications and their…
- Conditions
- Dementia Family Caregiver, Dementia, Medication Adherence
- Trial name
- NCT07742189
- Testing
- Medication Collaboration Intervention
- Where
- United States
- Volunteers
- 30 people
- Sponsor
- Northwestern University
Dementia, Dysphagia
Family Caregiver Online Survey (Dementia and Swallowing Difficulties)
The Family Caregiver Survey is a one-time, 30-minute, online survey for people living with and caring for a family member with dementia.
- Conditions
- Dementia, Dysphagia, Dementia Alzheimers, Dementia, Vascular
- Trial name
- NCT06471660
- Where
- United States
- Volunteers
- 219 people, healthy volunteers welcome
- Sponsor
- University of Oregon
Heart Failure
Heart to Heart Web-based Communication Program for Heart Failure
This randomized controlled trial evaluates the effectiveness of a web-based family-centered communication enhancement program ("Heart to Heart") designed for patients with heart failure, family caregivers, and cardiac nurses.
- Trial name
- NCT07479160
- Testing
- Heart to Heart Web-based Communication Program
- Where
- South Korea
- Volunteers
- 150 people, healthy volunteers welcome
- Sponsor
- Ajou University School of Medicine
COPD (Chronic Obstructive Pulmonary Disease), ALS (Amyotrophic Lateral Sclerosis)
Psilocybin Therapy for Psychological Distress in Palliative Patients
The goal of this clinical trial is to evaluate whether psilocybin therapy can effectively treat depression and psychological distress in adult patients with COPD, ALS, MS, or APD who have at least 6 months life expectancy.
- Conditions
- COPD (Chronic Obstructive Pulmonary Disease), ALS (Amyotrophic Lateral Sclerosis), MS (Multiple Sclerosis), Major Depressive Disorder (MDD)
- Trial name
- PsyPal (NCT06782724)
- Testing
- Psilocybin therapy
- Where
- 4 sites in Czechia, Denmark and 2 more
- Volunteers
- 108 people
- Sponsor
- University Medical Center Groningen
Dementia, Alzheimer Disease
Care Ecosystem: Navigating Patients and Families Through Stages of Care
This is a randomized clinical trial evaluating the benefits of a program that supports model care for persons with dementia and their family caregivers. Subjects were recruited from California, Nebraska and Iowa.
- Conditions
- Dementia, Alzheimer Disease, Dementia, Vascular, Lewy Body Disease
- Trial name
- NCT02213458
- Testing
- Navigated Care
- Where
- 2 sites in United States
- Volunteers
- 1,560 people
- Sponsor
- University of California, San Francisco
Brain Death, Organ Donation
Donation Network to Optimize Organ Recovery Study
This study consists in an cluster-randomized clinical trial involving near 60 Brazilian intensive care units (ICUs) with a high notification rate of potential donors of organs and tissues.
- Trial name
- DONORS (NCT03179020)
- Testing
- Checklist use, Usual care
- Where
- 63 sites in Brazil
- Volunteers
- 1,535 people
- Sponsor
- Hospital Moinhos de Vento
Researcher-Subject Relations
Growth and Development of Children With Congenital Heart Disease (CHD)
The Effect of Individualized Nutrition Training Given to the Families of Children with Congenital Heart Disease (CHD) in the Post-Operative Period on their Growth and Development This study was conducted experimentally to…
- Trial name
- CHD (NCT04903964)
- Testing
- family-centered nutrition education
- Where
- Turkey (Türkiye)
- Volunteers
- 42 people, healthy volunteers welcome
- Sponsor
- Cukurova University
Dementia, Alzheimer Disease
Comparing Structured Retrieval Practice and Reading-Based Education for Dementia Caregivers
Caring for a person living with dementia can be stressful, and many family caregivers report limited access to effective educational resources for managing dementia-related behaviors and caregiver stress.
- Conditions
- Dementia, Alzheimer Disease, Caregiver Stress
- Trial name
- NCT07413406
- Testing
- Structured Retrieval Practice, Reading-Based Education
- Where
- United States
- Volunteers
- 65 people
- Sponsor
- Virginia Wesleyan University
Caregiver Burden
Building a Bridge (BAB) Between Clinical and Community Care
Dementia diagnosis triggers a transitional phase for the individuals and their families, often causing emotional distress and family conflicts due to the ambiguity of the illness and future trajectories.
- Trial name
- BAB (NCT03932812)
- Testing
- Options Counselor Health Educator (OC-HE) Intervention
- Where
- United States
- Volunteers
- 82 people, healthy volunteers welcome
- Sponsor
- Sato Ashida
Brain Injuries, Traumatic
Safe@Home: A Self-Management Program for Individuals With TBI and Their Families
People who sustain moderate to severe traumatic brain injury (TBI) have an increased risk for unintentional injury and harm when resuming day to day activities in the home and community.
- Trial name
- NCT02893345
- Testing
- Safe@Home Intervention Group, Usual Care Group
- Where
- United States
- Volunteers
- 60 people
- Sponsor
- Shepherd Center, Atlanta GA
Dementia Family Caregiver
A Care Empowerment Program Using Virtual Reality for Family Caregivers of People With Dementia
This study aims to evaluate a care empowerment program using virtual reality on dementia knowledge, attitude, self-efficacy in managing BPSD, empathy and caregiver burden of family caregivers of people with dementia.
- Trial name
- NCT05475002
- Testing
- care empowerment program, Routine family support
- Where
- Taiwan
- Volunteers
- 92 people, healthy volunteers welcome
- Sponsor
- Tzu Chi University
Nursing Care
The Effect of Family-centered Care Educational Training on Nurses' Attitudes and Parental Satisfaction
Family-Centered Care (FCC) is a care approach based on mutual respect, knowledge sharing, and collaboration among children, families, and healthcare professionals during the planning, implementation, and evaluation of healthcare.
- Trial name
- NCT05939375
- Testing
- FCC educational training
- Where
- Turkey (Türkiye)
- Volunteers
- 134 people, healthy volunteers welcome
- Sponsor
- Mersin University
Alzheimer Disease
A Trial to Support Caregivers of Patients With Dementia in Italy: the UP-TECH Project
The UP-TECH project aims at developing an UPgrading quality of care for Alzheimer's disease patients through the integration of services and the use of new TECHnologies in order to also improving the quality of life of their…
- Trial name
- UP-TECH (NCT01700556)
- Testing
- Case Manager, Assistive Technologies, light support
- Where
- 5 sites in Italy
- Volunteers
- 438 people
- Sponsor
- Istituto Nazionale di Ricovero e Cura per Anziani
HIV Infections
Family Centered Advanced Care Planning for Adolescents With HIV/AIDS and Their Families
This study will examine the efficacy of Family Centered Advance Care Planning in enhancing quality of life, integrating effective end-of-life care, and preventing depression and anxiety among HIV infected adolescents and their…
- Trial name
- NCT00723476
- Testing
- Family Centered Advanced Care Planning (FCACP) sessions, Health education control sessions
- Where
- United States
- Volunteers
- 82 people, healthy volunteers welcome
- Sponsor
- Maureen Lyon