Clinical trials: Hypermobility Syndrome
Ehlers-Danlos Syndrome
Impact of Oxygen Therapy on Fatigue in Patients With Hypermobile-type Ehlers-Danlos Syndrome
The hypothesis of the OXYSED study is that the delivery of 3 months of oxygen therapy via an oxygen concentrator would reduce fatigue, pain, headaches, kinesiophobia, drug intake, dyspnea, and improve walking performance, quality…
- Trial name
- NCT04890431
- Testing
- Oxygen
- Where
- 3 sites in France
- Volunteers
- 82 people
- Sponsor
- Hospital St. Joseph, Marseille, France
Ehlers-Danlos Syndrome
Origins and Impact of EDS in Connective Tissues and Skin
Ehlers-Danlos Syndrome (EDS) is an inherited disease of collagen, found in connective tissues, such as skin. EDS patients suffer from joint and skin problems (skin hyperextensibility, joint hypermobility) along with a large range…
- Trial name
- NCT02721797
- Testing
- Orthopaedic & Gynaecology surgery
- Where
- United Kingdom
- Volunteers
- 35 people
- Sponsor
- University College, London
Ehlers-Danlos Syndrome, Pain, Chronic
Light Exposure on Pain in Hypermobile Ehlers-Danlos Syndrome
Chronic pain is a major complaint among many individuals living with hypermobile Ehlers Danlos Syndrome (hEDS) and may have a severe impact on quality of life and activities of daily living.
- Trial name
- LEEDS (NCT05561270)
- Testing
- White LED light, Green LED light
- Where
- United States
- Volunteers
- 30 people
- Sponsor
- New York Institute of Technology
Ehlers-Danlos Syndrome
Evaluation of the Effects of Cross Linking on the Biomechanical Characteristics of Skin Samples From Patients With Classic or Hypermobile Ehlers-Danlos Syndrome
The main aim of this study is to evaluate the effect of cross linking on the elasticity of skin samples from patients with non-vascular Ehlers-Danlos Syndrome (hEDS or cEDS).
- Trial name
- SEDSKIN (NCT06336473)
- Testing
- skin biopsy
- Where
- France
- Volunteers
- 28 people
- Sponsor
- GCS Ramsay Santé pour l'Enseignement et la Recherche