Clinical trials: Life Experiences
Caffeine; Sleep Disorder
Influence of Caffeine Therapy in Preterm Infants
The development of sleep wake cycles is indicative of child's neurocognitive functions. Caffeine therapy is commonly used in neonatal intensive care units for treatment of apnea of prematurity (AOP), to reduce mechanical…
- Trial name
- NCT04376749
- Where
- Turkey (Türkiye)
- Volunteers
- 40 people
- Sponsor
- Marmara University
Paediatric Palliative Care
Paediatric End of Life Care Needs in Switzerland
Background Children living with life-limiting conditions have always been part of the health care system. Although there have been dramatic improvements in medical care, hundreds of children continue to die annually.
- Trial name
- PELICAN (NCT01983852)
- Where
- Switzerland
- Volunteers
- 200 people
- Sponsor
- University of Basel
Type 1 Diabetes Mellitus
A Qualitative Study on CSII in Children and Adolescents Having Type 1 Diabetes
Using qualitative method; a qualitative case study using semi-structured interviews to explore patients' experiences. Study population of insulin pump patients aged 11-18 years old will be recruited from pediatrics with T1D at…
- Trial name
- NCT03066284
- Where
- Kuwait
- Volunteers
- 20 people
- Sponsor
- Dasman Diabetes Institute
Spasticity
Retrospective Real-Life Study From One Brazilian Reference Center Assessing Long-Term Experience In The Treatment Of Adult Spasticity With AbobotulinumtoxinA
The aim of the study is to describe the long-term use of abobotulinumtoxinA (Dysport®) in adult subjects affected with upper limb spasticity (ULS) +/- lower limb spasticity (LLS) who received treatment with Dysport® for a minimum…
- Trial name
- RETURN (NCT04446702)
- Where
- Brazil
- Volunteers
- 200 people, healthy volunteers welcome
- Sponsor
- Ipsen
Women With Congenital Heart Diseases
The Life Experience of Young Women (Age 18-38) Who Live With Congenital Heart Disease
This research will focus on young women between the ages of 18-38 who underwent a heart operation and their life experiences. This research will focus on these life events and the paradigm of these women being raised as "heart…
- Trial name
- NCT02909543
- Testing
- Observation and Interviwe
- Where
- Israel
- Volunteers
- 15 people
- Sponsor
- Hillel Yaffe Medical Center
Chronic Pain, Adverse Childhood Experiences
Traumatic Events in Childhood, Attachment, Pain Perception, Epigenetic Marks, Quality of Life and Resilience.
In the present research study, aiming to explore the links between several psychological factors and chronic pain, the research seeks to develop an inclusive framework to investigate the role of adverse childhood experiences…
- Conditions
- Chronic Pain, Adverse Childhood Experiences, Attachment Styles, Chronic Stress
- Trial name
- NCT06077097
- Testing
- Biological samples
- Where
- France
- Volunteers
- 100 people
- Sponsor
- University of Lorraine
Critical Illness, Ethics
Life Sustaining Treatments in Critically Ill Children
Summary of the Research on Withdrawing and Withholding Life-Sustaining Treatment for Critically Ill Children Background Medical treatments require regular evaluation to ensure they align with the patient's best interests…
- Conditions
- Critical Illness, Ethics, End of Life Care
- Trial name
- LST-Ped-Int (NCT07401420)
- Testing
- There is no intervention
- Where
- Sweden
- Volunteers
- 30 people
- Sponsor
- Göteborg University
Quality of Life
QUALITATIVE SURVEY ABOUT NURSES FIRST WORK EXPERIENCE DURING COVID-19 PANDEMIC
During covid-19 pandemic an huge reorganization of all PiacenzaHospital was done to manage the increasing requests for hosptitalization. New nurses had to face first work experience in full pandemic Emergency.
- Trial name
- NCT05110859
- Testing
- in-depth individual interviews
- Where
- Italy
- Volunteers
- 20 people
- Sponsor
- Azienda Unita Sanitaria Locale di Piacenza
Hypertension, Coronary Disease
Real-life Experience of the Use of Isomers as METPURE XL (S (-) Metoprolol Succinate) for Evaluation of Efficacy, Safety and Tolerability in the Management of Cardiovascular Disease in Colombian Patients
This is a Phase 4, observational, open study in patients who their doctor has prescribe METPURE XL (S (-)metoprolol succinate)by clinical practice. No medication was provided by the sponsor.
- Trial name
- XPERT (NCT01426594)
- Where
- Colombia
- Volunteers
- 2,000 people
- Sponsor
- Closter Pharma
Parkinson Disease, Covid19
Parkinson's Disease and Experiences Throughout the COVID-19 Pandemic
The purpose of this research study is to examine the relationship between personal characteristics and satisfaction with care in those diagnosed with Parkinson's disease during the COVID-19 pandemic.
- Conditions
- Parkinson Disease, Covid19, Satisfaction, Patient, Quality of Life
- Trial name
- NCT04720118
- Testing
- No Intervention
- Where
- United States
- Volunteers
- 150 people, healthy volunteers welcome
- Sponsor
- Towson University
Parental Presence, Pediatric Ethics Consultation
Impact of Parental Presence at the Ethics Meeting in Neonatal Intensive Care
In neonatal intensive care, physicians are sometimes confronted with decisions to withhold or withdraw life-sustaining treatment for a critically ill newborn.
- Trial name
- PaReNCo (NCT07681518)
- Where
- France
- Volunteers
- 100 people
- Sponsor
- Hôpital NOVO
Surveys and Questionnaires, Quality of Life
Patient's Expectations, Preferences, Experiences Before, During and After the Treatment With Invisalign® Aligners
Orthodontic treatment extends over a longer period of time. lt takes months or rather years and it is no short-term treatment. The current literature does not answer the question of patients' expectations on aligner treatment and…
- Conditions
- Surveys and Questionnaires, Quality of Life, Orthodontics, Orthodontic Appliances
- Trial name
- NCT04105491
- Testing
- IInvisalign® Aligners
- Where
- Austria
- Volunteers
- 55 people
- Sponsor
- Medical University of Vienna
Dementia With Lewy Bodies
The PACE-DLB Study
The PACE-DLB Study is for people with at least moderate dementia with Lewy bodies (DLB) and their primary caregiver. The study's goals are to learn more about the experiences of people with DLB and their caregivers as DLB…
- Trial name
- NCT04829656
- Where
- 5 sites in United States
- Volunteers
- 378 people
- Sponsor
- University of Florida
Adverse Childhood Experiences, Cancer, Breast
Adverse Childhood Experiences, Adaptation and Breast Cancer
Adverse Childhood Experiences (ACEs) have long been linked to mental health problems in adulthood. In the case of cancer, no study has considered that such an anteriority could make patients more vulnerable emotionally, even…
- Conditions
- Adverse Childhood Experiences, Cancer, Breast, Attachment Styles, Resilience, Psychological
- Trial name
- CAPONE (NCT05843539)
- Testing
- Biological and epigenetic measures
- Where
- France
- Volunteers
- 100 people
- Sponsor
- University of Lorraine
Psoriatic Arthritis (PsA)
Safety and Effectiveness of Abatacept in Psoriatic Arthritis Participants
The purpose of this study is a long-term, observational study of Abatacept in patients with Psoriatic Arthritis, a chronic inflammatory disorder.
- Trial name
- ALTEA (NCT03419143)
- Where
- Germany
- Volunteers
- 190 people
- Sponsor
- Bristol-Myers Squibb
PTSD, Critical Illness
The Experiences of Children and Caregivers Given PICU Storybooks
1. To assess the acceptability and feasibility of a study design aimed at evaluating the efficacy of a newly developed intervention for children and their caregivers following discharge from PICU 2.
- Conditions
- PTSD, Critical Illness, Depression, Anxiety
- Trial name
- NCT04041401
- Testing
- PICU storybook
- Where
- United Kingdom
- Volunteers
- 24 people, healthy volunteers welcome
- Sponsor
- University of Surrey
Ulcerative Colitis, Crohn's Disease
VEST: The UK Vedolizumab Real Life Experience Study in Inflammatory Bowel Disease
Vedolizumab has been approved for the treatment of both ulcerative colitis and Crohn's disease. The aim of this study is to capture the early real life UK experience of vedolizumab including the outcomes of treatment, describing…
- Trial name
- VEST (NCT03257345)
- Where
- 22 sites in United Kingdom
- Volunteers
- 360 people
- Sponsor
- University Hospital Southampton NHS Foundation Trust
Life Experiences, Respiratory Function
Validation of Study in Respiratory Physiology and it Interactions
The aim of the study was to validate tools of physiological signal processing and interpretation on healthy human volunteers in order to improve the understanding in respiratory physiology and its interactions with heart…
- Conditions
- Life Experiences, Respiratory Function, Cardiac Function
- Trial name
- ValApPhI (NCT01881945)
- Testing
- Non-invasive physiological signal recording on healthy volunteer
- Where
- France
- Volunteers
- 50 people, healthy volunteers welcome
- Sponsor
- University Hospital, Grenoble
Patients With Massive Burn Injury
Health-related Quality of Life After Massive Burn Injury
Massive burns are serious life-threatening conditions. Recent advances in their management now allow the survival of a growing number of patients.
- Trial name
- HR - QOL MR (NCT03660150)
- Testing
- Evaluation of health-related quality of life
- Where
- France
- Volunteers
- 18 people
- Sponsor
- Hospices Civils de Lyon
Hospice, End of Life
Tandem VR: Synchronized Nature-Based Experiences in Virtual Reality for Hospice Patients and Their Caregivers
Background: Nature-based virtual reality (VR) and other outdoor experiences in head-mounted displays (HMDs) offer powerful, non-pharmacological tools for hospice teams to help patients undergoing end-of-life (EOL) transitions.
- Conditions
- Hospice, End of Life, Palliative Care, Pain
- Trial name
- NCT06186960
- Testing
- Tandem Virtual Reality
- Where
- United States
- Volunteers
- 26 people, healthy volunteers welcome
- Sponsor
- Prisma Health-Upstate