Clinical trials: Research Participation
Schizophrenia, Substance Abuse
Screening Protocol for Research Participants
The Screening Protocol is a system devised to evaluate potential research participants for National Institute on Drug Abuse/Maryland Psychiatric Research Center (NIDA/MPRC) studies.
- Conditions
- Schizophrenia, Substance Abuse, Cocaine Abuse, Tobacco Use Disorder
- Trial name
- ScreenProt (NCT01010620)
- Testing
- Various Screening psychiatric and medical assessments
- Where
- United States
- Volunteers
- 523 people, healthy volunteers welcome
- Sponsor
- University of Maryland, Baltimore
Patient Participation, Pediatric ALL
Inclusion Appeal Videos and Intent to Register for Pediatric Clinical Trials
An informational video about joining a Research Notification Registry is being compared with a version of the video tailored to African/ African American parents, reminding them about the importance of their being included in…
- Trial name
- NCT06138145
- Testing
- Video, Survey
- Where
- United States
- Volunteers
- 125 people, healthy volunteers welcome
- Sponsor
- University of Pennsylvania
Autism Spectrum Disorder, Patient Engagement
Testing Design Thinking Methodology to Engage Hispanic and Latino Families of Autistic Children in Research.
The goal of this study is to compare the level of engagement in the Hispanic and Latino parents of autistic children and culturally adapt the protocol of Ayres Sensory Integration to improve participation and health outcomes.
- Trial name
- NCT06111092
- Testing
- Design Thinking, Focus Groups
- Volunteers
- 186 people, healthy volunteers welcome
- Sponsor
- Thomas Jefferson University
Communication
Avoiding Health Disparities When Collecting Patient Contextual Data for Clinical Care and Pragmatic Research
To assess whether the routine collection of patient-contextual data improves patient activation and communication, and can mitigate racial disparities in communication and engagement, we are inviting patients who have upcoming…
- Trial name
- NCT03766841
- Testing
- Facilitated Enrollment
- Where
- United States
- Volunteers
- 301 people, healthy volunteers welcome
- Sponsor
- Medical College of Wisconsin
Participation Satisfaction
Research Participant Perception of Care Project: Part II: Fielding and Validation of the Research Participant Perception Survey Derived From Focus Group-Identified Key Dimensions of the Research Participant Experience
Background: Understanding participants experiences as research volunteers is critical to improving the effectiveness of human participant protection programs and strengthening public trust in clinical research.
- Trial name
- NCT01129869
- Where
- United States
- Volunteers
- 743 people
- Sponsor
- National Institutes of Health Clinical Center (CC)
Brain Injuries, Traumatic
Safe@Home: A Self-Management Program for Individuals With TBI and Their Families
People who sustain moderate to severe traumatic brain injury (TBI) have an increased risk for unintentional injury and harm when resuming day to day activities in the home and community.
- Trial name
- NCT02893345
- Testing
- Safe@Home Intervention Group, Usual Care Group
- Where
- United States
- Volunteers
- 60 people
- Sponsor
- Shepherd Center, Atlanta GA
Apnea, Sleep, Brain Injury, Traumatic
Comparison of Sleep Apnea Assessment Strategies to Maximize TBI Rehabilitation Participation and Outcome
Background: Sleep disorders, including sleep apnea, are common after traumatic brain injury and affect recovery and negatively influence participation in rehabilitation.
- Trial name
- C-SAS (NCT03033901)
- Testing
- Polysomnography - Level 1 and Level 3, Actigraphy monitoring, Sleep Apnea Screening
- Where
- 6 sites in United States
- Volunteers
- 345 people
- Sponsor
- James A. Haley Veterans Administration Hospital
Congenital Heart Disease
The CHAPTER II Study - Congenital Heart Adolescents Participating in Transition Evaluation Research
Transition is the planned movement of teens with chronic conditions from child-centered to adult-oriented healthcare. National bodies have published detailed guidelines about the importance of helping teens move to adult…
- Trial name
- NCT01723332
- Testing
- Educational, Self management
- Where
- 2 sites in Canada
- Volunteers
- 120 people
- Sponsor
- University of Alberta
Atrial Fibrillation (AF), Cardiovascular Diseases
Empowering Veterans in Research Effectively Using Virtual Engagement Tools
Cardiovascular disease is the leading cause of death among Veterans. Clinical trials are essential for developing better treatments, but Veterans remain underrepresented in these studies due to barriers including limited health…
- Trial name
- EVERYVET (NCT07741955)
- Testing
- AI-Generated Avatar Videos for Clinical Trial Outreach
- Where
- United States
- Volunteers
- 100,000 people, healthy volunteers welcome
- Sponsor
- VA Office of Research and Development
Primary Immunodeficiencies, APECED
Participation in a Research Registry for Immune Disorders
Background: People with primary immune deficiency diseases (PIDD) have weak immune systems. This makes it hard for their bodies to fight infection.
- Conditions
- Primary Immunodeficiencies, APECED, CGD, Wiskott-Aldrich Syndrome
- Trial name
- NCT01953016
- Where
- United States
- Volunteers
- 716 people
- Sponsor
- National Human Genome Research Institute (NHGRI)
Gout
Gout in the ED and Improving Research Participation
The prevalence of gout has been steadily increasing over several decades and is correlated with the rising burden of obesity, chronic cardiac and renal disease; all conditions overrepresented in the Southeastern U.S.
- Trial name
- NCT04075903
- Testing
- Storytelling
- Where
- 4 sites in United States
- Volunteers
- 200 people
- Sponsor
- University of Alabama at Birmingham
Participation
Using Nudges to Recruit for Health-Related Research
The goal of this clinical trial is to examine the effect of using behavioral nudges in recruitment into a minimal risk interview study among healthy adult volunteers.
- Trial name
- NCT06857903
- Testing
- Recruitment nudges
- Where
- United States
- Volunteers
- 130 people, healthy volunteers welcome
- Sponsor
- University of Utah
Participation Rate, Patient, Clinical Trials
Patients' Refusal to Participate in Surgical Research: Prevalence, Attributed Factors, and How to Overcome
This study aims to investigate the prevalence of refusal of participation in surgical clinical trials in our community. Furthermore, it aims to highlight potential factors contributing to refusal of participation.
- Trial name
- NCT07838285
- Testing
- Questionnaire
- Where
- Egypt
- Volunteers
- 372 people
- Sponsor
- Mansoura University
Heart Failure
Factors Influencing Participation in PRADO and Telemedicine Interventions in Heart Failure
Patients with heart failure (HF), after hospitalization, present a marked fragility. Interventions improving the coordination of care actors at the time of discharge from hospitalization have been tested and have shown, in…
- Trial name
- PARTI-PARC (NCT05417490)
- Testing
- PRADO-IC, Remote monitoring
- Where
- France
- Volunteers
- 700 people
- Sponsor
- University Hospital, Montpellier
Developmental Disability, Development Delay
Electronic Patient-reported Outcomes (e-PROs) in Early Intervention
A major goal of early intervention (EI) is to employ a family-centered approach to helping children to optimally function at home and in the community. However, the effects of EI are poorly understood.
- Trial name
- NCT03904797
- Testing
- Young Children's Participation and Environment Measure (YC-PEM) electronic patient-reported outcome (e-PRO)
- Volunteers
- 149 people
- Sponsor
- University of Illinois Chicago