Clinical trials: Life Experiences
Type 1 Diabetes Mellitus
A Qualitative Study on CSII in Children and Adolescents Having Type 1 Diabetes
Using qualitative method; a qualitative case study using semi-structured interviews to explore patients' experiences. Study population of insulin pump patients aged 11-18 years old will be recruited from pediatrics with T1D at…
- Trial name
- NCT03066284
- Where
- Kuwait
- Volunteers
- 20 people
- Sponsor
- Dasman Diabetes Institute
Xeroderma Pigmentosum
Xeroderma Pigmentosum Patient Experiences
Xeroderma Pigmentosum (XP) is a rare skin condition that causes extreme sensitivity to the sun and an increased incidence of skin cancers.
- Trial name
- NCT01123694
- Testing
- Survey Study
- Where
- United States
- Volunteers
- 15 people
- Sponsor
- Henry Ford Health System
Hearing Loss, Bilateral or Unilateral
How Parents, Children, and Clinicians Experience Digital Health Tools in Pediatric Audiology
The goal of this observational study is to understand how children with hearing loss, their parents, and health care providers experience digital health questionnaires that are completed before audiology follow-up appointments.
- Trial name
- NCT06943976
- Volunteers
- 80 people, healthy volunteers welcome
- Sponsor
- Erasmus Medical Center
Type 1 Diabetes
A Longitudinal, Observational Study Comparing Real-World Experiences of Teplizumab-Treated and Untreated Participants With Stage 2 Type 1 Diabetes in the United States
This study is an observational, longitudinal, non-interventional real-world study in the United States. The study is meant to describe the experience of participants with a history of stage 2 type 1 diabetes who have been infused…
- Trial name
- TEPLI-QUEST (NCT07260110)
- Testing
- Teplizumab
- Where
- United States
- Volunteers
- 550 people
- Sponsor
- Sanofi
Visual Impairment
Assessment of Caries Impacts and Experiences in a Visually Impaired Versus Sighted Children Using CARIES-QC/A
The goal of this observational study is to to compare dental caries impacts and experience among visually impaired and sighted children.
- Trial name
- NCT07665047
- Volunteers
- 140 people
- Sponsor
- Cairo University
Orthodontic Appliance Complication
Orthodontic Treatment Impact on Life Experience of Adolescents With Fixed Orthodontic Appliances
This cross-sectional study aimed to investigate the impact of different fixed orthodontic appliances on the day-to-day life experience of adolescent patients at any stage of their orthodontic treatment.
- Trial name
- NCT06518733
- Testing
- appliance type
- Where
- Egypt
- Volunteers
- 364 people
- Sponsor
- Cairo University
Neonatology
Parental Real-life Experience During the Neonatal Transfer
The transfer of newborn child from Intensive Care Unit to maternity is very stressfull for parents.This anxiety could have repercussion on parents adaptation on their new environment, on parent's role and also on their relaional…
- Trial name
- NCT03046602
- Where
- France
- Volunteers
- 43 people
- Sponsor
- Fondation Hôpital Saint-Joseph
Anaplastic Lymphoma
Leukemic Phase of ALCL
Collecting data about the rare leukemic presentation of anaplastic lymphoma to study the characteristics of patients with leukemic phase of ALCL
- Trial name
- LEUK-ALCL (NCT04908059)
- Where
- France
- Volunteers
- 2 people
- Sponsor
- University Hospital, Strasbourg, France
Congenital Heart Disease, Psychological Well-being
The Living Experience of Hong Kong Chinese Adolescents With CHD.
This study aims to explore the impacts of CHD and its limitations on adolescents and the living experience of adolescents living with CHD.
- Conditions
- Congenital Heart Disease, Psychological Well-being, Quality of Life, Adolescent
- Trial name
- NCT03677232
- Where
- Hong Kong
- Volunteers
- 30 people
- Sponsor
- The University of Hong Kong
Pediatric Cancer
Video Inspired Discussions About Ethical Outcomes in Pediatrics
The goal of this clinical trial is to learn if the VIDEO-PEDS intervention works to improve Goals of Care communication between clinicians and parents of children with cancer.
- Trial name
- VIDEO-PEDS (NCT06786104)
- Testing
- VIDEO-PEDS, VIDEO-PEDS pilot, Focus Group
- Where
- 4 sites in United States
- Volunteers
- 567 people
- Sponsor
- Massachusetts General Hospital
Nervousness, Life Experiences
Behavioral Support Before Anesthesia
Studies shows that reduced nervousness before anaesthesia may improve a course past anaesthesia. Therefore it is interesting to investigate how we can best help patients shortly before anaesthesia.
- Trial name
- STØB (NCT01515683)
- Testing
- Only support from an anaesthetic nurse on the surgery ward, Support: a theatre nurse + an anaesthetic nurse, Support: a nurse from the ward + an anaesthetic nurse
- Where
- Denmark
- Volunteers
- 350 people
- Sponsor
- Odense University Hospital
Type 1 Diabetes
DiaBetter Together for Young Adults With Type 1 Diabetes
DiaBetter Together is a strengths-based peer support intervention delivered to young adults (age 17-25) by trained Peer Mentors (age 20-35) during the transition between pediatric and adult diabetes care.
- Trial name
- DiaBetter (NCT04247620)
- Testing
- DiaBetter Together, Peer Mentor Delivery
- Where
- United States
- Volunteers
- 144 people
- Sponsor
- Baylor College of Medicine
Experience, Life, Stress
The Use of the Diary in Neonatal Pathology: a Mixed-method Study for Collecting and Analyzing the Experience of Parents and Health Care Personnel.
The study is mixed-methods (qualitative + quantitative observational cross-sectional) and the aims are to explore the use of diaries by parents of newborns admitted to Neonatal Pathology and to describe some variables related to…
- Conditions
- Experience, Life, Stress, Depression, Postpartum, Support, Family
- Trial name
- DiaPaNeo (NCT06316193)
- Testing
- Diary
- Where
- Italy
- Volunteers
- 15 people, healthy volunteers welcome
- Sponsor
- IRCCS Ospedale San Raffaele
Lower Urinary Tract Symptoms (LUTS), Transition Care
Study of Transition in Real-life Experiences Affecting Micturition and Well-being in Adolescent Years
With this study, we would like to interview 16-25-year-olds who have experienced urinary problems since childhood and who are still experiencing symptoms in young adulthood.
- Conditions
- Lower Urinary Tract Symptoms (LUTS), Transition Care, Enuresis Nocturnal, Adverse Childhood Experiences
- Trial name
- STREAMWAY (NCT07339865)
- Testing
- Semi-structured in-depth interviews with standardized validated questionnaires, Completion of a urological time-line
- Where
- Belgium
- Volunteers
- 20 people
- Sponsor
- University Hospital, Ghent
Kidney Failure, Chronic, Anemia
Audit of the Effect of Changing From IV to SC Administration of ESA's in Haemodialysis Patients
The purpose of this study is to audit the effects of changing all hemodialysis patients from intravenous to subcutaneous administration of ESA's, to ensure that a cost-saving is achieved and that this does not occur at the…
- Trial name
- NCT00382044
- Testing
- Eprex; Neorecormon; Aranesp
- Where
- Australia
- Volunteers
- 150 people
- Sponsor
- Sir Charles Gairdner Hospital
Child Abuse, Child Neglect
Child-Parent Psychotherapy - a Feasibility Study for Children in Foster Care
Children in foster care have an increased risk of exposure to adverse experiences during childhood and across the lifespan. In current studies of interventions children in foster care are often excluded, or they are too few to be…
- Conditions
- Child Abuse, Child Neglect, Post-Traumatic Stress Disorder in Children, Parent-Child Relations
- Trial name
- NCT04519229
- Testing
- Child-Parent Psychotherapy
- Where
- Sweden
- Volunteers
- 20 people
- Sponsor
- Kronoberg County Council
Urinary Infection
The Painful Real-life Experience of the Child of Less Than Three Years During the Removal of the Collecting Bags in the Pediatric Urgency: What Strategy of Coverage?
Urinary infection is one of the most common bacterial infections in pediatrics and requires urine collections to be diagnosed. In France, among children under 3, urine samples are collected thanks to collecting bags.
- Trial name
- LINIPOCHE (NCT01659190)
- Testing
- Oiled-limestone liniment
- Where
- France
- Volunteers
- 136 people
- Sponsor
- University Hospital, Limoges
Rare Diseases
A Longitudinal Study on Family Adaptation and Relationship Dynamics in Pediatric Rare Diseases
Rare diseases in children can affect not only the child's health but also the well-being and relationships within the entire family.
- Trial name
- FAIR (NCT07497581)
- Where
- Switzerland
- Volunteers
- 240 people
- Sponsor
- Markus A. Landolt
Caffeine; Sleep Disorder
Influence of Caffeine Therapy in Preterm Infants
The development of sleep wake cycles is indicative of child's neurocognitive functions. Caffeine therapy is commonly used in neonatal intensive care units for treatment of apnea of prematurity (AOP), to reduce mechanical…
- Trial name
- NCT04376749
- Where
- Turkey (Türkiye)
- Volunteers
- 40 people
- Sponsor
- Marmara University
Depression in Adolescence, Adverse Childhood Experiences
Life Experiences in Adolescents and the Development of Skills
The primary objective of this study is to assess acquisition and retention of a Cognitive Behavioral Therapy (CBT)-based "cognitive restructuring" skill, among young adolescents (12-15 years of age) with elevated depression…
- Trial name
- LEADS (NCT04719897)
- Testing
- FIRST: Repairing Thoughts
- Where
- United States
- Volunteers
- 88 people
- Sponsor
- University of Pittsburgh