Clinical trials: Palliative Care
Multiple Sclerosis
Development and Evaluation of a New Palliative Care Service for People Severely Affected With Multiple Sclerosis (MS)
The primary purpose of this study is to develop, implement and conduct a preliminary evaluation of a new service for people who are severely affected by multiple sclerosis.
- Trial name
- NCT00364936
- Testing
- Palliative care service
- Where
- United Kingdom
- Volunteers
- 52 people
- Sponsor
- King's College London
Myelodysplastic Syndromes
Enhanced Palliative Care in MDS and AML
Objectives: The purpose of this study is to evaluate the impact of enhanced haematology palliative care services to the most symptomatic group of blood cancer patients, namely myelodysplastic syndrome (MDS) and acute myeloid…
- Trial name
- NCT04226768
- Testing
- Enhanced Haematology Palliative Care ("Fast-track") Group, Conventional Care
- Where
- Hong Kong
- Volunteers
- 90 people, healthy volunteers welcome
- Sponsor
- The University of Hong Kong
Depression in Adolescence
Evaluation of MoodRing on Improving the Quality of Depression Management in Adolescents
The MoodRing intervention is a mobile application for adolescents, parents, and an accompanying web-based clinician portal which enables adolescents to monitor their mood through the use of passively collected smartphone data.
- Trial name
- TECH-E (NCT05376358)
- Testing
- MoodRing App, Usual Care
- Where
- United States
- Volunteers
- 73 people
- Sponsor
- Ana Radovic
Terminal Cancer
Towards Cancer Patient Empowerment for Optimal Use of Antithrombotic Therapy at the End of Life
Despite the fact that antithrombotic therapy (ATT) has little or even negative effects on the well-being of cancer patients during their last year of life, stopping ATT is rare in clinical practice.
- Trial name
- SERENITY (NCT05706740)
- Testing
- Physician survey on antithrombotic medication during end-of-life care in cancer patients
- Where
- 12 sites in Denmark, France and 6 more
- Volunteers
- 467 people, healthy volunteers welcome
- Sponsor
- Johannes Gutenberg University Mainz
Cancer
Prognosis of Inpatients Evaluated for Palliative Radiotherapy
Understanding patient's prognosis is of utmost importance to determine radiotherapy's indication and dose/ fractionation. The investigators plan to conduct an observational study of prognosis of inpatients evaluated for…
- Trial name
- PROGRAD (NCT02312791)
- Where
- Brazil
- Volunteers
- 362 people
- Sponsor
- University of Sao Paulo
Xerostomia
Effectiveness of Three Different Oral Moisturizers in Palliative Care Patients.
This study compares the effectiveness of 3 different oral moisturizers; 17% watery solution of glycerol, OGT oral spray, Aequasyal, and a newly developed Product, Salient.
- Trial name
- NCT03400969
- Testing
- Glycerol 17%, Aequasyal (OGT), Salient (new product)
- Where
- Norway
- Volunteers
- 30 people
- Sponsor
- University of Bergen
Pediatrics
Digital-storytelling Intervention for Rural-dwelling Children
The overall purpose of this study is to test the feasibility of a web-based storytelling intervention for rural-dwelling children (ages 8-17) with serious advanced illnesses.
- Trial name
- NCT04665479
- Testing
- Web-based legacy-making intervention through digital storytelling
- Where
- United States
- Volunteers
- 50 people
- Sponsor
- Vanderbilt University
Palliative Care
Music Therapy for Palliative Care Patients
This study aims to find out if music therapy is effective in improving the quality of life of palliative care patients. It will do this by comparing palliative care patients who receive music therapy with those who do not receive…
- Trial name
- NCT02791048
- Testing
- Music therapy
- Where
- United Kingdom
- Volunteers
- 51 people
- Sponsor
- Queen's University, Belfast
Stroke
Turkish Validity and Reliability of the Expanded Rehabilitation Complexity Scale
The RCS is a tool that can assess the need for complex rehabilitation and objectively indicate that a patient may have difficulty functioning well at home or in the community if their medical needs are still high.
- Trial name
- NCT06573359
- Testing
- questionnaire
- Where
- Turkey (Türkiye)
- Volunteers
- 110 people
- Sponsor
- Istanbul Physical Medicine Rehabilitation Training and Research Hospital
Pain
Description of the Use of Subcutaneous Acetaminophen in Palliative Care Unit in France: Descriptive Questionnaire Survey
Acetaminophen is a drug commonly used in palliative care unit, for its antalgic and antipyretic effects. Several administration routes are possible but the use of the sub-cutaneous route is actually not supported by…
- Trial name
- EnPasc (NCT03349853)
- Volunteers
- 131 people
- Sponsor
- Centre Hospitalier Régional Metz-Thionville
Terminal Conditions, End of Life
Evaluation of Methods for Implementation of a Comfort Care Order Set
The overarching goal of this research program is to improve the quality of end-of-life care provided to Veterans dying in VA Medical Centers (VAMCs), by transferring the best practices of home hospice and palliative care for the…
- Trial name
- BEACON II (NCT02383173)
- Testing
- Basic Implementation Approach, Enhanced Implementation Approach
- Where
- United States
- Volunteers
- 134 people, healthy volunteers welcome
- Sponsor
- VA Office of Research and Development
Palliative Care
Complex Decisions Regarding Antithrombotic Therapy: the QUIET Study
"Complex decisions regarding antithrombotic therapy: the QUIET study" is a monocentric observational study without drug intervention, conducted through the administration of a questionnaire (survey).The aim of this study is to…
- Trial name
- QUIET (NCT07486154)
- Where
- Italy
- Volunteers
- 300 people
- Sponsor
- Fondazione Policlinico Universitario Agostino Gemelli IRCCS
Medication Adherence
Technology Enhanced Nurse Navigator Trial (TENN Trial)
The purpose of the Technology Enhanced Nurse Navigator Trial (TENN) Trial is to find the best way to provide breast cancer patients with information through a computer connected to the internet.
- Trial name
- TENN (NCT01596179)
- Testing
- Interactive navigational support, Internet access
- Where
- United States
- Volunteers
- 101 people
- Sponsor
- Mercy Medical Center
Palliative Radiotherapy, Radiotherapy, Intensity-Modulated
Advanced Techniques for Single-fraction Palliative Radiotherapy Versus ASPIRE-single
One third of patients treated in the radiation oncology departments are treated with palliative intent. These patients can be unwell due to their advanced disease and suffering from pain and other symptoms related to metastases.
- Trial name
- ASPIRE single (NCT04658537)
- Testing
- Radiation Therapy
- Where
- Australia
- Volunteers
- 100 people
- Sponsor
- Royal North Shore Hospital
Chronic Lymphocytic Leukemia, Myelodysplastic Syndromes
MyPal ePRO-based Early Palliative Care System in Adult Patients With Hematologic Malignancies
Randomized unblinded interventional clinical trial: Arm Intervention Experimental arm (n=150): Intervention group Administration of the MyPal ePRO system the intervention group will use the ePRO tools provided in the project.
- Trial name
- NCT04370457
- Testing
- Administration of the MyPal ePRO system
- Where
- Italy
- Volunteers
- 300 people
- Sponsor
- Centre for Research and Technology Hellas
Palliative Care
CALLiNGS Protocol: Care Across Locations Longitudinally in Navigation of Goals and Symptoms
The study intends to explore feasibility, acceptability, and quality of life outcomes from using web-conferencing technology to connect a hospital-based interdisciplinary pediatric palliative care with statewide field-based…
- Trial name
- CALLiNGS (NCT03999957)
- Testing
- Telehealth web conferencing
- Where
- 2 sites in United States
- Volunteers
- 30 people
- Sponsor
- University of Nebraska
Palliative Care
Contextualizing Care for Patients With a Serious Illness
When people become seriously ill, healthcare decisions are influenced not only by their medical condition, but also by their personal situation, values, wishes, and daily life circumstances.
- Trial name
- SVPII-TRAIN (NCT07764263)
- Testing
- Contextualized Care Communication Training
- Where
- Netherlands
- Volunteers
- 81 people, healthy volunteers welcome
- Sponsor
- Radboud University Medical Center
Palliative Care
A Family-Centered Intervention When a Parent is Cared for in Specialized Homecare
The overall purpose of this project is to evaluate a family-centered intervention (the Family Talk Intervention, by W. Beardslee) in families where a parent of children aged 6-19 years is seriously ill and cared for in…
- Trial name
- NCT03119545
- Testing
- Beardslee family centered intervention
- Where
- Sweden
- Volunteers
- 33 people
- Sponsor
- Ersta Sköndal University College
Spinal Muscular Atrophy 1
Palliative Care in Spinal Muscular Atrophy (SMA) 1
The purpose of this study is to evaluate the quality of supportive and palliative care for SMA type 1 patients.
- Trial name
- ASI1 (NCT01862042)
- Testing
- Follow-up diary and questionnaire
- Where
- France
- Volunteers
- 39 people
- Sponsor
- Assistance Publique - Hôpitaux de Paris
Cancer, Congenital Heart Disease
Supporting Patient Provider Communication in Paediatric Care
Children with Cancer or congenital heart disease (CHD) experience complex, physical, psychosocial and behavioural symptoms and problems due to the illness, treatment, and medical procedures.
- Trial name
- SiSom (NCT01280227)
- Testing
- SiSom
- Where
- Norway
- Volunteers
- 144 people
- Sponsor
- Oslo University Hospital