Clinical trials: Caregiver Quality of Life
Dependency on Medications Prescribed for Patient, Types of Seizures and Epileptic Syndromes
A Simulation-based Intervention for Caregivers of Children With Seizures
Caregivers of children with seizures receiving simulation based seizure management teaching in addition to the traditional seizure teaching will report more confidence with seizure management and demonstrate a higher level of…
- Trial name
- NCT01831063
- Testing
- Simulation
- Where
- Canada
- Volunteers
- 61 people
- Sponsor
- University of Calgary
LVAD Caregivers, LVAD (Left Ventricular Assist Device)
Compassion Strikes Back
Research has shown that LVAD patients and their caregivers typically experience increased mental health concerns and decreased quality of life following LVAD implantation and hospital discharge.
- Conditions
- LVAD Caregivers, LVAD (Left Ventricular Assist Device), Quality of Life (QOL), Self-Compassion
- Trial name
- NCT06988995
- Testing
- Information, Meeting
- Where
- United States
- Volunteers
- 40 people
- Sponsor
- University of Florida
Aging, SARS-CoV-2 Infection
Impact of the COVID-19 Pandemic on the Health Status of People Aged 75 and Over and Their Caregivers
The measures to control the transmissibility of the Covid-19 pandemic have changed the daily routines of the population, increasing sedentary lifestyles, decreasing outdoor physical activity and limiting contact with neighbors…
- Conditions
- Aging, SARS-CoV-2 Infection, Caregivers, Frailty
- Trial name
- CUIDAMOS+75 (NCT05249868)
- Testing
- Exposure SARS-CoV-2 Infection
- Where
- 2 sites in Spain
- Volunteers
- 1,035 people
- Sponsor
- Gerencia de Atención Primaria, Madrid
Cerebral Palsy (CP), Rehabilitation
Trial Examines Short-term Effects of Hippotherapy on Fascia Properties and Quality of Life in Children With CP.
The effects of hippotherapy on gross motor function, balance, and spasticity in children with cerebral palsy (CP) are well-documented, but its impact on the thoracolumbar fascia (TLF) remains unexplored area to date.
- Conditions
- Cerebral Palsy (CP), Rehabilitation, Motor Coordination or Function, Hippotherapy
- Trial name
- HYPPOTER25 (NCT07134582)
- Testing
- Hippotherapy 1x/week, Hippotherapy 2x/week
- Where
- Slovenia
- Volunteers
- 27 people
- Sponsor
- University Medical Centre Ljubljana
PTSD, Critical Illness
The Experiences of Children and Caregivers Given PICU Storybooks
1. To assess the acceptability and feasibility of a study design aimed at evaluating the efficacy of a newly developed intervention for children and their caregivers following discharge from PICU 2.
- Conditions
- PTSD, Critical Illness, Depression, Anxiety
- Trial name
- NCT04041401
- Testing
- PICU storybook
- Where
- United Kingdom
- Volunteers
- 24 people, healthy volunteers welcome
- Sponsor
- University of Surrey
Uncertainty, Advanced Cancer
Uncertainty in Illness in Palliative Care: an Intervention for Family Caregivers
Background: The increase of chronic diseases has reached an increase in the suffering of advanced diseases and an inability of health care systems to give access to the population that suffers them.
- Conditions
- Uncertainty, Advanced Cancer, Family Members, Quality of Life
- Trial name
- NCT03518970
- Testing
- Nursing intervention
- Volunteers
- 60 people
- Sponsor
- Universidad Nacional de Colombia
Type 1 Diabetes, T1D
DASH-Obesity: Explainable AI for Family-Centric Personalized Weight Control in Adolescents and Young Adults With Obesity and Chronic Conditions
This prospective single-arm feasibility study evaluates the Adhera Caring Digital Program for Obesity (ACDP-O), a family-centered digital health intervention designed to support adolescents and young adults with…
- Conditions
- Type 1 Diabetes, T1D, Obesity & Overweight, Obesity Type 2 Diabetes Mellitus
- Trial name
- DASH-Obesity (NCT07638345)
- Testing
- Adhera Caring Digital Program-Obesity (ACDP-O)
- Where
- Spain
- Volunteers
- 280 people, healthy volunteers welcome
- Sponsor
- Adhera Health, Inc.
Mild Cognitive Impairment, Caregiver Burden
A rTMS and Virtual Reality Based Cognitive Rehabilitation Program for MCI
This clinical trial is being conducted to see if brain stimulation and brain training together improves cognitive functioning and mood in older adults diagnosed with Mild Cognitive Impairment (MCI).
- Conditions
- Mild Cognitive Impairment, Caregiver Burden, Mental Health Issue, ADL
- Trial name
- rTMS+iVCT (NCT06024473)
- Testing
- rTMS, rTMS+iVCT
- Where
- United States
- Volunteers
- 50 people, healthy volunteers welcome
- Sponsor
- Central Arkansas Veterans Healthcare System
Head and Neck Cancer
Internet-based Support for Informal Caregivers of Patients With Head and Neck Cancer - Carer eSupport
The aim of this randomized controlled trial is to investigate the effects of internet-based support (Carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer.
- Trial name
- NCT06307418
- Testing
- Carer eSupport
- Where
- 4 sites in Sweden
- Volunteers
- 110 people
- Sponsor
- Uppsala University
Chronic Heart Failure
Acceptance and Commitment Therapy for Patients With Chronic Heart Failure and Their Caregivers on Their Quality of Life
This study is to examine whether group-based Acceptance and Commitment Therapy in the patient-caregiver dyads with Chronic Heart Failure is effective in improving dyadic health-related quality of life, dyadic psychological…
- Trial name
- NCT04917159
- Testing
- ACT (Acceptance and Commitment Therapy) plus brief CHF education, HE (Health Education)
- Where
- China
- Volunteers
- 362 people, healthy volunteers welcome
- Sponsor
- The Hong Kong Polytechnic University
Multiple Sclerosis
A Telemedicine Mindfulness-based Intervention for People With Multiple Sclerosis and Their Caregivers
The aim of the project is to investigate the impact of a multiple sclerosis specific telemedicine mindfulness-based Intervention on the quality of life of people with multiple sclerosis and their caregivers.
- Trial name
- NCT02364505
- Testing
- Telemedicine mindfulness-based intervention, Psycho-education intervention
- Where
- Italy
- Volunteers
- 156 people, healthy volunteers welcome
- Sponsor
- Fondazione Don Carlo Gnocchi ETS
Long-Term Care, Caregiver Burden
Holistic Self-Empowerment Care Intervention for Optimized Independent Living and Quality of Life: A Study Protocol
This protocol describes a pilot study evaluating the effectiveness of the Self-Empowerment Care Model in promoting independence and quality of life among frail older adults in Hong Kong.
- Trial name
- NCT06736782
- Testing
- Self-Empowerment Care Intervention Group, Control Group
- Where
- Hong Kong
- Volunteers
- 207 people
- Sponsor
- The University of Hong Kong
Alzheimer's Disease and Related Dementias, Quality of Life
Supporting Our Caregivers In ADRD Learning (SOCIAL)
Building on limitations of prior research, the investigators developed the Mindful and Self-Compassionate Care Program (MASC) to help caregivers of persons with Alzheimer Disease and Related Dementias (ADRD) manage stress…
- Conditions
- Alzheimer's Disease and Related Dementias, Quality of Life, Caregiver Stress
- Trial name
- SOCIAL (NCT06276023)
- Testing
- Mindful and Self-Compassionate Care Program (MASC), Health Education Program (HEP)
- Where
- United States
- Volunteers
- 82 people, healthy volunteers welcome
- Sponsor
- Massachusetts General Hospital
Cystic Fibrosis
Cystic Fibrosis- Children and Adults Tai Chi Study
Cystic fibrosis (CF) is a progressive disease. Symptoms include coughing, poor lung ventilation, recurrent infections, poor weight gain, diarrhoea, malnutrition, stress, frustration, depression, irritability, worry, insomnia…
- Trial name
- CFCATS2 (NCT02054377)
- Testing
- Tai chi
- Where
- United Kingdom
- Volunteers
- 51 people
- Sponsor
- London South Bank University
Parkinson's Disease
Global REsponsE During iNFusIon of a gEl With LevoDopa/Carbidopa
This multicenter, post marketing observational study (PMOS) was designed to evaluate the long-term effectiveness of levodopa/carbidopa intestinal gel (DUODOPA) on motor fluctuations (duration of OFF periods) in participants with…
- Trial name
- GREENFIELD (NCT01754129)
- Volunteers
- 148 people
- Sponsor
- AbbVie (prior sponsor, Abbott)
Chronic Hepatitis b
Cross Sectional Survey on the Burden and Impacts of Chronic Hepatitis B in the Rural Area of Niakhar, Senegal
This study aims at estimating the prevalence of chronic hepatitis B virus (HBV) infection in rural Senegal (area of Niakhar) and at evaluating the associated burden in terms of both health-related and socio-economic consequences.
- Trial name
- AMBASS (NCT03215732)
- Testing
- HBV testing with dried blood spots (DBS) technique
- Where
- Senegal
- Volunteers
- 3,119 people, healthy volunteers welcome
- Sponsor
- ANRS, Emerging Infectious Diseases
Cerebrovascular Disease
Quality of Life of Stable Stroke Survivors in Pakistan
In study the investigators sought to 1. Assess the quality of life experience in stable post stroke survivors in Pakistan and detail important factors influencing quality of life. 2.
- Trial name
- NCT02351778
- Volunteers
- 350 people
- Sponsor
- Aga Khan University
Cystic Fibrosis
Effects of a Telerehabilitation Approach in Children With Cystic Fibrosis
Patients with cystic fibrosis aged 6-13 will be recruited and randomized into two groups: one will receive telerehabilitation sessions including postural, breathing and high-intensity interval training exercises and one will be…
- Trial name
- NCT04683809
- Testing
- Telerehabilitation
- Volunteers
- 30 people
- Sponsor
- Marmara University
Dementia, Vascular, Dementia
Systematic Care for Informal Caregivers of Dementia Patients: An Efficient Approach?
The objective is to ascertain the potential efficiency of a systematic care programme for caregivers of dementia patients. The research questions are: What are the costs and benefits of the Systematic Care Programme - Dementia…
- Conditions
- Dementia, Vascular, Dementia, Alzheimer Disease, Lewy Body Disease
- Trial name
- NCT00147693
- Testing
- Diagnosis of caregivers' problems, Professional service: treatment of problems by counseling or practical support
- Where
- Netherlands
- Volunteers
- 304 people, healthy volunteers welcome
- Sponsor
- Radboud University Medical Center
Cerebral Palsy
the Use of Smart Mobile Application in Mothers With Cerebral Palsy Children
There are studies in the literature aimed at supporting parents who care for children who have Cerebral Palsy. Among these, the study conducted on the use of mobile applications in supporting parents has attracted attention in…
- Trial name
- NCT06102317
- Testing
- nursing consultancy with smartphone support
- Volunteers
- 48 people, healthy volunteers welcome
- Sponsor
- Dr. Behcet Uz Children's Hospital