Clinical trials: Carers
Post-intensive Care Syndrome, Transitional Care
Pilot Testing PICTURE-THIS
This is a single-center pilot study examining the feasibility and acceptability of a transitional rehabilitation intervention, PICTURE-THIS, among critical illness survivors and their families.
- Conditions
- Post-intensive Care Syndrome, Transitional Care, Critical Care, Health Services
- Trial name
- NCT06086301
- Testing
- PICTURE-THIS, Enhanced Usual Care, Run-In Phase
- Where
- United States
- Volunteers
- 42 people
- Sponsor
- University of Pittsburgh
ADHD - Attention Deficit Disorder With Hyperactivity
Parental Stress and Its Relationship With Perceived Social Support and Screen Time Among Caregivers of Children With Attention-Deficit/Hyperactivity Disorder
This study aims to assess parental stress and its relationship with perceived social support and screen time among caregivers of children with Attention Deficit Hyperactivity Disorder (ADHD).
- Trial name
- NCT07790432
- Where
- Egypt
- Volunteers
- 385 people
- Sponsor
- Sohag University
Health Literacy, Comprehension
Impact of AI Care Summaries on Caregiver Comprehension
The primary objective is to assess if an AI-generated plain language summary of an inpatient progress note can improve caregiver understanding of their child's hospitalization by measuring differences in Hospital Course…
- Conditions
- Health Literacy, Comprehension, Patient Satisfaction
- Trial name
- NCT07831018
- Testing
- AI Care Summary
- Where
- United States
- Volunteers
- 100 people
- Sponsor
- Children's National Research Institute
Mild Cognitive Impairment, Dementia
Cognitive Outcomes During COVID-19 confiNemeNt in Elderly and Their Caregivers Using Technologies for DEMentia
Coronavirus disease 2019 has forced worldwide the implementation of unprecedented restrictions to control its rapid spread and mitigate its impact.
- Trial name
- CONNECTDEM (NCT04385797)
- Testing
- Telephone interview
- Where
- Spain
- Volunteers
- 200 people
- Sponsor
- Fundación Pública Andaluza para la Investigación de Málaga en Biomedicina y Salud
Psychological Stresses
Strengths-Based Family Psychoeducation for Youth Psychosis
The onset of Psychosis forces family members to bear a heavy burden of care. The mental well-being of the family is so complicated that it is important to relieve their psychological stresses.
- Trial name
- NCT01731977
- Testing
- Strengths-based family psychoeducation
- Where
- 4 sites in Japan
- Volunteers
- 74 people
- Sponsor
- Nagoya City University
Dementia, Alzheimer Disease
Self-Directed Online Training for Chinese Caregivers
The proposed project seeks to develop an online self-directed learning (SDL) intervention program that seeks to improve caregiving and self-care skills among ethnic Chinese dementia caregivers.
- Trial name
- NCT03308032
- Testing
- Intervention, Control
- Volunteers
- 120 people, healthy volunteers welcome
- Sponsor
- Environment and Health Group, Inc.
Bipolar Disorder Family Members
A Psychoeducation Intervention for Caregivers of Patients With Bipolar Disorder
Bipolar disorder is a debilitating chronic illness characterized by periods of elation and depression. Since deinstitutionalization of the mentally ill over 40 years ago, families have become major caregivers for patients with…
- Trial name
- NCT02446509
- Testing
- Psychoeducation, Psychoeducation - Delayed
- Where
- United States
- Volunteers
- 12 people, healthy volunteers welcome
- Sponsor
- The University of Texas Health Science Center, Houston
Glioblastoma
Easing Psychosocial Burden for Informal Caregivers
The overall goal of this study is to determine the best time to offer Meaning-Centered Psychotherapy (MCP), an intervention that has proven to be helpful in improving spiritual well-being and decreasing existential distress among…
- Trial name
- NCT03454295
- Testing
- Focus Group, Meaning-Centered Psychotherapy for Cancer Caregivers / MCP-C, Enhanced Usual Care / EUC
- Where
- 3 sites in United States
- Volunteers
- 64 people, healthy volunteers welcome
- Sponsor
- Memorial Sloan Kettering Cancer Center
Mindfulness, Caregivers
Dyadic Mindfulness for People With Parkinson's Disease and Their Caregivers
The proposed two-arm randomized waitlist-controlled trial will use a mixed-methods design to investigate the effects of dyadic mindfulness on physio-psycho-spiritual outcomes in people with Parkinson's Disease (PwPD) and their…
- Conditions
- Mindfulness, Caregivers, Movement Disorders, Neurodegenerative Disease
- Trial name
- NCT06821230
- Testing
- Dyadic mindfulness
- Where
- Hong Kong
- Volunteers
- 200 people
- Sponsor
- The University of Hong Kong
Cerebral Palsy, Caregiver Burnout
Turkish Version of Caregiver Difficulties Scale: a Study of Reliability and Validity
As the life expectancy of individuals with Cerebral Palsy(CP) increases, their families' material, spiritual, physical and social difficulties increase, and in time, psychological and behavioral barriers occur in family members.
- Trial name
- NCT04037137
- Testing
- Questionnaire
- Where
- Turkey (Türkiye)
- Volunteers
- 80 people
- Sponsor
- Sanko University
Huntington Disease
Benchmarking Integrated Care for People Living With Huntington's Disease in England
The survey and full study information can be accessed here: https://southampton.qualtrics.com/jfe/form/SV_8iEedDJZy4xaiI6 The goal of this anonymous survey is to benchmark integrated care from the perspective of service users in…
- Trial name
- Integrate-HD (NCT05828992)
- Testing
- No intervention administered
- Where
- United Kingdom
- Volunteers
- 60 people, healthy volunteers welcome
- Sponsor
- University of Southampton
Healthy
Fitness and Well-being of Caregivers in the Hauts-de-France Region
The ageing of the population is accompanied by an increase in the frequency of chronic illnesses, leading to a rise in the number of caregivers.
- Trial name
- PRHCARER (NCT06832709)
- Testing
- a program of rehabilitation
- Where
- France
- Volunteers
- 54 people, healthy volunteers welcome
- Sponsor
- Lille University
Caregivers of Multi-pathological and Polypharmacy Adults
Safe Use of Medication at Home by Caregivers. Experimental Study
Experimental study to test the effectiveness of a psychoeducational intervention using virtual reality, aimed at caregivers of multi-pathological and polypharmacy persons to promote safer medication use at home.
- Trial name
- NCT05247801
- Testing
- Psychoeducational intervention for safe medication use at home + Medication dosing device, Medication dosing device
- Where
- Spain
- Volunteers
- 142 people, healthy volunteers welcome
- Sponsor
- Universidad Miguel Hernandez de Elche
Dementia (Diagnosis)
DemTool - Supporting Life With Dementia
This study will investigate the effects of a Danish psychosocial intervention, specifically the DemTool - supporting life with dementia, on quality of life and caregiver strain in family caregivers of people with dementia.
- Trial name
- DemTool (NCT07355829)
- Testing
- Life with dementia in the community - Support group for family caregivers, Life with dementia in the community - Group course, Life with dementia in a care home- Group course
- Where
- Denmark
- Volunteers
- 272 people
- Sponsor
- Danish Dementia Research Centre
Depression, Anxiety
Effects of MSC Intervention on the Dyadic Mental Health of Lung Cancer Patients and Their Caregivers
The incidence and mortality of lung cancer ranks first among cancers in the world, and the five-year survival rate of lung cancer patients is only 15% to 30%.
- Trial name
- NCT04795700
- Testing
- MSC intervention
- Where
- China
- Volunteers
- 36 people
- Sponsor
- Central South University
Stroke, Acute, Stroke, Ischemic
Personalized Patient and Caregiver Education After Stroke
This is a randomized pilot trial to evaluate the impact of a customizable stroke education app (vs standard of care discharge education) on patient satisfaction and education retention.
- Conditions
- Stroke, Acute, Stroke, Ischemic, Stroke
- Trial name
- MyStroke (NCT05118503)
- Testing
- Customized education, Standard of care discharge education
- Where
- United States
- Volunteers
- 120 people
- Sponsor
- University of Pennsylvania
Alzheimer Disease
SAGE-LEAF: Reducing Burden in Alzheimer's Disease Caregivers Through Positive Emotion Regulation and Virtual Support
The goal of the proposed study, is to adapt a positive emotion intervention for Alzheimer's Disease (AD) caregivers into a self-guided online format that incorporates social connection components and adaptive system feedback…
- Trial name
- SAGE-LEAF (NCT05562583)
- Testing
- SAGE LEAF
- Where
- United States
- Volunteers
- 15 people
- Sponsor
- BrightOutcome
Neurocognitive Disorders, Alzheimer Disease
Integration of Health Information Technology and Promotion of Personhood in Family-Centered Dementia Care
Alzheimer's disease and related dementias (ADRD) are leading causes of disability and often result in communication deficits of the person with dementia (PWD) that can complicate ADRD caregiving and clinical care.
- Conditions
- Neurocognitive Disorders, Alzheimer Disease, Caregiver
- Trial name
- NCT04571502
- Testing
- My PATI ( Person Assisted Touchscreen Interface)
- Where
- 2 sites in United States
- Volunteers
- 42 people
- Sponsor
- Florida International University
Knee Arthroplasty
A Holistic Evaluation of the Effects of Healing Nursing Care Interventions on Frail Patient Undergoing Knee Arthroplasty and Their Caregivers
This study was designed to holistically examine the effects of curative nursing care practices based on human caring theory on frail patients and their caregivers undergoing knee arthroplasty.
- Trial name
- NCT07201454
- Testing
- nursing care
- Where
- Turkey (Türkiye)
- Volunteers
- 100 people, healthy volunteers welcome
- Sponsor
- Ataturk University
Cerebral Palsy (CP)
Metacognitive Strategy Training Intervention for Transition-Age Youth With Cerebral Palsy
This exploratory randomized controlled trial will examine the feasibility and preliminary effects of a remote PREP intervention compared to an attention control for transition-age youth with cerebral palsy and their caregivers.
- Trial name
- NCT07424079
- Testing
- Pathways and Resources for Engagement and Participation, Attention Control Condition
- Where
- United States
- Volunteers
- 24 people
- Sponsor
- University of Missouri-Columbia
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