Clinical trials: Carers
Sedentary Behavior
A BCT Intervention for an Hourly Activity Habit Among Caregivers for Persons With AD/ADRD
This 12-week trial will test the efficacy of a personalized, multi-component, personalized text-message delivered behavior change technique (BCT) intervention to encourage habitual hourly physical activity among care providers of…
- Trial name
- NCT06801912
- Testing
- Behavior Change Technique Package
- Where
- United States
- Volunteers
- 100 people, healthy volunteers welcome
- Sponsor
- Northwell Health
Age-related Cognitive Decline
Impact of Formal Home Help on Quality of Life for Caregivers of Elderly Patients With Neurocognitive Impairment
The purpose of this prospective monocenter observational study is to assess the impact of the first introduction of formal home help (personalized autonomy allowance for seniors) on the quality of life of home caregivers of…
- Trial name
- PIAF-QVA (NCT04732312)
- Testing
- Home help
- Where
- France
- Volunteers
- 12 people
- Sponsor
- Groupe Hospitalier de la Region de Mulhouse et Sud Alsace
End Stage Disease
Comparison Between the Assessment of Anxious and Depressive Symptomology
In palliative care, anxiety and depression in advanced cancer are under evaluated, under diagnosed and therefore under treated. 5 to 30% of patients present anxious and depressive disorders. Physical symptoms are easy to assess.
- Trial name
- EDAPAL (NCT04148924)
- Testing
- Questionnaire, Medical staff questionnaire
- Where
- France
- Volunteers
- 100 people, healthy volunteers welcome
- Sponsor
- Hospices Civils de Lyon
Cerebral Palsy, Collaborative Intervention Process
Effectiveness of Family-Professional Collaboration on Functional Goals Achievement of Children With Cerebral Palsy and Caregivers' Quality of Life and Burden
The aim of this study is to examine the effect of implanting the family-professional collaboration practice model on the functional goals achievement of children with CP and their caregivers' quality of life and burden.
- Conditions
- Cerebral Palsy, Collaborative Intervention Process, Functional Goals Achievement
- Trial name
- NCT05709080
- Testing
- family-professional collaboration practice model
- Where
- Saudi Arabia
- Volunteers
- 54 people
- Sponsor
- King Saud University
Short Bowel Syndrome, Malabsorption
Home Parenteral Nutrition (HPN) Families' Mobile Distance Connections to Care Research
The purpose of this study is to test Mobile Technologies in Assisting Patients \& Family Caregivers in Healthy Living and complex home care by connecting to information and professionals from a distance.
- Conditions
- Short Bowel Syndrome, Malabsorption, Malnutrition
- Trial name
- NCT01900288
- Testing
- HPN Group Clinic Appointments using Mobile Devices (experimental)
- Where
- United States
- Volunteers
- 121 people
- Sponsor
- University of Kansas Medical Center
Autism Spectrum Disorder
Generalized Training Program for Caregivers on the ESDM: PEGASE
The main objective of the study is to evaluate the effectiveness of a parent's training program (name PEGASE) of young children (aged 2 to 4 years) with Autism Spectrum Disorders.
- Trial name
- PEGASE (NCT03769571)
- Testing
- Parental coaching program at ESDM (P-ESDM)
- Where
- France
- Volunteers
- 30 people
- Sponsor
- Assistance Publique Hopitaux De Marseille
Infections
EXPERIMENTAL STUDY A.R.C.O. (CANCER CAREGIVER REMOTE ASSISTANCE)TELEHEALTH HOME MEDICATION VS/OUTPATIENT MEDICATION OF CENTRAL VENOUS CATHETER PICC (PERIPHERALLY INSERTED CENTRAL VENOUS CATHETER)
Cancer patients need central venous access according to the different types of chemotherapy and support drugs for their treatment path.
- Trial name
- ARCO (NCT05880420)
- Testing
- Caregiver operations with medication accessories, Nurse operations with medication accessories
- Where
- Italy
- Volunteers
- 27 people
- Sponsor
- Regina Elena Cancer Institute
Wiskott-Aldrich Syndrome
Targeted Literature Review and Subject Interviews in Wiskott-Aldrich Syndrome (WAS)
WAS is a rare primary immune deficiency disease caused by genetic mutation and is more common in males than females. The purpose of this study is to understand experiences of WAS subjects and caregivers to identify important…
- Trial name
- NCT03399461
- Testing
- Patient Interview guide, Caregiver interview guide, Sociodemographic questionnaire
- Where
- United States
- Volunteers
- 19 people
- Sponsor
- GlaxoSmithKline
Caregiver Burnout
Implementing a Family Caregiver Checklist in Primary Care: A Pilot Study
The goal of this project is to pilot test CHEC (Collaborative Healthcare Encounters with Caregivers) in primary care. CHEC is brief intervention with two components: 1) a checklist to identify the needs and concerns of…
- Trial name
- NCT04946942
- Testing
- Collaborative Healthcare Encounters with Caregivers (CHEC), Usual Care
- Where
- United States
- Volunteers
- 113 people, healthy volunteers welcome
- Sponsor
- Weill Medical College of Cornell University
PARKINSON DISEASE (Disorder), Caregiver Burden
Effect of Artificial Intelligent-based Training and Benson Relaxation Exercises on Caregiver Burden and Stress Levels in Caregivers of Patients With Parkinson's Disease
The aim of this study is to evaluate the effect of artificial intelligence-supported training and the Benson relaxation exercise on the care burden and stress levels of caregivers of people with Parkinson's disease.
- Conditions
- PARKINSON DISEASE (Disorder), Caregiver Burden, Caregiver Stress
- Trial name
- NCT07876830
- Testing
- artificial intelligent-based training, artificial intelligent-based Benson's relaxation exercise
- Volunteers
- 102 people, healthy volunteers welcome
- Sponsor
- Ataturk University
Inflammatory Bowel Disease (Crohn's Disease and Ulcerative Colitis)
Spiritual Needs of European Patients With Inflammatory Bowel Disease and Their Caregivers
A European-wide cross-sectional non-interventional study, initiated by a pilot study in Italy, will be conducted. The first phase of the pilot study is a 6-step translation, adaptation, and validation of the extended version of…
- Trial name
- Spirit@IBD (NCT07020481)
- Volunteers
- 1,000 people
- Sponsor
- University of Padova
Caregiver Stress in Chronic Mental Illness, Psychosocial Burden in Psychiatric Caregivers
Effect of a Mindfulness-Based Stress Reduction Program on Caregivers
This study is designed to investigate the effects of a Mindfulness-Based Stress Reduction (MBSR) program on cognitive control and flexibility, psychological well-being, and self-compassion among primary caregivers of individuals…
- Conditions
- Caregiver Stress in Chronic Mental Illness, Psychosocial Burden in Psychiatric Caregivers, Chronic Mental Illness Caregiving, Cognitive and Emotional Outcomes in Caregivers
- Trial name
- MBSR-CG (NCT07322081)
- Testing
- The Mindfulness-Based Stress Reduction program consists of structured mindfulness practices, psychoeducation, and experiential exercises delivered to caregivers., Usual Care Group
- Where
- Turkey (Türkiye)
- Volunteers
- 60 people, healthy volunteers welcome
- Sponsor
- Aydin Adnan Menderes University
Dementia
"Living Together With Dementia"_Creation and Validation of a Training Program for Family Caregivers of People With Dementia to Live at Home
This study aims to experimentally evaluate the training program for family caregivers of people with dementia_"Living together with Dementia."
- Trial name
- NCT03015428
- Testing
- psychoeducation
- Where
- Portugal
- Volunteers
- 25 people, healthy volunteers welcome
- Sponsor
- Centro Hospitalar De São João, E.P.E.
Multiple Myeloma (MM), Hematologic Neoplasm
Factors Associated With Health-related Quality of Life and Social Participation of Patients With Multiple Myeloma and Their Caregivers
Individuals with multiple myeloma (MM) are vulnerable because of the effects of systemic organ damage and the side effects of treatment.
- Trial name
- MMYLIFE (NCT07014865)
- Where
- Italy
- Volunteers
- 190 people
- Sponsor
- Azienda USL Reggio Emilia - IRCCS
Telemedicine
Super-Supporters - Virtual Care Technology Navigators
The Super-Supporter Program is designed to provide pre-visit support to patients who are at risk of not being able to participate in Virtual Care modalities (specifically, Clinical Video Visits).
- Trial name
- NCT06841081
- Testing
- Enhanced Usual Care, Super Supporter Support
- Where
- 2 sites in United States
- Volunteers
- 1,111 people, healthy volunteers welcome
- Sponsor
- Wake Forest University Health Sciences
Autism Spectrum Disorder
Incredible Years Program for Parents of Children with Autism
Early intervention for children with Autism Spectrum Disorder (ASD), particularly with parent involvement, is beneficial for both children and their families.
- Trial name
- IY-ASD (NCT03300128)
- Testing
- Incredible Years - ASD, Circle of Parents
- Where
- United States
- Volunteers
- 27 people, healthy volunteers welcome
- Sponsor
- University of Maryland, Baltimore
Feeding Difficulties, Remote Patient Monitoring
Parent Tube Weaning Interviews
Recent developments in remote monitoring software can provide a proactive means for data transfer for healthcare teams to communicate with families regarding activities like weaning from feeding tubes.
- Conditions
- Feeding Difficulties, Remote Patient Monitoring, Pediatric Feeding Disorders
- Trial name
- NCT07054983
- Testing
- Qualitative Research Interview
- Where
- United States
- Volunteers
- 15 people
- Sponsor
- Children's Mercy Hospital Kansas City
Quality of Life, Cardiology
Implementation of a System to Measure the Quality of Life of Patients and Caregivers: a First Experiment in Cardiology at the Clermont-Ferrand University Hospital
Objectives: Measure the quality of life score in the post-interventional care pathway for patients with cardiology, using the EQ-5D-5L; measure caregivers' feelings about their work using the SAPHORA-Job; testing the feasibility…
- Trial name
- QALY-SATIS (NCT07680270)
- Testing
- quality of life questionnaire
- Where
- France
- Volunteers
- 1,124 people
- Sponsor
- University Hospital, Clermont-Ferrand
Concurrent Disorders
Evaluating the Effectiveness of Motivational Interviewing and a Dialectical Therapy Skills- Based Intervention for Youth
The purpose of this study is to evaluate the preliminary effectiveness and feasibility of an integrated treatment approach for youth with concurrent disorders.
- Trial name
- NCT01656473
- Testing
- MI and DBT
- Where
- Canada
- Volunteers
- 48 people
- Sponsor
- Centre for Addiction and Mental Health
Gastrointestinal Neoplasm Malignant, Caregiver Burden
Telephone Support in Advanced Gastrointestinal Cancer
The goal of this clinical trial is to see if telephone support programs help patients and their family caregivers adjust to advanced gastrointestinal cancer.
- Trial name
- NCT06532877
- Testing
- Acceptance and Commitment Therapy, Education/Support
- Where
- 4 sites in United States
- Volunteers
- 488 people
- Sponsor
- Indiana University
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