Clinical trials: Carers
Dysphagia
Poster on Dysphagia-specific Food Procedures: Usability and Impact
The aim of this study is to evaluate the use of a poster containing information on dysphagia-specific food procedures at two levels: utility from the point of view of patients' caregivers, and impact on patients' health.
- Trial name
- DYSPHAGIA (NCT03820791)
- Testing
- Placement of a poster in patients' rooms
- Where
- Portugal
- Volunteers
- 60 people
- Sponsor
- Universidade do Porto
Chronic Obstructive Pulmonary Disease (COPD)
Palliation of Dyspnea in Advanced Chronic Obstructive Pulmonary Disease (COPD)
Chronic Obstructive Pulmonary Disease (COPD) affects at least 750,000 Canadians and is currently the 4th leading cause of death in Canada.
- Trial name
- ROS-003 (NCT00982891)
- Testing
- Opioid (morphine sulphate) in low dose
- Where
- 3 sites in Canada
- Volunteers
- 45 people
- Sponsor
- Nova Scotia Health Authority
Psychological
Testing the Feasibility of an Online Guided-writing Intervention Designed for Informal Caregivers of People With Parkinson's Disease
When informal caregivers of people with Parkinson's disease treat themselves harshly, they can experience psychological distress.
- Trial name
- NCT07804953
- Testing
- An online guided-writing intervention that uses guidance based on self-compassion principles
- Where
- United Kingdom
- Volunteers
- 47 people
- Sponsor
- University of Reading
Parent-Child Relations
Evaluating an Online Parenting Intervention for Caregivers of Infants and Young Children
The goal of this clinical trial is to evaluate the effectiveness of the online modality of the Make the Connection (MTC) program in caregivers of infants and young children.
- Trial name
- NCT05770414
- Testing
- Make the Connection® Online Program
- Where
- Canada
- Volunteers
- 200 people
- Sponsor
- University of Ottawa
Multiple Chronic Conditions, Family Members
Black Health Identification Program (B-HIP)
Nearly 69% of African American (AA) Medicare beneficiaries have multiple chronic conditions (MCCs) such as cancer and cardiopulmonary diseases.
- Trial name
- NCT05129709
- Testing
- "My Health Priorities" Identification Program
- Where
- United States
- Volunteers
- 30 people
- Sponsor
- University of Alabama at Birmingham
Multiple Sclerosis
Impact of Multiple Sclerosis From the Viewpoint of the Patients and Their Caregivers
Patients with chronic illness and their relatives have exhaustive and specific experience of healthcare and the health service.These unique experiences must be taken into account for quality of care management assessment.
- Trial name
- AQUASEP (NCT02388334)
- Testing
- to develop standardized questionnaires
- Where
- France
- Volunteers
- 1,080 people
- Sponsor
- Rennes University Hospital
Glioblastomas, Sarcoma
Feasibility and Preliminary Efficacy of a Mindfulness-based Intervention for Children and Young Adults With High Grade or High-Risk Cancer and Their Caregivers
Background: People cope with cancer in different ways. Mindfulness means focusing on the present moment with an open mind. Researchers want to see if this can help children and young adults with a high-grade high-risk cancer with…
- Conditions
- Glioblastomas, Sarcoma, Astrocytoma, Brain Cancer
- Trial name
- NCT03538587
- Testing
- Enhanced Mindfulness Intervention, Psychoeducation
- Where
- United States
- Volunteers
- 10 people, healthy volunteers welcome
- Sponsor
- National Cancer Institute (NCI)
Caregiver Distress, Job Stress
Caregiver Self-Management of Stress
Unpaid informal caregivers (CGs), such as family and friends, who are also employed may be at significant risk of experiencing burden and stress.
- Trial name
- Caregiver SOS (NCT04337021)
- Testing
- Caregiver SOS
- Where
- 2 sites in United States
- Volunteers
- 199 people, healthy volunteers welcome
- Sponsor
- VA Office of Research and Development
Stress, Quality of Life
Caregiver Protocol for Remotely Improving, Monitoring, and Extending Quality of Life
The purpose of this study is to test an intervention to improve health promoting behaviors in family caregivers of patients receiving cancer therapy
- Conditions
- Stress, Quality of Life, Sleep Disturbance
- Trial name
- C-PRIME (NCT05379933)
- Testing
- Remote health coaching to improve self-care behaviors
- Where
- United States
- Volunteers
- 33 people, healthy volunteers welcome
- Sponsor
- H. Lee Moffitt Cancer Center and Research Institute
Quality of Life
Effects of a Self-care Educational Program Via Telerehabilitation in Caregivers
The purpose of this study is to evaluate the effects of a self-care educational program via telerehabilitation on the quality of life, burden, stress, pain, and depression of caregivers of people with ALS.
- Trial name
- NCT05884034
- Testing
- Telerehabilitation, Education
- Where
- Brazil
- Volunteers
- 22 people, healthy volunteers welcome
- Sponsor
- Universidade Federal do Rio Grande do Norte
Diabetes Mellitus, High Blood Pressure
Comparative Effectiveness of Family vs. Individually Focused Diabetes Education and Support
The objective of this study is to compare the effectiveness of a novel program-Family Support for Health Action (FAM-ACT) - to individual patient-focused diabetes self-management education and support (I-DSMES).
- Conditions
- Diabetes Mellitus, High Blood Pressure, High Blood Sugar, Hypertension
- Trial name
- NCT03812614
- Testing
- FAM ACT, I-DSMES
- Where
- 2 sites in United States
- Volunteers
- 444 people
- Sponsor
- University of Pittsburgh
Dementia Caregiver
Dementia Family Caregiver Study
The proposed study will test a 3-month, community health worker (CHW) delivered home visit, culturally and language-appropriate intervention for ethnic and underserved dementia family caregivers of persons with dementia (PWD)…
- Trial name
- NCT04894006
- Testing
- Community Health Worker (CHW) Home Visit Intervention, Attention Control Group with WIoT Technology, Usual Care
- Where
- United States
- Volunteers
- 332 people, healthy volunteers welcome
- Sponsor
- University of California, Irvine
Advanced Cancer
ALIGN for Older Adults With Cancer in SNFs
The goal of this clinical trial is to learn if it is possible to deliver a palliative care intervention called ALIGN (Assessing and Listening to Individual Goals and Needs) to hospitalized older adults with advanced cancer who…
- Trial name
- ALIGN (NCT06616298)
- Testing
- Assessing and Listening to Individual Goals and Needs (ALIGN)
- Where
- United States
- Volunteers
- 120 people
- Sponsor
- University of Colorado, Denver
Caregiver Stress
Measuring the Effectiveness of Self-Care Sampler for Family Care Partners in Reducing Caregiver Stress
To determine the effectiveness of the Self-care Sampler for Family Care Partners program in reducing caregiver stress over the 6-week program period.
- Trial name
- NCT05390333
- Testing
- Self-Care Sampler for Family Carer Partners
- Where
- United States
- Volunteers
- 19 people, healthy volunteers welcome
- Sponsor
- Dartmouth-Hitchcock Medical Center
Child Malnutrition
An Intervention for Primary Caregivers to Improve Outcomes in Children With Severe Malnutrition
This cluster-randomized controlled trial will evaluate the effectiveness of a four-day hospital-based intervention program for primary caregivers of children with severe malnutrition.
- Trial name
- NCT03072433
- Testing
- Counseling Intervention Package, Standard of Care
- Where
- Malawi
- Volunteers
- 181 people
- Sponsor
- The Hospital for Sick Children
Alzheimer's Disease, Dementia
Reducing Disabilities in Alzheimer's Disease (RDAD) Translation in Area Agencies on Aging (AAAs)
The University of Washington's Northwest Research Group on Aging is partnering with Area Agencies on Aging (AAA) in Washington and Oregon to complete this translational investigation of RDAD (Reducing Disabilities in Alzheimer's…
- Conditions
- Alzheimer's Disease, Dementia, Memory Impairment, Cognitive Impairment
- Trial name
- RDAD (NCT01708304)
- Testing
- RDAD
- Where
- United States
- Volunteers
- 510 people
- Sponsor
- University of Washington
Alzheimer's Disease, Dementia
Care Management for Patients With Alzheimer Disease and Their Family Caregivers
This is a clinical trial to test the effectiveness of current guideline for the care of older adults with Alzheimer's disease. The study focuses on the primary care setting using a nurse care manager to facilitate guideline-level…
- Trial name
- NCT00246896
- Testing
- care management
- Where
- United States
- Volunteers
- 220 people
- Sponsor
- Agency for Healthcare Research and Quality (AHRQ)
Pediatric Surgical Procedures
Adolescent Surgery Roadmap Feasibility and Acceptability Study
The goal of this clinical trial is to test the feasibility and acceptability of using a mobile health app, Ane-Roadmap, designed to support adolescents (ages 12-17) undergoing painful surgeries and their caregivers.
- Trial name
- Ane-Roadmap (NCT06991673)
- Testing
- Behavioral Treatment
- Where
- 3 sites in United States
- Volunteers
- 100 people
- Sponsor
- University of Michigan
Maltreatment by Parent
Connected Through Coaching for Flourishing Families
Despite the known association between the quality of participant relational engagement with service providers and clinical outcomes, limited studies have examined caregiver Relational Responsiveness (RR) as a mechanism to achieve…
- Trial name
- CCFF (NCT06145451)
- Testing
- Family Success Network
- Where
- 3 sites in United States
- Volunteers
- 612 people, healthy volunteers welcome
- Sponsor
- University of Pittsburgh
Physical Activity, Sleep
Sleep and Physical Activity in Patient and Caregiver Dyads Following Allogeneic Hematopoietic Cell Transplantation
To understand the changes in health-related quality of life of patients and caregivers after allogeneic hematopoietic cell transplantation.
- Conditions
- Physical Activity, Sleep, Allogenic Hematopoietic Cell Transplant
- Trial name
- NCT07140770
- Testing
- Fitbit, Questionnaire
- Where
- United States
- Volunteers
- 86 people
- Sponsor
- M.D. Anderson Cancer Center
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