Clinical trials: Carers
NMO Spectrum Disorder
ACT with NMOSD Patients and Caregivers Pilot Study
This study will examine the effectiveness of a neuromyelitis optics spectrum disorder (NMOSD) specific Acceptance and Commitment Therapy (ACT) intervention at reducing anxiety and depression in individuals with NMOSD and their…
- Trial name
- NCT05840055
- Testing
- Acceptance and Commitment Therapy
- Where
- United States
- Volunteers
- 43 people, healthy volunteers welcome
- Sponsor
- Thomas Jefferson University
Multiple Sclerosis
A Dyadic Approach for Promoting Physical Activity Among People with MS and Their Support Partners
Both people with multiple sclerosis (MS) and their family caregivers experience the impact of this neurodegenerative disease on their health and well-being.
- Trial name
- PAT-MS (NCT04267185)
- Testing
- Physical Activity Together for PwMS and their CGs (PAT-MS)
- Where
- Canada
- Volunteers
- 22 people
- Sponsor
- University of Ottawa
Child Development
Implementation and Adoption of Care for Child Development in Day Care Centers
Background: Responsive stimulation and/or enhanced nutrition interventions delivered to children through health programs shows improved cognitive, language, and motor, and the social-emotional status.
- Trial name
- NCT02545491
- Testing
- Care for Child Development (CCD) program, Infant and Young Child feeding training by World Vision
- Where
- Lebanon
- Volunteers
- 136 people, healthy volunteers welcome
- Sponsor
- American University of Beirut Medical Center
Post Hematopoietic Stem Cell Transplantation
Adaptation of Skills Training Manuals for Patients Receiving Hematopoietic Stem Cell Transplantation and Their Caregivers
The purpose of this study is to see what the patients perceptions are of the Coping Together manuals during the first 100 days after their Hematopoietic Stem Cell Transplantation (HSCT), and if they would make any changes to…
- Trial name
- NCT02928185
- Testing
- semi-structured interviews
- Where
- United States
- Volunteers
- 41 people, healthy volunteers welcome
- Sponsor
- Memorial Sloan Kettering Cancer Center
Lung Carcinoma
Telephone-based Physical Activity Coaching or Self Monitored Physical Activity to Improve Physical Function in Older Adults Who Are Undergoing Surgery for Lung Cancer and Their Caregivers
This clinical trial compares telephone-based physical activity coaching to self monitored physical activity for improving physical function in older adults who are undergoing surgery for lung cancer and their caregivers.
- Trial name
- NCT06196008
- Testing
- Educational Intervention, Exercise Intervention, Medical Device Usage and Evaluation
- Where
- 16 sites in United States
- Volunteers
- 382 people, healthy volunteers welcome
- Sponsor
- City of Hope Medical Center
Epilepsy
COPE Intervention for Parents of Children With Epilepsy
The purpose of this study is to determine if the program Creating Opportunities for Parent Empowerment (COPE) is feasible to administer to parents of children with neurological conditions.
- Trial name
- NCT00767026
- Testing
- COPE (Creating Opportunities for Parent Empowerment), Standard education
- Where
- United States
- Volunteers
- 88 people
- Sponsor
- Boston Children's Hospital
Cardiovascular Diseases, Heart Diseases
Family Cardiac Caregiver Investigation to Evaluate Outcomes
The purpose of the FIT-O study was to estimate the prevalence of having a caregiver (paid and/or informal) among hospitalized cardiac patients by demographic factors such as patient age and race/ethnicity, and to link caregiver…
- Trial name
- FIT-O (NCT00990548)
- Where
- United States
- Volunteers
- 4,500 people
- Sponsor
- Columbia University
Mental Wellbeing
Evaluating Practices That Foster Care Partnerships and Wellbeing Among Informal Carers and Long-term Care Workers
WELL CARE aims to strengthen the supports available to informal carers and long-term care (LTC) workers for improving their resilience and mental wellbeing through care partnerships. The project consortium, lead by prof.
- Trial name
- WELLCARE (NCT07708649)
- Testing
- Solution Prototype in Germany, Solution Prototype in Italy, Solution Prototype in Slovenia
- Where
- 5 sites in Germany, Italy and 3 more
- Volunteers
- 450 people, healthy volunteers welcome
- Sponsor
- VU University of Amsterdam
Autism Spectrum Disorder
Effectiveness of Caregiver-involved Group-based NDBIs Intervention for Autistic Preschoolers
This is a study that investigate the feasibility, acceptability, and preliminary efficacy of NDBIs for autistic preschoolers delivered in a group-setting.
- Trial name
- NCT06221943
- Testing
- Group-based Naturalistic Developmental Behavioral Intervention, One-on-one Naturalistic Developmental Behavioral Intervention, ASD Diagnosis
- Where
- Taiwan
- Volunteers
- 40 people
- Sponsor
- National Taiwan University Hospital
Anxiety, Caregiver Burden
Telephone Acceptance and Commitment Therapy Intervention for Caregivers of Adults With ADRD
The purpose of the study is to test if Acceptance and Commitment Therapy (ACT), a behavioral intervention designed to increase psychological flexibility in the face of challenges, reduces anxiety associated psychological distress…
- Trial name
- (TACTICs) (NCT04780178)
- Testing
- Telephone Acceptance and Commitment Therapy Intervention for Caregivers of Adults with Alzheimer's Disease and Related Dementias
- Where
- United States
- Volunteers
- 60 people
- Sponsor
- Indiana University
Pain, Discomfort
Association Among Pain Perception, Severity of Temporomandibular Joint Dysfunction, and Spinal Health in Caregivers of Stroke Individuals
This study aims to examine pain perception, temporomandibular disorder severity and spine health in caregivers of stroke patients.
- Conditions
- Pain, Discomfort, Caregiver, Temporomandibular Disorder
- Trial name
- NCT06052735
- Testing
- Correlation research
- Where
- Turkey (Türkiye)
- Volunteers
- 64 people, healthy volunteers welcome
- Sponsor
- Tokat Gaziosmanpasa University
Chronic Critical Illness, Prolonged Mechanical Ventilation
Informing Decisions in Chronic Critical Illness: A Randomized Control Trial (RCT)
The purpose of this study is to test a communication intervention to support family decision-making for patients with chronic critical illness.
- Trial name
- NCT01230099
- Testing
- Supportive Information Team Group
- Where
- 4 sites in United States
- Volunteers
- 622 people
- Sponsor
- Icahn School of Medicine at Mount Sinai
Autism Spectrum Disorder
Diagnosis Disclosure Support for Caregivers of Children With Autism
The purpose of this randomized controlled pilot study is to develop and evaluate an online diagnosis disclosure support intervention for caregivers of 7- to 12-year-old children with autism spectrum disorder (ASD) in South Korea.
- Trial name
- NCT07328438
- Testing
- SHARE : Supporting Honest Autism Recognition and Education, One-session seminar
- Volunteers
- 40 people
- Sponsor
- Korea University
Music Therapy, Caregivers
Complementary Therapy in Home Palliative Care Patients and Their Caregivers
Introduction: There is an increase on cancer prevalence and, consequently, a higher number of people that require palliative care, making an influence on the family and the main carer.
- Conditions
- Music Therapy, Caregivers, Palliative Care
- Trial name
- COMTHECARE (NCT04052074)
- Testing
- Music Therapy, simulation with therapeutic education
- Where
- Spain
- Volunteers
- 160 people, healthy volunteers welcome
- Sponsor
- Andaluz Health Service
Lewy Bodies Disease, Depression Disorder
VOCALE LBD: Online Peer Support for Caregivers of People With Lewy Body Dementia
This study tests whether a tailored, fully asynchronous online group intervention (VOCALE LBD) reduces depression in family caregivers of people with Lewy Body Dementia (LBD), compared to standard educational materials.
- Conditions
- Lewy Bodies Disease, Depression Disorder, Caregiver Burden, Caregivers
- Trial name
- VOCALE LBD (NCT07637097)
- Testing
- VOCALE LBD: Virtual Online Communities for Aging Life Experiences: Lewy Body Dementia, Standard of Care Educational Materials
- Where
- United States
- Volunteers
- 220 people
- Sponsor
- University of Washington
Human Papillomavirus
Human Papilloma Virus (HPV) Vaccination Among Rural African American Primary Caregivers and Daughters
African American women living in the rural South are twice as likely as Caucasian women to develop cervical cancer and die of invasive cervical cancer at a higher rate than any other racial/ethnic group in the US (1).
- Trial name
- NCT00937287
- Testing
- There is no intervention in this study.
- Where
- United States
- Volunteers
- 410 people, healthy volunteers welcome
- Sponsor
- University of Georgia
Childhood Cancer
Online Problem Solving Skills Training
Parents of children newly diagnosed with cancer experience depression and anxiety, especially in the first several months of treatment.
- Trial name
- NCT01711944
- Testing
- Problem-Solving Skills Training
- Where
- 6 sites in United States
- Volunteers
- 629 people, healthy volunteers welcome
- Sponsor
- University of Rochester
Post Intensive Care Syndrome, Narrative Medicine
Effect of Pediatric Intensive Care Unit Diaries on PICS-p
When children become very sick and need to stay in a Pediatric Intensive Care Unit (PICU), it can have a big impact on their recovery and their family's well-being.
- Conditions
- Post Intensive Care Syndrome, Narrative Medicine, Post Traumatic Stress Disorder, Anxiety
- Trial name
- PICS-p (NCT06310109)
- Testing
- PICU diary
- Where
- Italy
- Volunteers
- 110 people
- Sponsor
- Bambino Gesù Children's Hospital IRCCS
Dysfunctional Voiding
Use of an Educational Video to Improve Adherence to Treatment in Voiding Dysfunction
This study aims to see whether an educational video on a common urinary dysfunction leads to improved parent and child perceived adherence to treatments recommendations.
- Trial name
- NCT06909552
- Testing
- Educational Video on Voiding Dysfunction
- Where
- United States
- Volunteers
- 100 people
- Sponsor
- University of Colorado, Denver
Family Caregiver of Patient With Alzheimer Disease
Impact of the Eurékoi Serious Game on Family Caregivers of Patients With a Major Neurocognitive Disorder
This study aims to assess the effectiveness of serious EUREKOI gambling on the anxiety of family caregivers of patients with newly diagnosed Alzheimer's disease.
- Trial name
- NCT04573985
- Testing
- Serious game Eurekoi intervention
- Where
- France
- Volunteers
- 40 people, healthy volunteers welcome
- Sponsor
- Centre Hospitalier Universitaire de Nice
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