Clinical trials: End of Life Decision Making
Palliative Care
ACP-Family Programme for Palliative Care Patients and Their Family Member
The goal of this clinical trial is to test the effectiveness of a structured, family-supported, patient-centred advance care planning (ACP) in palliative care patients and their family members.
- Trial name
- NCT05935540
- Testing
- ACP-Family
- Where
- 3 sites in Hong Kong
- Volunteers
- 170 people
- Sponsor
- The Hong Kong Polytechnic University
PATİENT CARE, Intensive Care Unit
Surgical ICU Nurses' Attitudes on End-of-Life Care
This study aims to explore the attitudes and behaviors of nurses working in surgical intensive care units (ICUs) towards end-of-life care, alongside identifying the barriers they face in providing such care.
- Trial name
- NCT06285305
- Where
- Turkey (Türkiye)
- Volunteers
- 250 people
- Sponsor
- Kilis 7 Aralik University
End of Life Care, Advanced Cancer
Empathetic Communication Facilitation Program for Early Initiation of End-of-life Discussions
Background: The National Comprehensive Cancer Network Clinical Practice Guidelines in Oncology: palliative care recommends discussing advance care planning (ACP) when patients' estimated life expectancy is reduced from a year to…
- Conditions
- End of Life Care, Advanced Cancer, Recurrent Cancer
- Trial name
- NCT05045040
- Testing
- Mobile-based empathetic communication support program to promote ACP discussion
- Where
- Japan
- Volunteers
- 264 people
- Sponsor
- Yosuke Uchitomi
Discrimination, Racial, Communication
PRISM Race and Communication Pilot RCT
This is a pilot randomized trial of 60 patients to test feasibility, acceptability and efficacy of PRISM to improve resilience and facilitate improved patient-clinician communication in racially minorities patients with serious…
- Conditions
- Discrimination, Racial, Communication, Chronic Illness, Bias, Racial
- Trial name
- NCT04915079
- Testing
- Promoting Resilience in Stress Management (PRISM)
- Where
- United States
- Volunteers
- 28 people
- Sponsor
- University of Washington
Systolic Heart Failure, Sudden Cardiac Death
A Pilot Trial of Patient Decision Aids for Implantable Cardioverter-Defibrillators (ICDs)
The purpose of this study is to test the acceptability and feasibility of a "toolkit" of patient decision aids (PtDAs) for heart failure patients who are considering an ICD implant.
- Trial name
- NCT02026102
- Testing
- ICD Decision Aid Toolkit
- Where
- 3 sites in United States
- Volunteers
- 15 people
- Sponsor
- University of Colorado, Denver
Brain Death, Renal Failure
Understanding Family Refusal
The investigators plan a secondary data analysis of an existing dataset to examine how individual decision-making differs from family decision-making in organ donation.
- Trial name
- NCT04303624
- Testing
- Health sciences survey
- Volunteers
- 1,007 people, healthy volunteers welcome
- Sponsor
- Yale-NUS College
Chronic Kidney Disease
Shared Decision Making and Renal Supportive Care
This year, 90,000 Americans with end-stage renal disease (ESRD) will die and questions will legitimately be raised as to whether terminal treatment and location of death adequately represented their preferences.
- Trial name
- SDMRSC (NCT02405312)
- Testing
- advance care planning
- Where
- United States
- Volunteers
- 172 people
- Sponsor
- Baystate Medical Center
Terminal Illness
ADJUST: A Study on MDT Prognostication
This study investigates how clinicians form intuitive judgements about the prognoses of palliative care patients after receiving advice perceived as coming from either a team member or an algorithm.
- Trial name
- ADJUST (NCT04568629)
- Testing
- Advice from the PiPS-B14 prognostic tool, Advice from another clinician
- Where
- United Kingdom
- Volunteers
- 323 people, healthy volunteers welcome
- Sponsor
- University College, London
Normal Physiology
Focus Groups to Determine Surrogates Views Regarding Patient Preference Predictors
Background: Some people cannot make medical treatment decisions on their own. The people who make decisions on their behalf are called medical surrogates.
- Trial name
- NCT02898194
- Where
- 2 sites in United States
- Volunteers
- 27 people
- Sponsor
- National Institutes of Health Clinical Center (CC)
Maternal Death, Neonatal Death
Evaluating the Effects of SMS Text Messaging Support System Among Frontline Health Workers in Ghana
Introduction Maternal and neonatal mortality continue to be to be prominent public health issues in sub Saharan Africa including Ghana, with slow progress made towards attainment of Millennium Development Goals (MDG) 4 \& 5.
- Conditions
- Maternal Death, Neonatal Death, Postpartum Haemorrhage, Pre-eclampsia
- Trial name
- Accelerate (NCT02468310)
- Testing
- Maternal and neonatal emergency protocols
- Where
- Ghana
- Volunteers
- 65,831 people, healthy volunteers welcome
- Sponsor
- Hannah Brown Amoakoh
Critical Illness
Intensive Care Decision-making, Survival and Dying Well
The goal of this study is to investigate how the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival.
- Trial name
- NCT06027684
- Where
- United Kingdom
- Volunteers
- 50 people
- Sponsor
- University of Manchester
Chronic Kidney Diseases
A Pilot Study of The CKM JumpStart Tool
This is a randomized pilot study to test the feasibility and acceptability of a tool to promote discussion about conservative kidney management (CKM) among older patients with advanced CKD and their providers.
- Trial name
- NCT05753020
- Testing
- CKM Jumpstart Tool
- Where
- 2 sites in United States
- Volunteers
- 76 people, healthy volunteers welcome
- Sponsor
- University of Washington
Palliative Care, Decision Making
Feasibility Of An Advanced Care Decision Aid Among Patients And Physicians_Matlock
The investigators propose an evaluation of an end of life patient decision aid (EOL-PtDA) developed by the Foundation for Informed Medical Decision Making using the RE-AIM (Reach Effectiveness, Adoption, Implementation, and…
- Conditions
- Palliative Care, Decision Making, Decision Support Techniques, Decision Support Systems, Clinical
- Trial name
- NCT01190488
- Testing
- End-of-Life / Advanced Care Decision Aid, Active Comparator
- Where
- United States
- Volunteers
- 120 people, healthy volunteers welcome
- Sponsor
- University of Colorado, Denver
Hospice, End-of-life Decision Making
Pilot Evaluation of Hospice Decision Support Tools
The goal of this project is to determine the feasibility and acceptability of a hospice decision aid among a diverse population of older adults at multiple stages of illness (Aim 1) and to determine the preliminary efficacy of…
- Conditions
- Hospice, End-of-life Decision Making, Hospice Decision Making
- Trial name
- NCT03794700
- Testing
- Hospice Decision Aids
- Where
- United States
- Volunteers
- 131 people
- Sponsor
- University of Colorado, Denver
HIV
Palliative Care in People Living With HIV/AIDS: Integrating Into Standard of Care
Our goal is to advance palliative care with persons living with AIDS (PLWA) or life-limiting co-morbidities to decrease suffering and increase quality of life (QOL).
- Trial name
- FACE (NCT01775436)
- Testing
- FAmily-CEntered Advance Care Planning, Healthy Living Control
- Where
- 5 sites in United States
- Volunteers
- 444 people
- Sponsor
- Children's National Research Institute
End of Life Care, Muslim
Code Status Discussions in Muslim ICU Patients: Insights Into Physician-Family Communication
This observational study aims to explore the real-time experiences, perceptions, and challenges faced by intensive care unit (ICU) physicians during goals-of-care discussions-specifically Do Not Attempt Resuscitation (DNAR) and…
- Conditions
- End of Life Care, Muslim, Decision Making ,Shared
- Trial name
- FAITH-ICU (NCT07243041)
- Where
- Saudi Arabia
- Volunteers
- 320 people
- Sponsor
- King Faisal Specialist Hospital & Research Center