Clinical trials: Family Caregiving, active
Trisomy 13 Syndrome, Arthrogryposis Congenita Multiplex With Intestinal Atresia
Palliative Care Needs of Children With Rare Diseases and Their Families
The palliative care needs of family caregivers of children with rare diseases and their children are largely unmet, including the need for support to prepare for future medical decision making.
- Conditions
- Trisomy 13 Syndrome, Arthrogryposis Congenita Multiplex With Intestinal Atresia, Asparagine Synthetase Deficiency, CHARGE Syndrome
- Trial name
- FACE-Rare (NCT06938542)
- Testing
- Family Centered pediatric palliative care for family caregivers of children with rare diseases.
- Where
- United States
- Volunteers
- 480 people, healthy volunteers welcome
- Sponsor
- Children's National Research Institute
Decision Making, Shared, Family Caregiving
A Stakeholder-enhanced Intervention to Improve the Decisional Partnership of Chronic Kidney Disease Dyads (IMPART)
Using a highly innovative methodology, the Multiphase Optimization Strategy (MOST), the purpose of this study is to pilot test, an optimization trial approach to develop and refine the decision partnering skills of persons with…
- Conditions
- Decision Making, Shared, Family Caregiving, Chronic Kidney Disease
- Trial name
- ImPart (NCT06173323)
- Testing
- ImPart - Improving Chronic Kidney Disease Decisional Partnerships
- Where
- United States
- Volunteers
- 128 people
- Sponsor
- University of Alabama at Birmingham
Breast Cancer, Lung Cancer
Developing a Virtual Stress Management Intervention for Spousal/Partnered Caregivers of Solid Tumor Cancer Patients.
This randomized control trial will investigate the ability of an effective stress management psychoeducation program for employed caregivers to mitigate psychological distress and pathophysiology in spousal or partnered…
- Conditions
- Breast Cancer, Lung Cancer, Colon Cancer, Solid Tumor, Adult
- Trial name
- eCare (NCT04739696)
- Testing
- PEPRR, Pep-Pal
- Where
- United States
- Volunteers
- 538 people, healthy volunteers welcome
- Sponsor
- University of Colorado, Denver
Pneumonia, Family Caregivers
Effectiveness of Chatbot for Improving Caregiving Outcomes in Primary Caregivers of Geriatric Pneumonia Patients: A Study on Knowledge, Attitude and Practice.
Pneumonia is a leading cause of death and hospitalization among the elderly in Taiwan. High-quality home care is essential to recovery and reducing readmission, yet primary caregivers often lack the specific skills needed, such…
- Conditions
- Pneumonia, Family Caregivers, Knowledge, Attitudes, Practice, Chatbot
- Trial name
- NCT07463443
- Testing
- Chatbot with Educational Videos, Traditional Paper-based Education
- Where
- Taiwan
- Volunteers
- 150 people
- Sponsor
- Taipei Veterans General Hospital, Taiwan
Elder Mistreatment, Elder Abuse
Knowledge and Interpersonal Skills to Develop Enhanced Relationships (KINDER)
The Knowledge and Interpersonal Skills to Develop Enhanced Relationships (KINDER) intervention was developed to prevent psychological elder abuse (EA) and promote high-quality caregiving by lowering relationship strain and…
- Conditions
- Elder Mistreatment, Elder Abuse, Quality of Care, Dementia
- Trial name
- KINDER (NCT07216950)
- Testing
- Knowledge and Interpersonal Skills to Develop Enhanced Relationships, Healthy Living for the Caregiver
- Where
- United States
- Volunteers
- 260 people, healthy volunteers welcome
- Sponsor
- Case Western Reserve University
Inherited Metabolic Disorders, Undiagnosed Diseases
Caregiving Networks Across Disease Context and the Life Course
Background: In the U.S., about 53 million informal, unpaid caregivers provide care to a person who is ill, is disabled, or has age-related loss of function. These caregivers may be adult children, spouses, parents, or others.
- Conditions
- Inherited Metabolic Disorders, Undiagnosed Diseases, Batten's Disease, Tay Sachs
- Trial name
- NCT05007990
- Where
- United States
- Volunteers
- 2,800 people, healthy volunteers welcome
- Sponsor
- National Human Genome Research Institute (NHGRI)
Glioma
Simulation-Based Caregiving Skills Training for Family Members of High Grade Glioma Patients
Family caregivers of patients with a primary brain tumor experience a high caregiving load including assistance with activities of daily living without any formal training.
- Trial name
- NCT05511324
- Testing
- Questionnaires, Caregiver Assessment
- Where
- United States
- Volunteers
- 124 people, healthy volunteers welcome
- Sponsor
- M.D. Anderson Cancer Center
Malignant Tumor
Impact of Family-Centered Empowerment on Caregivers of Children With Cancer: A Quasi-Experimental Study Protocol
The purpose of this trial is to understand the impact of a family empowerment-based intervention program on family caregivers' readiness to care and ability to care.
- Trial name
- NCT06810388
- Testing
- Health education intervention program based on a family-centered empowerment model, Implementation of routine care measures
- Volunteers
- 128 people, healthy volunteers welcome
- Sponsor
- Xiaowan Li
Hip Fractures
Precision Care for Older Persons
This study aims to 1) develop an Advanced Person-Centered (APC) Smart Home Care Model that is able to predict patient outcomes; and 2) evaluate the effectiveness of this model by assessing improvements in care and recovery for…
- Trial name
- NCT07419789
- Testing
- Advanced Person-Centered (APC) Smart Home Care Model
- Where
- 2 sites in Taiwan
- Volunteers
- 218 people
- Sponsor
- Chang Gung Memorial Hospital
Caregiving Stress
Closed-Loop and Neuroplasticity-Based Mindfulness Program for Family Caregivers
The aim of this study is to evaluate the effectiveness of a closed-loop and neuroplasticity-based mindfulness program for reducing stress among family caregivers of people with dementia.
- Trial name
- NCT06880822
- Testing
- Closed-Loop and Neuroplasticity-Based Mindfulness Program, Traditional Mindfulness Program (Without the Closed-Loop Approach), Psychoeducation
- Volunteers
- 189 people
- Sponsor
- The Hong Kong Polytechnic University
Caregiver Burden, Caregiver Burnout
Peer Support for Family Caregivers of Older Adults Living With Dementia
Family caregivers of people living with dementia are at high risk of poor health when caregiving for their loved one. Peer Support for Family Caregivers of Older Adults Living with Dementia (Pair 2 Care©) is a simple…
- Conditions
- Caregiver Burden, Caregiver Burnout, Caregiver Anxiety, Alzheimer Disease Dementia
- Trial name
- Pair 2 Care (NCT07868718)
- Testing
- Peer Support, Usual Care
- Where
- United States
- Volunteers
- 344 people
- Sponsor
- Ohio State University
Non-Small Cell Lung Cancer, Advanced Lung Cancer
Nurse-Led Caregiver Support for Older Adults With Advanced Lung Cancer
This two-phase study aims to examine the current status of older adults with newly diagnosed locally advanced or advanced non-small cell lung cancer and their primary family caregivers, and to evaluate the effects of the…
- Conditions
- Non-Small Cell Lung Cancer, Advanced Lung Cancer, Caregiver Burden, Resource Utilization
- Trial name
- ICSM (NCT07708870)
- Testing
- Integrating Nurse-Led and Resource Utilization-Based Caregiver Support Model, Oncology Case Manager Care and Usual Care
- Where
- 2 sites in Taiwan
- Volunteers
- 120 people
- Sponsor
- National Taiwan University Hospital
Family, End of Life
Web-based Support for Family Caregivers of Patients With Advanced Cancer
For family caregivers of patients with advanced cancer, preparedness for caregiving is crucial for maintaining health and quality of life both during care and after the death of the patient.
- Conditions
- Family, End of Life, Cancer Metastatic, Chronic Illness
- Trial name
- NCT05785494
- Testing
- Narstaende.se
- Where
- Sweden
- Volunteers
- 204 people
- Sponsor
- Ersta Sköndal University College
Support of the Family as a Caregiving System
Training Model to Advance Support of the Family as a Caregiving System in the Inpatient Oncology Setting
The purpose of this study is to provide a communication training program to inpatient nurses and social workers at Memorial Sloan Kettering Cancer Center in order to help them assist caregiving families.
- Trial name
- NCT01805609
- Testing
- Working with the Caregiving Family (WCF) training, questionnaires
- Where
- United States
- Volunteers
- 80 people, healthy volunteers welcome
- Sponsor
- Memorial Sloan Kettering Cancer Center
Dementia, Alzheimer Disease
Comparing Structured Retrieval Practice and Reading-Based Education for Dementia Caregivers
Caring for a person living with dementia can be stressful, and many family caregivers report limited access to effective educational resources for managing dementia-related behaviors and caregiver stress.
- Conditions
- Dementia, Alzheimer Disease, Caregiver Stress
- Trial name
- NCT07413406
- Testing
- Structured Retrieval Practice, Reading-Based Education
- Where
- United States
- Volunteers
- 65 people
- Sponsor
- Virginia Wesleyan University
Advanced Cancer
Identifying Family Members in Need of Support While Caregiving and After Loss
This screening tool will be used to identify significant relations of patients with advanced medical illness or serious hospitalization and family individuals who lost their loved one and who could use professional support in the…
- Trial name
- NCT02455505
- Testing
- background questionnaire, bereavement risk screening tool
- Where
- 2 sites in United States
- Volunteers
- 52 people, healthy volunteers welcome
- Sponsor
- Memorial Sloan Kettering Cancer Center
Shared Care
Improving Information Sharing Between Family Caregivers and Home Care Aides
This study will assess the feasibility and acceptability of delivering a home care role and preference guide to up to 50 family caregivers and home care aides of persons living with disability for the purpose of identifying roles…
- Trial name
- NCT07227558
- Testing
- GRACE
- Where
- United States
- Volunteers
- 100 people, healthy volunteers welcome
- Sponsor
- Johns Hopkins Bloomberg School of Public Health
Family Caregivers, Distress in Caregivers of Cancer Patients
The FamilyStrong Pilot Randomized Trial
When someone is diagnosed with advanced cancer, their family members and close friends often take on the role of caregiver, providing emotional support and complex medical care for their loved one, often for up to eight hours a…
- Conditions
- Family Caregivers, Distress in Caregivers of Cancer Patients, Advanced Cancer
- Trial name
- NCT07761988
- Testing
- FamilyStrong
- Where
- United States
- Volunteers
- 120 people
- Sponsor
- University of Alabama at Birmingham
Brain Injuries, Traumatic
The HOME Program for Individuals With Traumatic Brain Injury and Family Members
This purpose of this study is to evaluate an innovative rehabilitation intervention for persons with chronic TBI-related symptoms (1 year or more post injury) and their families.
- Trial name
- HOME (NCT05117619)
- Testing
- HOME for Us, Attention-control condition
- Where
- United States
- Volunteers
- 281 people
- Sponsor
- Villanova University