Clinical trials: Health-related Quality of Life
eHealth Literacy
Evaluation of Technology Acceptance and Electronic Health (Ehealth) Literacy of Patients Undergoing Radiotherapy
Evaluation of technology acceptance and digital health literacy (eHealth literacy) of patients undergoing radiotherapy. In addition, a qualitative survey of data on the patient journey and its influence on overall satisfaction…
- Trial name
- RO_eHEALTH (NCT06645496)
- Testing
- Evaluation of ehealth literacy
- Where
- Germany
- Volunteers
- 213 people
- Sponsor
- Charite University, Berlin, Germany
Melanoma
A Study to Compare Quality of Life and Compliance in Patients Receiving High-dose Interferon Versus Pegylated Interferon in Patients With Surgically Resected Melanoma
To evaluate the compliance with and perceptions of treatment, as well as health-related quality of life (HRQOL) in surgically resected melanoma patients undergoing HDI or PEG IFN therapy.
- Trial name
- NCT01986712
- Where
- 4 sites in United States
- Volunteers
- 50 people
- Sponsor
- St. Luke's Hospital and Health Network, Pennsylvania
Epilepsy
A Novel Social Emotional Learning Curriculum for Youth With Epilepsy
Youth with epilepsy (YWE) are significantly more likely than their peers without epilepsy to experience isolation, interpersonal victimization, and low relationship satisfaction. This is a serious health concern.
- Trial name
- NCT06427967
- Testing
- Project Dream Team
- Where
- United States
- Volunteers
- 33 people
- Sponsor
- Boston Medical Center
Rotator Cuff Tear
Effectiveness of the Ivivi Torino II, Pulsed Radio Frequency Device, on Narcotic Use, Pain and Quality of Life Following Shoulder Arthroscopic Rotator Cuff Repair.
To determine the effectiveness of non-thermal PRF delivered with the Ivivi Torino II on narcotic use, pain, and health-related quality of life following shoulder arthroscopic rotator cuff surgery comparing: Active treatment…
- Trial name
- NCT01507818
- Testing
- Ivivi Torino II
- Where
- 3 sites in United States
- Volunteers
- 37 people
- Sponsor
- Amp Orthopedics, Inc.
Cystic Fibrosis
Exercise Training Study for Patients With Cystic Fibrosis
The aim of this study is to test the effect of a 6-month program of self-regulated, home-based exercise with telephone reinforcement on the cardiorespiratory fitness, pulmonary function and health-related quality of life of…
- Trial name
- NCT00609050
- Testing
- Self-Regulated Exercise with Telephone Reinforcement, Standard Treatment, Qualitative Approach
- Where
- United States
- Volunteers
- 38 people
- Sponsor
- University of Pittsburgh
Cardiac Sarcoidosis
Development and Validation of a Health-related Quality of Life Tool for Patients With Cardiac Sarcoidosis
What is the purpose of this research? This study includes two parts based in two NHS specialist centres for cardiac sarcoidosis: Development of the CARD-SARC: Development of the new questionnaire to measure quality of life in…
- Trial name
- NCT05145023
- Where
- 2 sites in United Kingdom
- Volunteers
- 130 people
- Sponsor
- Queen Mary University of London
Multiple Sclerosis
Cognition and HRQoL in Adults With Highly-active RMS in Year 3 and 4 After Initial Mavenclad® Dose (CLARIFY MS Extension)
The purpose of the study was the evaluation of the effect of a treatment for highly-active relapsing multiple sclerosis (RMS). This was the extension study to CLARIFY MS (NCT03369665), to assess cognitive impairment and health…
- Trial name
- NCT04776213
- Testing
- Mavenclad®
- Where
- 60 sites in Austria, Czechia and 8 more
- Volunteers
- 280 people
- Sponsor
- Merck Healthcare KGaA, Darmstadt, Germany, an affiliate of Merck KGaA, Darmstadt, Germany
Hemiplegia, Spastic
Aerobic Training on Cardio-respiratory Fitness and Health Related Quality of Life
Stroke is a major health problem among Egyptian population; an obvious raise in stroke prevalence in all Egyptian governorates. Most stroke survivors commonly develop disabilities those were correlated with restricted physical…
- Trial name
- NCT06539520
- Testing
- Aerobic training program, Selected physical therapy program for post stroke patients
- Where
- Egypt
- Volunteers
- 80 people
- Sponsor
- Adly A Adam
Edentulism
Patient Satisfaction and Oral Health-Related Quality of Life of Quadrilateral Versus Bilateral Linear Bar Designs for Four Implant Implant-Assisted Complete Mandibular Overdenture Regarding Peri-Implant Crestal Bone Loss
For this study, twenty patients were selected, and participants were randomly divided into two groups using random numbers produced in an Excel spreadsheet.
- Trial name
- NCT06673173
- Testing
- Implant
- Where
- Egypt
- Volunteers
- 20 people, healthy volunteers welcome
- Sponsor
- Mansoura University
Longevity, Women's Health
A Real-World Evidence Study Evaluating the Effects of the Human Optimization Project Protocol on Methylation Biomarkers and Health-Related Quality of Life in Women
This study looks at whether a daily dietary supplement called HOP Box can improve markers of biological aging and overall health in women.
- Trial name
- NCT07548645
- Testing
- Human Optimization Project
- Where
- United States
- Volunteers
- 35 people, healthy volunteers welcome
- Sponsor
- Human Optimization Project
Patient Centred Care, Compliance, Treatment
Treatment-related Quality of Life and Patient-Centred Care With Infertility
This study was conducted in a cross-sectional descriptive type with 160 infertile women who were treated in the IVF Clinic of a university hospital between July - October 2020 in order to evaluate the effect of patient-centered…
- Conditions
- Patient Centred Care, Compliance, Treatment, Infertility, Female, Quality of Life
- Trial name
- NCT05078996
- Where
- Turkey (Türkiye)
- Volunteers
- 160 people, healthy volunteers welcome
- Sponsor
- Elif Balkan
Sleep Quality, Magnesium Deficiency
Efficacy of MAGNESIO TOTAL on Sleep Quality and Quality of Life in Adults
This randomized, double-blind, placebo-controlled trial evaluates whether MAGNESIO TOTAL, a dietary supplement containing magnesium bisglycinate and magnesium malate (215 mg elemental magnesium per day), improves sleep quality…
- Conditions
- Sleep Quality, Magnesium Deficiency, Sleep Initiation and Maintenance Disorders, Quality of Life
- Trial name
- NCT07894562
- Testing
- Magnesium bisglycinate and magnesium malate
- Where
- Spain
- Volunteers
- 50 people, healthy volunteers welcome
- Sponsor
- José Enrique de la Rubia Ortí, Ph
Food Insecurity, Caregivers
CommunityRx for Hunger: A Hospital-Based Intervention
The goal of this research program is to reduce health disparities by deploying an information-based intervention to increase caregiver utilization of community-based food supports and satisfaction with care among food insecure…
- Conditions
- Food Insecurity, Caregivers, Clinical Trial, Hunger
- Trial name
- NCT03173794
- Testing
- CommunityRx-H
- Volunteers
- healthy volunteers welcome
- Sponsor
- University of Chicago
Duchenne Muscular Dystrophy (DMD), Becker Muscular Dystrophy
Registry for Duchenne and Becker Muscular Dystrophy
Duchenne muscular dystrophy (DMD) is an X-linked, recessive, progressive, and degenerative neuromuscular disorder that affects approximately one in 5,000 newborn boys.
- Conditions
- Duchenne Muscular Dystrophy (DMD), Becker Muscular Dystrophy, Dystrophinopathy Symptomatic Female Carrier
- Trial name
- FAIR-DMD (NCT07402122)
- Where
- 30 sites in Austria, Germany
- Volunteers
- 1,500 people
- Sponsor
- Dr. Andreas Ziegler
Quality of Life, Abdominal Wall Defect
Health Related Quality of Life of Patients With Abdominal Wall Defects
Examination of the health-related quality of life of patients operated on due to congenital defects of the abdominal wall after birth with the questionnaires KINDL, SDQ and SF-36.
- Conditions
- Quality of Life, Abdominal Wall Defect, Gastroschisis, Omphalocele
- Trial name
- NCT03960320
- Testing
- questionnaire
- Volunteers
- 65 people
- Sponsor
- Universität des Saarlandes
Chronic Myeloid Leukemia
Mid-to Long-Term Outcomes in Chronic Myeloid Leukemia (CML) Patients With Complete Cytogenetic Response After Imatinib as First Line Therapy
Rationale: At present, virtually no evidence exists regarding mid to long-term patient-reported health outcomes (e.g., health related quality of life-HRQOL) of CML patients treated with Imatinib.
- Trial name
- NCT00896129
- Testing
- HRQOL Survey Packet
- Where
- 25 sites in Italy
- Volunteers
- 448 people
- Sponsor
- Gruppo Italiano Malattie EMatologiche dell'Adulto
Pyruvate Kinase Deficiency, Congenital Non-Spherocytic Hemolytic Anemia
Pyruvate Kinase Deficiency Natural History Study
The purpose of this study is to describe the range and incidence of symptoms, treatments, and complications related to pyruvate kinase deficiency (PKD).
- Trial name
- PKD NHS (NCT02053480)
- Where
- 30 sites in United States, Canada and 4 more
- Volunteers
- 254 people
- Sponsor
- Boston Children's Hospital
Neuroendocrine Tumours (NET)
United Kingdom (UK) Patient Preference Study of Somatuline Autogel and Treatment Administration Setting
The aim of the study is to generate real-world evidence to describe the patient experience of administration of Somatuline® Autogel® (lanreotide) in homecare and hospital settings, and the associated impact on healthcare…
- Trial name
- PREF-NET (NCT04649580)
- Where
- 5 sites in United Kingdom
- Volunteers
- 80 people
- Sponsor
- Ipsen
Myopia, Convergence Insufficiency
The Health-Related Quality of Life of the Patients With Symptomatic Convergence Insufficiency
This trial is an observational cohort study. Patients aged 8-15 years with symptomatic convergence insufficiency and 150 patients with symptomatic convergence insufficiency who had not received visual training were selected from…
- Trial name
- NCT05948046
- Testing
- Visual training in hospital
- Where
- China
- Volunteers
- 300 people
- Sponsor
- Tianjin Eye Hospital
Hip Osteoarthritis
Exercise Therapy and Patient Education for Individuals With Hip Osteoarthritis of the Hip. A Case-Control Study
To identify differences between patients with OA of the hip in an early stage and a healthy control group. Hypothesis 1.1 There are significant differences between patients with OA of the hip in an early stage and a healthy…
- Trial name
- NCT00319124
- Where
- Norway
- Volunteers
- 52 people, healthy volunteers welcome
- Sponsor
- Ullevaal University Hospital