Clinical trials: Hospice Care Needs
Rare Diseases
FACE for Children With Rare Diseases
Children with ultra-rare or complex rare diseases are routinely excluded from research studies because of their conditions, creating a health disparity.
- Trial name
- FACE-Rare (NCT04855734)
- Testing
- FAmily CEntered (FACE) pACP Intervention
- Where
- United States
- Volunteers
- 42 people
- Sponsor
- Children's National Research Institute
Home-based Care Service, Hospice Care Needs
Survey on Home-Based Hospice Care Service Needs
This study aims to investigate and analyze the demand for "Internet +" integrated TCM-Western medicine home-based hospice care across different populations, in order to evaluate the local region's awareness, demand levels, market…
- Trial name
- NCT07815041
- Where
- China
- Volunteers
- 1,229 people, healthy volunteers welcome
- Sponsor
- Emeishan Hospital of Traditional Chinese Medicine
Family Caregiving for a Palliative Patient
Supporting Family Caregivers of Palliative Patients at Home: the Carer Support Needs Assessment Intervention
In this project the investigators will train home care nurses to use the Carer Support Needs Assessment Tool (CSNAT) with a group of family caregivers (intervention group) and then compare the family caregivers' quality of life…
- Trial name
- CSNAT (NCT02261935)
- Testing
- Existing home care nursing practice, Practice support tool intervention
- Where
- Canada
- Volunteers
- 130 people
- Sponsor
- Kelli Stajduhar
Palliative Care
The PROAKTIV Study
The overall objective of this study is to identify whether the systematic anticipation of highly structured specialized palliative home care into primary care influences the quality of care and care utilization.
- Trial name
- NCT04673760
- Testing
- Specialized palliative home care
- Where
- Switzerland
- Volunteers
- 149 people, healthy volunteers welcome
- Sponsor
- Insel Gruppe AG, University Hospital Bern
Alzheimer s Disease, Dementia
CommunityRx-Dementia + Peer Navigation (CRxDpeer)
The CRxDpeer intervention, delivered by a trained peer navigator, in practice called a "peer mentor", includes three evidence-based components: (a) focused education about common social (e.g., food and housing insecurity) and…
- Conditions
- Alzheimer s Disease, Dementia, Caregiver, Loneliness
- Trial name
- CRxDpeer (NCT07346183)
- Testing
- CommunityRx-Dpeer
- Where
- United States
- Volunteers
- 330 people, healthy volunteers welcome
- Sponsor
- University of Chicago
Paediatric Palliative Care
Paediatric End of Life Care Needs in Switzerland
Background Children living with life-limiting conditions have always been part of the health care system. Although there have been dramatic improvements in medical care, hundreds of children continue to die annually.
- Trial name
- PELICAN (NCT01983852)
- Where
- Switzerland
- Volunteers
- 200 people
- Sponsor
- University of Basel
Palliative Care
Implementation of RELIEF for Patients With Palliative Care Needs
For patients with palliative care needs, access to care is constrained by health system resources and a requirement to visit their clinician for assessments.
- Trial name
- NCT05806255
- Testing
- The RELIEF App
- Volunteers
- 600 people
- Sponsor
- William Osler Health System
Communication About Intimacy Needs in Hospice and Palliative Care
IN-TALK: Co-producing a Hospice Intimacy Support Toolkit in England
People receiving hospice care may experience concerns about intimacy, closeness and physical affection that can affect their quality of life and wellbeing.
- Trial name
- IN-TALK (NCT07737145)
- Testing
- Experience-Based Co-Design (EBCD) workshops
- Volunteers
- 794 people, healthy volunteers welcome
- Sponsor
- Dorothy House Hospice
Metastatic Cancer
A Trial Investigating the Effect of Specialised Palliative Care on Symptoms, Survival, Economical Factors and Satisfaction
Specialised palliative care (SPC) seeks to relieve suffering and improve quality of life in patients with a life threatening disease such as advanced cancer. Many patients with advanced cancer are not in contact with SPC.
- Trial name
- DanPaCT (NCT01348048)
- Testing
- Specialised palliative care (SPC)
- Where
- 6 sites in Denmark
- Volunteers
- 306 people
- Sponsor
- Bispebjerg Hospital