Clinical trials: Patient and Caregiver Satisfaction
Experience, Life, Dialysis
What Does the Patient Experience Represent for Patients and Caregivers in Dialysis?
The primary objective of this work is to describe the vision, representations, and beliefs of professionals and patients regarding the role and place of the user during their care journey at the Calydial renal health facility.
- Conditions
- Experience, Life, Dialysis, Patient Engagement, Patient Participation
- Trial name
- EnquêteXP (NCT06529887)
- Where
- 4 sites in France
- Volunteers
- 160 people, healthy volunteers welcome
- Sponsor
- Calydial
Cancer
Visual Communication: Digital Tool to Improve the Understanding of Treatment Options for Patients With Cancer and Increase Satisfaction of the Overall Experience for Patients, Caregivers, and Providers
This is a study in patients with newly diagnosed cancer to prospectively evaluate the feasibility of integration of a visual communication tool for patients/caregivers/providers by determining whether such a tool can increase…
- Trial name
- NCT06927050
- Testing
- Visual Communication Tool
- Where
- United States
- Volunteers
- 86 people
- Sponsor
- NYU Langone Health
Advanced Cancer
Palliative Care Referral System (PCRS) for Cancer Patients With Advanced Disease
Early palliative care (EPC) in the clinical pathway of advanced cancer patients improves symptom control, quality of life and has a positive impact on overall quality of care.
- Trial name
- PCRSS (NCT04936568)
- Testing
- Palliative Care Referral System - PCRS
- Where
- Italy
- Volunteers
- 380 people
- Sponsor
- Fondazione IRCCS Istituto Nazionale dei Tumori, Milano
Blood Cancer
Intervention for Caregivers of Patients Undergoing HSCT or CAR T-cell Therapy
The purpose of this study is to determine which of two approaches is helpful to support caregivers of patients undergoing Hematopoietic Stem Cell Transplant (HSCT) or Chimeric Antigen Receptors (CAR) T-cell therapy at Seidman…
- Trial name
- NCT04390542
- Testing
- Psychoeducation
- Sponsor
- Case Comprehensive Cancer Center
Rate of Late Cancellation, Patient Adherence to Preoperative Instructions
DENIM-trial: Digital prE-operative patieNt guIdance systeM
The goal of this RCT is to assess the effectiveness of a mobile application in enhancing the preoperative preparation of patients scheduled for elective surgery under anesthesia or procedural sedation.
- Conditions
- Rate of Late Cancellation, Patient Adherence to Preoperative Instructions, Patient Satisfaction, Care Givers Satisfaction
- Trial name
- DENIM (NCT07065201)
- Testing
- Mobile application for preoperative patient guidance, Mobile application and standard care
- Where
- Netherlands
- Volunteers
- 10,000 people
- Sponsor
- Jeroen Bosch Ziekenhuis
Parkinson's Disease
Study to Assess Participant/Caregiver/Investigator Satisfaction of Video-Assisted Telenursing in Adult Participants With Parkinson's Disease Treated With Levodopa-Carbidopa Intestinal Gel
Parkinson's disease (PD) is a neurological condition, which affects the brain. PD gets worse over time, but how quickly it progresses varies a lot from person to person.
- Trial name
- FACILITATECARE (NCT04500106)
- Where
- 13 sites in Australia, Israel and 2 more
- Volunteers
- 41 people
- Sponsor
- AbbVie
Preference, Patient, Pharmacist-Patient Relations
Preferences of Patients Treated With Oral Cancer Drugs and Informal Caregivers for Pharmaceutical Consultation in Hospital
To ensure the safe use of oral anticancer drugs, oncology pharmacy consultations (OPCs) have been established in France. Their goal is to provide the patient with the means to identify, prevent and limit adverse effects and to…
- Conditions
- Preference, Patient, Pharmacist-Patient Relations, Caregiver, Cancer
- Trial name
- IMPLICATION (NCT05970471)
- Where
- France
- Volunteers
- 167 people, healthy volunteers welcome
- Sponsor
- Centre Hospitalier Universitaire de Besancon
Quality of Life
A Hybrid Effectiveness-Implementation and Cost-Utility Evaluation of a Support Programme for Informal Carers of People With Dementia in Primary Care (EsCuidar2)
The aim of this study is to evaluate whether the School of Caring programme improves quality of life and reduces caregiver burden among informal carers of people living with dementia.
- Trial name
- EsCuidar2 (NCT07861789)
- Testing
- School of Caring Programme
- Where
- Spain
- Volunteers
- 200 people
- Sponsor
- Fundacio d'Investigacio en Atencio Primaria Jordi Gol i Gurina
Being Registered With Kelkit District State Hospital Home Health Unit, Being a Home Care Patient
Determining the Effect of Home Care Training on Anxiety and Depression Levels of Caregivers
This study was conducted to determine the effects of home care training given to caregivers of patients receiving home care services on the anxiety and depression levels of the caregivers.
- Trial name
- NCT07053553
- Testing
- Education
- Where
- Turkey (Türkiye)
- Volunteers
- 42 people
- Sponsor
- Gümüşhane Universıty
Family Members of the Patients
Effectiveness of Nurse-led Family Intervention on Stress, Engagement With Patient's Care and Satisfaction Among Primary Caregivers of Chronic Liver Disease Patients Admitted in High Dependency Unit of ILBS, New Delhi
Quasi experimental study to check the effectiveness of Nurse-led family Intervention on stress, engagement with patient care and satisfaction among primary caregivers of chronic liver disease patients admitted in high depency…
- Trial name
- NCT05073341
- Testing
- Nurse-led family intervention
- Where
- India
- Volunteers
- 80 people, healthy volunteers welcome
- Sponsor
- Institute of Liver and Biliary Sciences, India
Colon Cancer, Gastric Cancer
Integrated Care Pathway in Oncology (PASSION)
A centralized unit for integrated management of care pathway in Oncology has been created. This unit settles the patients' appointments (biopsy, intravenous device, chemotherapy, imaging, oncologist...).
- Conditions
- Colon Cancer, Gastric Cancer, Pancreatic Cancer, Thoracic Neoplasms
- Trial name
- PASSION (NCT04235556)
- Testing
- Care pathway unit
- Where
- France
- Volunteers
- 1,800 people
- Sponsor
- Assistance Publique - Hôpitaux de Paris
Caregiver, Cardiac Disease
Well-being Program for Caregivers of Patients With Advanced Cardiac and Pulmonary Disease
Caregivers provide essential support for people living with advanced heart or lung disease, including daily tasks, emotional support, and help with medical care.
- Conditions
- Caregiver, Cardiac Disease, Pulmonary Diseases
- Trial name
- NCT07685912
- Testing
- Multimodal Well-being Program
- Where
- Canada
- Volunteers
- 80 people
- Sponsor
- University Health Network, Toronto
Psychological Well-Being, Caregiver Burden
The Struggle That Is Phenylketonuria : What Do The Patients and Caregivers Suffer From
Objective: To assess the stress levels and life hardships of phenylketonuria patients and their parents.
- Conditions
- Psychological Well-Being, Caregiver Burden, Life Stress
- Trial name
- NCT06280261
- Testing
- parenting stress index, Zarit burden scale, Rosenberg self esteem scale, stait trait anxiety inventory, struggles and difficulties questionnaire
- Where
- Turkey (Türkiye)
- Volunteers
- 156 people
- Sponsor
- Hacettepe University
Stroke, Quality of Life
Effectiveness of a Home-based Ergonomic Intervention Program in Caregivers of Chronic Post-stroke Patients
The objective of the present study is to evaluate the effectiveness of two home-based ergonomic intervention programs compared to a control group on the quality of life of caregivers of post-stroke patients
- Trial name
- NCT03284580
- Testing
- Ergonomic intervention, Postural plus kinesiotherapy intervention program, Control or conservative intervention
- Where
- Spain
- Volunteers
- 33 people, healthy volunteers welcome
- Sponsor
- Universidad de Granada
Alzheimer Disease, CAREGİVER
The Progressively Lowered Stress Threshold Model
Today, with the prolongation of human life, the elderly population has increased and the frequency of diseases seen in old age has increased due to this situation. The most common of these diseases is Alzheimer's disease.
- Trial name
- NCT04305652
- Testing
- The Progressively Lowered Stress Threshold Model
- Where
- Turkey (Türkiye)
- Volunteers
- 29 people, healthy volunteers welcome
- Sponsor
- Aksaray University
Vision; Disorder, Loss, Caregiver Burnout
Virtual Health Education vs Meditation in Irreversible Age-Related Vision Loss Patients and Their Caregivers
Vision loss is common among older adults and leads to an increased risk for depression and difficulties in daily tasks, thus requiring dependence on caregivers.
- Conditions
- Vision; Disorder, Loss, Caregiver Burnout, Quality of Life, Depression
- Trial name
- NCT04583748
- Testing
- Sahaj Samadhi Meditation, Health Enhancement Program
- Volunteers
- healthy volunteers welcome
- Sponsor
- London Health Sciences Centre Research Institute OR Lawson Research Institute of St. Joseph's
Informed Consent, Patient and Caregiver Satisfaction
Evaluating Patient and Caregiver Satisfaction with the Informed Consent Process in Surgery
The goal of this observational study is to evaluate patient and caregiver satisfaction with the informed consent process in surgical practice at a tertiary care center in Nepal.
- Trial name
- NCT06746207
- Testing
- Informed Consent Process Evaluation
- Where
- Nepal
- Volunteers
- 384 people
- Sponsor
- Maharajgunj Medical Campus
Schizophrenia
The Effect of an Individual Empowerment Program Provided to Relatives of Schizophrenia Patients
Psychoeducation provided to family members caring for individuals with schizophrenia. Has been found to positively impact caregivers' psychological well-being and the effective management of schizophrenia patients.However…
- Trial name
- NCT07173192
- Testing
- Individual empowerment program
- Where
- Turkey (Türkiye)
- Volunteers
- 66 people, healthy volunteers welcome
- Sponsor
- Istanbul Arel University
Percutaneous Endoscopic Gastrostomy, Caregiver Burden
The Effect of the Mobile Application for Caregivers of Patients With Percutaneous Endoscopic Gastrostomy (PEG) on Caregivers
Brief Summary: In order to benefit from the opportunity of education anytime and anywhere with distance education, individuals need to use mobile devices such as mobile phones, tablets, PCs, which provide the opportunity to…
- Conditions
- Percutaneous Endoscopic Gastrostomy, Caregiver Burden, Mobile Application
- Trial name
- NCT05645458
- Testing
- mobile application ( PEG Assist )
- Where
- Turkey (Türkiye)
- Volunteers
- 27 people, healthy volunteers welcome
- Sponsor
- Duzce University
Caregiver Awareness, Family Health
Education for Chemotherapy Patients' Kin: Effects on Family Health
Aim: To evaluate the effects of structured education provided to the relatives of chemotherapy patients on family health, nutrition, and psychological well-being.
- Conditions
- Caregiver Awareness, Family Health, Psychological Well-being, Chemotherapy
- Trial name
- NCT07147868
- Testing
- Structured Education Program for Caregivers of Chemotherapy Patients
- Where
- Turkey (Türkiye)
- Volunteers
- 171 people, healthy volunteers welcome
- Sponsor
- Yuzuncu Yil University