Clinical trials: Patient and Caregiver Satisfaction
Family Members of the Patients
Effectiveness of Nurse-led Family Intervention on Stress, Engagement With Patient's Care and Satisfaction Among Primary Caregivers of Chronic Liver Disease Patients Admitted in High Dependency Unit of ILBS, New Delhi
Quasi experimental study to check the effectiveness of Nurse-led family Intervention on stress, engagement with patient care and satisfaction among primary caregivers of chronic liver disease patients admitted in high depency…
- Trial name
- NCT05073341
- Testing
- Nurse-led family intervention
- Where
- India
- Volunteers
- 80 people, healthy volunteers welcome
- Sponsor
- Institute of Liver and Biliary Sciences, India
Alzheimer Disease, Dementia
Aligning Patient Preferences: a Role Offering Alzheimer's Patients, Caregivers, and Healthcare Providers Education and Support
Nursing home (NH) patients with Alzheimer's disease and related dementias often receive unwanted, burdensome treatments such as hospitalization.
- Trial name
- APPROACHES (NCT03323502)
- Testing
- APPROACHES ACP Specialist Program, Standard of care
- Where
- 2 sites in United States
- Volunteers
- 47,396 people
- Sponsor
- Indiana University
Rare Diseases
FACE for Children With Rare Diseases
Children with ultra-rare or complex rare diseases are routinely excluded from research studies because of their conditions, creating a health disparity.
- Trial name
- FACE-Rare (NCT04855734)
- Testing
- FAmily CEntered (FACE) pACP Intervention
- Where
- United States
- Volunteers
- 42 people
- Sponsor
- Children's National Research Institute
Food Insecurity, Caregivers
CommunityRx for Hunger: A Hospital-Based Intervention
The goal of this research program is to reduce health disparities by deploying an information-based intervention to increase caregiver utilization of community-based food supports and satisfaction with care among food insecure…
- Conditions
- Food Insecurity, Caregivers, Clinical Trial, Hunger
- Trial name
- NCT03173794
- Testing
- CommunityRx-H
- Volunteers
- healthy volunteers welcome
- Sponsor
- University of Chicago
Cancer
Visual Communication: Digital Tool to Improve the Understanding of Treatment Options for Patients With Cancer and Increase Satisfaction of the Overall Experience for Patients, Caregivers, and Providers
This is a study in patients with newly diagnosed cancer to prospectively evaluate the feasibility of integration of a visual communication tool for patients/caregivers/providers by determining whether such a tool can increase…
- Trial name
- NCT06927050
- Testing
- Visual Communication Tool
- Where
- United States
- Volunteers
- 86 people
- Sponsor
- NYU Langone Health
Cancer, Cognitive Impairment
Cancer and Mild Cognitive Impairment a Patient-Caregiver Behavioral Intervention
The purpose of this study is to see whether programs that include both a patient and their spouse or a patient and family caregiver (known as a dyad) are helpful for families in which one member of the dyad has cancer and mild…
- Trial name
- NCT04826315
- Testing
- COPE +
- Where
- United States
- Sponsor
- Duke University
Psychological Well-Being, Caregiver Burden
The Struggle That Is Phenylketonuria : What Do The Patients and Caregivers Suffer From
Objective: To assess the stress levels and life hardships of phenylketonuria patients and their parents.
- Conditions
- Psychological Well-Being, Caregiver Burden, Life Stress
- Trial name
- NCT06280261
- Testing
- parenting stress index, Zarit burden scale, Rosenberg self esteem scale, stait trait anxiety inventory, struggles and difficulties questionnaire
- Where
- Turkey (Türkiye)
- Volunteers
- 156 people
- Sponsor
- Hacettepe University
Delirium, Neurocognitive Disorders
Evaluating Novel Healthcare Approaches to Nurturing and Caring for Hospitalized Elders
The goal of this clinical trial is to compare the Hospital Elder Life Program (HELP) with a family-augmented version of HELP (FAM-HELP), that includes family members and care partners, for the prevention of delirium in older…
- Conditions
- Delirium, Neurocognitive Disorders, Mild Cognitive Impairment, Alzheimer Disease
- Trial name
- ENHANCE (NCT05929703)
- Testing
- HELP, FAM-HELP
- Where
- 7 sites in United States
- Volunteers
- 1,900 people
- Sponsor
- University of Michigan
Caregiver Awareness, Family Health
Education for Chemotherapy Patients' Kin: Effects on Family Health
Aim: To evaluate the effects of structured education provided to the relatives of chemotherapy patients on family health, nutrition, and psychological well-being.
- Conditions
- Caregiver Awareness, Family Health, Psychological Well-being, Chemotherapy
- Trial name
- NCT07147868
- Testing
- Structured Education Program for Caregivers of Chemotherapy Patients
- Where
- Turkey (Türkiye)
- Volunteers
- 171 people, healthy volunteers welcome
- Sponsor
- Yuzuncu Yil University
Quality of Life, Cardiology
Implementation of a System to Measure the Quality of Life of Patients and Caregivers: a First Experiment in Cardiology at the Clermont-Ferrand University Hospital
Objectives: Measure the quality of life score in the post-interventional care pathway for patients with cardiology, using the EQ-5D-5L; measure caregivers' feelings about their work using the SAPHORA-Job; testing the feasibility…
- Trial name
- QALY-SATIS (NCT07680270)
- Testing
- quality of life questionnaire
- Where
- France
- Volunteers
- 1,124 people
- Sponsor
- University Hospital, Clermont-Ferrand
Cancer, Cognitive Impairment
Cancer and Mild Cognitive Impairment Dyadic Intervention
The purpose of this study is to see whether programs that include both a patient and their spouse or a patient and family caregiver (known as a dyad) are helpful for families in which one member of the dyad has cancer and mild…
- Trial name
- NCT05144516
- Testing
- Behavioral: COPE +
- Where
- United States
- Volunteers
- 80 people
- Sponsor
- Duke University
Parkinson's Disease
Study to Assess Participant/Caregiver/Investigator Satisfaction of Video-Assisted Telenursing in Adult Participants With Parkinson's Disease Treated With Levodopa-Carbidopa Intestinal Gel
Parkinson's disease (PD) is a neurological condition, which affects the brain. PD gets worse over time, but how quickly it progresses varies a lot from person to person.
- Trial name
- FACILITATECARE (NCT04500106)
- Where
- 13 sites in Australia, Israel and 2 more
- Volunteers
- 41 people
- Sponsor
- AbbVie
Brain Tumors
Brain Tumor Treatment Satisfaction Survey
Patients with recent diagnosis and treatment of a brain tumor will complete a short questionnaire concerning the patient's quality of life and emotional state since receiving treatment.
- Trial name
- NCT00557375
- Where
- United States
- Volunteers
- 105 people, healthy volunteers welcome
- Sponsor
- Methodist Healthcare - Memphis
Percutaneous Endoscopic Gastrostomy, Caregiver Burden
The Effect of the Mobile Application for Caregivers of Patients With Percutaneous Endoscopic Gastrostomy (PEG) on Caregivers
Brief Summary: In order to benefit from the opportunity of education anytime and anywhere with distance education, individuals need to use mobile devices such as mobile phones, tablets, PCs, which provide the opportunity to…
- Conditions
- Percutaneous Endoscopic Gastrostomy, Caregiver Burden, Mobile Application
- Trial name
- NCT05645458
- Testing
- mobile application ( PEG Assist )
- Where
- Turkey (Türkiye)
- Volunteers
- 27 people, healthy volunteers welcome
- Sponsor
- Duzce University
Bipolar Disorder, Caregiver Burden
Psychiatric Nursing Intervention for Caregivers of Patients With Bipolar Disorder
This study aims to evaluate the effectiveness of an innovative psychiatric nursing intervention in reducing caregiver burden and enhancing psychological resilience and positive emotional outcomes among family caregivers of…
- Conditions
- Bipolar Disorder, Caregiver Burden, Psychological Resilience
- Trial name
- BD-Care (NCT07548359)
- Testing
- Psychiatric Nursing Intervention
- Where
- Egypt
- Volunteers
- 60 people, healthy volunteers welcome
- Sponsor
- Menoufia University
Blood Cancer
Intervention for Caregivers of Patients Undergoing HSCT or CAR T-cell Therapy
The purpose of this study is to determine which of two approaches is helpful to support caregivers of patients undergoing Hematopoietic Stem Cell Transplant (HSCT) or Chimeric Antigen Receptors (CAR) T-cell therapy at Seidman…
- Trial name
- NCT04390542
- Testing
- Psychoeducation
- Sponsor
- Case Comprehensive Cancer Center
Stroke, Physical Disability
A Trial of a Client-centered Intervention Aiming to Improve Functioning in Daily Life After Stroke
This is a cluster randomized controlled trial in which client-centered rehabilitation of activities of daily living (CADL) will be compared to usual rehabilitation of activities of daily living (UADL) regarding participation in…
- Conditions
- Stroke, Physical Disability, Multiple Disability
- Trial name
- LAS-2 (NCT01417585)
- Testing
- Client-centered ADL intervention, Usual ADL intervention
- Where
- Sweden
- Volunteers
- 280 people
- Sponsor
- Karolinska Institutet
Caregiver
Expressive Writing in Improving the Wellbeing or Comforting Capacity of Caregivers of Patients With Cancer
This randomized clinical trial studies expressive writing in improving the wellbeing or comforting capacity of caregivers of patients with cancer.
- Trial name
- NCT02339870
- Testing
- Psychosocial Support for Caregiver, Questionnaire Administration
- Where
- United States
- Volunteers
- 100 people, healthy volunteers welcome
- Sponsor
- University of Washington
Caregiver, Cardiac Disease
Well-being Program for Caregivers of Patients With Advanced Cardiac and Pulmonary Disease
Caregivers provide essential support for people living with advanced heart or lung disease, including daily tasks, emotional support, and help with medical care.
- Conditions
- Caregiver, Cardiac Disease, Pulmonary Diseases
- Trial name
- NCT07685912
- Testing
- Multimodal Well-being Program
- Where
- Canada
- Volunteers
- 80 people
- Sponsor
- University Health Network, Toronto
Anterior Cruciate Ligament Injury, Pain; Catheter (Other)
On-Q Catheter Caregiver Education
The present study aims to compare caregiver satisfaction and efficacy between two modes of patient education materials (PEMs): media based and print based.
- Conditions
- Anterior Cruciate Ligament Injury, Pain; Catheter (Other), Satisfaction, Personal
- Trial name
- NCT03372889
- Testing
- Patient educaiton materials - Print based, Patient educaiton materials - Media based
- Where
- United States
- Volunteers
- 178 people
- Sponsor
- University of Colorado, Denver