Clinical trials: Pediatric Palliative Care
End of Life, Communication
Informational Meetings for Planning and Coordinating Treatment
This prospective cluster-randomized trial examines the efficacy of a novel communication intervention delivered by trained physician and nurse dyads to parents of children with cancer within the clinicians' practice, to foster…
- Conditions
- End of Life, Communication, Cancer Metastatic
- Trial name
- IMPACT (NCT04330833)
- Testing
- Novel Communication Intervention, Enhanced Usual Care Parent Education
- Where
- 7 sites in United States
- Volunteers
- 111 people
- Sponsor
- Indiana University
Tracheostomy Infection
Musical-animated Toys and Audio Books in Pediatric Palliative Care.
The aim of this study was to determine the effect of audio book and musical-moving toy on fear, anxiety and pain in tracheostomy care of children in palliative clinic.
- Trial name
- NCT06121440
- Testing
- Listening to audiobook, Playing musical-moving toy
- Where
- Turkey (Türkiye)
- Volunteers
- 16 people
- Sponsor
- Gamze Akay
Communication, End of Life
Improving Breaking Bad News in Pediatrics by Simulated Communication
Breaking bad news, especially a death notice, is an essential part of the medical profes-sional communication. Being inadequately trained in those skills this may result in un-pleasant psychosocial consequences for everyone…
- Conditions
- Communication, End of Life, Pediatric ALL
- Trial name
- SimCom (NCT06376188)
- Testing
- communication training
- Where
- Austria
- Volunteers
- 46 people, healthy volunteers welcome
- Sponsor
- Medical University of Vienna
Parental Decision Making for Seriously Ill Children
Decision Making in Serious Pediatric Illness
This study will look at a cohort of parents whose children are confronting life-threatening illnesses in intensive care, palliative care, and complex care settings, to test whether parents with higher levels of hopeful patterns…
- Trial name
- DSPI (NCT01163136)
- Where
- United States
- Volunteers
- 358 people
- Sponsor
- Children's Hospital of Philadelphia
Pediatric Malignant Brain Tumor -Diffuse Intrinsic Pontine Glioma
Palliative Re-irradiation for Progressive Diffuse Intrinsic Pontine Glioma (DIPG) in Children
Although DIPG is not curable, re-irradiation with a modest total dose and short treatment time provides good palliation of symptoms, improves quality of life, delays disease progression and has minimal and manageable toxicity.
- Trial name
- NCT01777633
- Testing
- Palliative re-irradiation for progressive DIPG in children
- Where
- Israel
- Volunteers
- 15 people
- Sponsor
- Hadassah Medical Organization
Pediatrics
Digital-storytelling Intervention for Rural-dwelling Children
The overall purpose of this study is to test the feasibility of a web-based storytelling intervention for rural-dwelling children (ages 8-17) with serious advanced illnesses.
- Trial name
- NCT04665479
- Testing
- Web-based legacy-making intervention through digital storytelling
- Where
- United States
- Volunteers
- 50 people
- Sponsor
- Vanderbilt University
Palliative Care, Micronutrients
Micronutrient Status in Pediatric Palliative Care
The goal of this observational study is to determine the micronutrient levels in patients in the Pediatric Palliative Care Clinic.
- Conditions
- Palliative Care, Micronutrients, Pediatric
- Trial name
- NCT06146452
- Testing
- Not
- Where
- Turkey (Türkiye)
- Volunteers
- 249 people, healthy volunteers welcome
- Sponsor
- Dr. Behcet Uz Children's Hospital
Neurological Impairment
Music Therapy for Pain Modification in Pediatric Palliative Care
The purpose of this within-subjects randomized controlled trial is to determine whether two music therapy interventions are efficacious in reducing pain symptoms, in order to improve the quality of care for children in pediatric…
- Trial name
- NCT01456884
- Testing
- Live guitar and vocal music therapy, Vibroacoustic Music Therapy
- Where
- Canada
- Volunteers
- 13 people
- Sponsor
- University of British Columbia
Cancer, Cardiac Anomaly
Using NPT to Evaluate Providing PPC as ELNEC-PPC WBT for Nurses
The purpose of this study is to explain the provision of palliative care at the end of life by the implementation of the ELNEC course, as WBT Program using the Normalization Process Theory, that focus attention on how complex…
- Conditions
- Cancer, Cardiac Anomaly, Cystic Fibrosis, Muscular Dystrophy
- Trial name
- ELNEC-PPC (NCT04461561)
- Testing
- end-of-life nursing education consortium-pediatric palliative care as web based-training plus usual care
- Where
- Iraq
- Volunteers
- 172 people, healthy volunteers welcome
- Sponsor
- Altoosi University College
Pediatric Palliative Care
Prospective Home-Based Palliative Care and Hospice Study
The purpose of this study is to test the hypothesis that the addition of home-based hospice and palliative care (HBHPC) will provide a reduction in health care utilization, improve quality of life, and facilitate goal-concordant…
- Trial name
- NCT06362239
- Testing
- Study Surveys
- Where
- United States
- Volunteers
- 250 people
- Sponsor
- Steven Smith
Quality of Life
Exploring The Role Of Palliative Care In Phase 1 Enrolled Pediatric Oncology Patients
This study is being conducted to learn more about the patient/family experience when opting to enroll in Phase I clinical trials and their quality of life (QOL) while receiving experimental therapy.
- Trial name
- NCT05412563
- Where
- 2 sites in United States
- Volunteers
- 31 people
- Sponsor
- St. Jude Children's Research Hospital
Encephalopathy, Cerebral Palsy
Initiating Pediatric Palliative Care in ACT Group 4
Due to the wide range of diagnoses encountered in pediatric palliative care, the Association for Children's Palliative Care (ACT) and the Royal College of Paediatrics and Child Health (RCPCH) have developed a classification of…
- Conditions
- Encephalopathy, Cerebral Palsy, Cerebral Malformation, Traumatic Head Injury
- Trial name
- StartSPP (NCT06273267)
- Testing
- Collection of data from the patient's medical file
- Where
- France
- Volunteers
- 126 people
- Sponsor
- Assistance Publique - Hôpitaux de Paris
Pediatric Cancers
Palliative Care and Symptom Management for the Pediatric Oncology Patient
The goal of this study is to learn about the communication, decision-making, symptom management, emotional adjustment, and spiritual needs of parents and pediatric patients treated at the Children's Cancer Hospital at M. D.
- Trial name
- NCT00675467
- Testing
- Focus Group - Parent/Caregiver, Focus Group - Pediatric Patient
- Where
- United States
- Volunteers
- 13 people
- Sponsor
- M.D. Anderson Cancer Center
Machine Learning, Cardiovascular Outcome
PACT Involvement in Cardiology Patients
The goal of this trial is to determine the effectiveness of a machine-learning (ML) model predicting a serious cardiac event within the next three months, when compared pre- versus post-deployment, in pediatric cardiac…
- Conditions
- Machine Learning, Cardiovascular Outcome, Pediatric Palliative Care, Pediatric Cardiology
- Trial name
- NCT06886529
- Testing
- ML-based intervention
- Where
- Canada
- Volunteers
- 1,000 people
- Sponsor
- The Hospital for Sick Children
Palliative Care
CALLiNGS Protocol: Care Across Locations Longitudinally in Navigation of Goals and Symptoms
The study intends to explore feasibility, acceptability, and quality of life outcomes from using web-conferencing technology to connect a hospital-based interdisciplinary pediatric palliative care with statewide field-based…
- Trial name
- CALLiNGS (NCT03999957)
- Testing
- Telehealth web conferencing
- Where
- 2 sites in United States
- Volunteers
- 30 people
- Sponsor
- University of Nebraska
Pediatric Cancer
Nurse-led Transitional Care to Improve Symptom Management in Childhood Cancer Survivors
This study aims to evaluate the feasibility and preliminary effectiveness of a nurse-facilitated interdisciplinary transitional care programme, based on the Omaha system, for Chinese childhood cancer survivors (CCSs) and their…
- Trial name
- NCT07273682
- Testing
- Counseling based on Omaha system, Usual Care
- Volunteers
- 68 people
- Sponsor
- The Hong Kong Polytechnic University
Pediatric Cancer, Palliative
Home Visit Intervention in Pediatric Palliative Care
A randomized controlled trial to compare the quality of life between participants who were given palliative care (a 3-month home visit) and those who were not (intervention vs control group) was conducted.
- Trial name
- NCT04067687
- Testing
- Palliative home visit
- Where
- Indonesia
- Volunteers
- 60 people
- Sponsor
- Universitas Indonesia
Primary Brain Tumor
Impact of the Development of Pediatric Palliative Care
Despite medical advances, cancer remains the leading cause of death by disease in children. Brain tumors are the second most common cause of cancer in children after leukemia, representing 25% of pediatric cancers.
- Trial name
- PTB (NCT05660499)
- Where
- France
- Volunteers
- 40 people
- Sponsor
- University Hospital, Strasbourg, France
Pediatric Neoplasm, Quality of Life
The PediQUEST Study: Evaluation of Pediatric Quality of Life and Evaluation of Symptoms Technology
Over 50% of children dying from cancer still suffer from symptoms that could be effectively alleviated. The purpose of the Pediatric Quality of Life and Evaluation of Symptoms Technology (PediQUEST) Study was to evaluate whether…
- Conditions
- Pediatric Neoplasm, Quality of Life, Outcome Assessment, Palliative Care
- Trial name
- NCT01838564
- Testing
- Routine Data collection, Feedback of patient-reported outcomes
- Where
- 4 sites in United States
- Volunteers
- 104 people
- Sponsor
- Dana-Farber Cancer Institute
Pediatric Palliative Care
Analysis of the Hospital Node in the Management of Acute Events of Patients Referred to Pediatric Palliative Care
This study aims to analyze the role of the hospital node in the acute event management of pediatric patients referred to Pediatric Palliative Care.
- Trial name
- NO_SCUSE (NCT06797921)
- Where
- 7 sites in Italy
- Volunteers
- 350 people
- Sponsor
- IRCCS Azienda Ospedaliero-Universitaria di Bologna