Clinical trials: Information Needs
Hepatocellular Carcinoma
PAtient-PHYsician Relationship Assessment
I) Introduction Patients with cancer face difficult choices that require balancing competing priorities such as survival, functional capacity and symptom relief.
- Trial name
- PAPHYRA (NCT05729230)
- Testing
- Questionnaire
- Where
- Belgium
- Volunteers
- 50 people
- Sponsor
- Erasme University Hospital
Colorectal Cancer
Information Needs After Surgery for Colorectal Cancer
Aim The overall aim was to investigate information needs after surgery for colorectal cancer and factors explaining information needs, both from the patients' perspective and the next of kin's.
- Trial name
- NCT01303393
- Where
- 3 sites in Sweden
- Volunteers
- 100 people
- Sponsor
- Region Skane
Lung Carcinoma, Metastatic Lung Carcinoma
Novel INPUT Screening Tool to Improve Illness Understanding in Patients With Metastatic or Incurable Lung Cancer
This clinical trial compares the use of a new screening tool designed to evaluate patients' information needs, preferences, and illness understanding to the usual care to improve illness understanding in patients with lung cancer…
- Conditions
- Lung Carcinoma, Metastatic Lung Carcinoma, Stage IV Lung Cancer AJCC v8
- Trial name
- NCT06743308
- Testing
- Best Practice, Questionnaire Administration
- Where
- United States
- Volunteers
- 100 people
- Sponsor
- M.D. Anderson Cancer Center
Sarcoma
Information-providing Chatbot
This study aims to develop and examine the feasibility and preliminary effectiveness of an AI-based sarcoma chatbot building on ChatGPT (ASCC) to address the information needs of sarcoma patients.
- Trial name
- NCT07505732
- Testing
- ASCC (sarcoma-specific AI chatbot), Routine Clinical Care
- Volunteers
- 78 people
- Sponsor
- The Hong Kong Polytechnic University
Health Related Social Needs (HRSN)
CommunityRx-Dementia
Caregivers of home-dwelling people with Alzheimer's Disease and related dementias (ADRD) are one of the most rapidly growing populations in the United States.
- Trial name
- CRx-D (NCT04146545)
- Testing
- Community Rx-Dementia "CRxD" Caregiver Resources
- Where
- United States
- Volunteers
- 360 people, healthy volunteers welcome
- Sponsor
- University of Chicago
Unmet Fertility Information Needs
Investigating the Efficacy of a Paediatric Fertility Preservation Decision Aid in Parents and Adolescents and Young Adults (CAYA) Cancer Survivors
The current standard of care for paediatric patients with cancer regarding preservation of their fertility (FP) is to provide high-quality information during the clinical consultation process.
- Trial name
- FOCUS (NCT06894810)
- Testing
- Decision-aid
- Where
- Australia
- Volunteers
- 358 people
- Sponsor
- Murdoch Childrens Research Institute
Anxiety, Stress
Virtual Reality Education Program to Reduce Anxiety During Radiation Therapy
The purpose of this study is to compare the efficacy of an immersive virtual reality (VR)-based education program with a form of patient education commonly provided by clinics (e.g., an educational video) at delivering education…
- Conditions
- Anxiety, Stress, Satisfaction, Patient, Preparedness
- Trial name
- NCT04029961
- Testing
- Video Education, VR-based Education
- Where
- United States
- Volunteers
- 28 people
- Sponsor
- Medical College of Wisconsin
Cancer
Cancer Information Your Way: Get What You Need to Make Your Decisions
People diagnosed with cancer may face many difficult decisions regarding their care and preferences. This may be particularly challenging when the cancer cannot be cured.
- Trial name
- NCT04592224
- Where
- United Kingdom
- Volunteers
- 21 people
- Sponsor
- University of Southampton
Pain, Opioid Use
The Experiences of People Prescribed Opioid Pain Medicines
Opioids are morphine-type medicines which come from the opium poppy or are similar-to morphine. They are very effective for short-term pain, cancer pain, and pain at the end of life.
- Trial name
- NCT04888897
- Where
- United Kingdom
- Volunteers
- 619 people
- Sponsor
- University of Nottingham
Advanced Lung Cancer, Symptoms
Descriptors and Predictors of Burden and Information Needs
the purpose of this study is to investigate over time patients' symptom burden, caregiving burden, and patients and caregivers' need for information on patient symptom self-management at home during palliative radiotherapy(RT)…
- Trial name
- NCT04069494
- Testing
- questionnaires
- Where
- Thailand
- Volunteers
- 112 people
- Sponsor
- Chulabhorn Cancer Center
Inpatient
Addressing Hospital Patient Information Needs Using Information Technology
The aim of this study is to evaluate the impact of an inpatient personal health record (PHR) portal intervention within the hospital environment.
- Trial name
- NCT01970852
- Testing
- Standard tablet computer, Enhanced tablet computer
- Where
- United States
- Volunteers
- 426 people
- Sponsor
- Columbia University
Drug Use
Geographical Information System (GIS) Mapping to Assess the Need for IEP Provision in Tayside
The aim of this study is to review the current provision of IEP services provided across Tayside and consider to what extent they are contributing to keeping this vulnerable population safe.
- Trial name
- NCT04099719
- Where
- United Kingdom
- Volunteers
- 2,000 people
- Sponsor
- NHS Tayside
Brain Tumor
Study of the Health Information Needs of Brain Cancer Patients
The purpose of this research is to explore the factors involved in brain cancer health care literacy needs.
- Trial name
- NCT01130220
- Testing
- Focus Group
- Where
- United States
- Volunteers
- 27 people
- Sponsor
- University of Florida
Artificial Intelligence
Harnessing Health IT to Promote Equitable Care for Patients with Limited English Proficiency and Complex Care Needs
This is a pragmatic trial that will measure if the use of AI to identify patients with complex care needs and language barriers, as well as active reaching out to clinicians to offer the use of interpreter services will improve…
- Trial name
- NCT05860777
- Testing
- Complexity score and implementation
- Where
- United States
- Volunteers
- 1,923 people
- Sponsor
- Mayo Clinic
Patient Discharge
The Impact of Just-in-time Information on Neonatal Intensive Care Unit (NICU) Discharges
We, the investigators, will provide "Just-in-Time" information, physician educational material, to primary care pediatricians of Neonatal Intensive Care Unit (NICU) graduates at the time of NICU discharge.
- Trial name
- NCT01091688
- Testing
- Just-in-Time information
- Where
- United States
- Volunteers
- 229 people
- Sponsor
- Virginia Moyer
Nurse Based Care Management, Health Information Technology
Enhancing Complex Care Through an Integrated Care Coordination Information System
Cluster randomized controlled trial comparing care coordination incentives to pay for performance (quality measure) incentives in clinics on utilization, cost, quality, and patient experience.
- Trial name
- NCT01890603
- Testing
- Data collection
- Where
- United States
- Volunteers
- 60,000 people
- Sponsor
- Care Management Plus
Children, Disability Physical
Stakeholder Perspectives on the Need for a Digital Solution in Pediatric Rehabilitation
Introduction: Children with chronic conditions receive fragmented rehabilitative care due to the multitude of providers and structures involved, and the constant changes throughout their care and life course.
- Conditions
- Children, Disability Physical, Disabilities Multiple, Disability, Developmental
- Trial name
- ProChRehab (NCT06570148)
- Testing
- semi-directed interview or focus group
- Where
- France
- Volunteers
- 60 people, healthy volunteers welcome
- Sponsor
- University Hospital, Brest
Cancer, End Stage Cancer
Information Needs Around Parenteral nUTrition in Cancer
This study will explore the information needs of patient's with advanced cancer, and their carers, when making a decision to commence or discontinue parenteral nutrition.
- Conditions
- Cancer, End Stage Cancer, Terminal Cancer, Neoplasms
- Trial name
- INPUT (NCT04495530)
- Testing
- Non-interventional study
- Where
- 4 sites in United Kingdom
- Volunteers
- 12 people, healthy volunteers welcome
- Sponsor
- Royal Marsden NHS Foundation Trust
Patient Safety, Quality Indicator
Effectiveness of Monitoring Information System of Nursing Related Patient Safety and Quality Indicators
Objective: The purposes of this study are 1) to understand the nurses' need and perception toward of the monitoring information system of nursing-related patient safety and quality indicators; 2) to establish the monitoring…
- Conditions
- Patient Safety, Quality Indicator, Information System, Nursing
- Trial name
- NCT02955836
- Where
- Taiwan
- Volunteers
- 2,000 people, healthy volunteers welcome
- Sponsor
- National Taiwan University Hospital
Stem Cell Transplantation
Survey of the Need for Information on Fertility and Menopause-Related Treatment Effects Among HSCT Patients
Primary Objective: To understand the importance of receiving information on fertility- and menopause-related treatment effects for female patients undergoing hematopoietic stem cell transplantation.
- Trial name
- NCT00429455
- Testing
- Survey
- Where
- United States
- Volunteers
- 196 people
- Sponsor
- M.D. Anderson Cancer Center